Claire Wakefield

Professor

Prof Claire Wakefield is a medical psychologist who leads research to improve quality of life for patients with medical illness, especially children with cancer and other life-limiting conditions. She is a Professor at the School of Clinical Medicine at UNSW. She is also Executive Director of the Behavioural Sciences Unit at Sydney Children’s Hospital. 

Prof Wakefield holds multiple international leadership roles, including being Continental President (Oceania) for the International Society for Paediatric Oncology (SIOP). Specific responsibilities of the SIOP Continental President Oceania include advocating for children and adolescents with cancer across Oceania, promoting research to improve outcomes for childhood cancer patients across Oceania, facilitating and sharing education and training opportunities for SIOP Oceania members, increasing membership and engagement of SIOP Oceania members in SIOP activities and strengthening and expanding strategic partnerships of relevance to SIOP Oceania.  She works very closely with the World Health Organisation, supporting the work of the Global Childhood Cancer Initiative.

Prof Wakefield has published more than 340 journal articles and is named as Chief Investigator on competitive research grants totalling more than $55M. She has received numerous awards for her work, including being named as the NSW Premier’s Outstanding Cancer Research Fellow of the Year.

Prof Wakefield holds an Investigator Grant from the National Health and Medical Research Council (NHMRC) and was a Diamond Jubilee International Visiting Fellow at the University of Southampton, UK.

Research Interests:

Research interests include health psychology; palliative care; advance care planning; precision medicine; genomic sequencing; cancer predisposition syndromes; patient education; assisting families to make difficult medical decisions (e.g. deceased organ donation); and challenges faced by children with complex needs. Currently focussing on child health research, with projects ranging from newly diagnosed families, on-treatment families, long term survivors and bereaved caregivers.

Broad Research Areas:

Child Health, Cancer, Health Promotion, Quality of Life

Qualifications:

BPsych(Hons1), MPH, PhD

Specific Research Keywords:

Paediatrics, Childhood Cancer, Psychosocial Issues, Adolescence, Genetics, Mental Health, Psychology, Oncology

PUBLICATIONS
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Journal articles
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Budden AK; Henry A; Wakefield CE; Abbott JA, 2026, 'Surgeons' Biological Stress Responses During Fundamentals of Laparoscopic Surgery Exercises: A Descriptive Study.', J Minim Invasive Gynecol, http://dx.doi.org/10.1016/j.jmig.2026.03.011
2026
Hunter JD; Hetherington K; McGillycuddy M; Wakefield CE; Tucker KM; O’Brien TA; McGill BC; Fuentes-Bolanos NA; Bhatia K; Padhye B; Grant A; Barlow-Stewart K; Warby M; Courtney EK; Peate M, 2026, '“I don’t think I even thought of myself” A mixed-methods study of family experiences of trio germline whole genome sequencing in newly diagnosed childhood cancer', British Journal of Cancer, http://dx.doi.org/10.1038/s41416-026-03354-9
2026
Ha L; Singleton D; Wakefield CE; Cohn RJ; Simar D; Signorelli C, 2026, 'Structured and Unstructured Physical Activity, Screen Time and Quality of Life in Childhood Cancer Survivors', Cancers, 18, http://dx.doi.org/10.3390/cancers18050752
2026
Kaye EC; Bogetz J; Barton KS; Bell CJ; Johnston EE; Pozzar RA; Superdock A; Thorne S; Weaver MS; Wiener L; Graetz DE; Agulnik A; Ananth P; Barton K; Bell C; Bilbeisi T; Bluebond-Langner M; Bogetz J; Bryan G; Cáceres A; Carlisle E; Counts L; Ferrara G; Fuentes L; Graetz D; Hanebrink J; Herbert A; Hinds P; Hodges J; Johnson L; Johnston E; Mack JW; Malone S; Montez K; Reisinger HS; Rihani R; Salek M; Sisk BA; Thorne S; Wakefield C; Wiener L; Williams A; Williamson F; Wynja K; Zimmermann C; Weaver M; Pozzar R, 2026, 'Expert recommendations for the conduct and appraisal of qualitative research in oncology', Lancet Oncology, 27, pp. e84 - e100, http://dx.doi.org/10.1016/S1470-2045(25)00670-9
2026
Graetz DE; Sisk BA; Salek M; Blazin LJ; Wakefield CE; Tarbi EC; Thorne S; LeBlanc TW; Hinds PS; Traeger L; Kaye EC; Cáceres-Serrano A; Williams A; Herbert A; Agulnik A; Cowfer B; Levine D; Carlisle E; Gibson F; Bryan G; Ferrara G; Schacht Reisinger H; Bogetz J; Wynja K; Pimenta K; Montez K; Barton KS; Counts L; Sniderman L; Johnson LM; Bluebond-Langner M; Rossell N; Ananth P; Rihani R; Kirch R; Malone S; Bilbeisi T; Paul TK, 2026, 'The power of words: evaluating the role of qualitative methods in cancer research', Lancet Oncology, 27, pp. e73 - e83, http://dx.doi.org/10.1016/S1470-2045(25)00669-2
2026
Nevin SM; Le Marne FA; Kelada L; Wakefield CE; Beavis E; Macintosh R; Palmer EE; McLoughlin R; van Beek A; Wittekind C; Shalhoub C; Lau CYY; Elliot C; Rogers D; Wijetilaka D; Argent E; Cotterell E; Jacobson EE; McCarthy H; Sampaio H; Dalby-Payne J; Doyle K; Bhattacharya K; Lorentzos M; Slade R; Evans R; Pillai S; Mohammad S; Piper S; Sarkozy V; Stark K; Ging J; Sachdev R; Nunn K; Bye A, 2026, 'Connect, pause and reflect: Multidisciplinary clinicians’ shared challenges and sustaining strategies caring for children with Severe Neurological Impairment', European Journal of Paediatric Neurology, 60, pp. 15 - 23, http://dx.doi.org/10.1016/j.ejpn.2025.10.006
2026
Long S; Evans HE; Wakefield CE; Kasparian NA; McGillivray G; Roscioli T; Firriolo AM; Parmar J; Kelada L, 2026, 'Australian patients' experiences of undergoing whole exome sequencing for fetal structural anomalies prior to receiving results', Journal of Genetic Counseling, 35, http://dx.doi.org/10.1002/jgc4.70158
2026
Evans HE; Firriolo AM; Houweling R; Kelada L; Stannard G; Frawley J; McGill BC; Ramus SJ; Lee YC; Friedlander M; Duggan J; Wakefield CE, 2026, 'Evaluating patient perspectives about the acceptability of a novel prognostic gene expression signature for high grade serous ovarian cancer: The OTTA-SPOT study', Gynecologic Oncology, 204, pp. 150 - 157, http://dx.doi.org/10.1016/j.ygyno.2025.11.023
2026
Nevin SM; Kelada L; Elvidge KL; Maack M; Hilton G; Kershaw J; Da Ros E; Briggs NE; Farrar MA; Wakefield CE, 2026, 'Navigating the complex landscape of childhood dementia: caregiver psychological well-being, grief, and health system challenges', Journal of Pediatric Psychology, 51, pp. 60 - 72, http://dx.doi.org/10.1093/jpepsy/jsaf095
2026
Tutika T; Chittem M; Namjoshi S; Patil VC; Kelada L; Wakefield CE, 2026, 'Unmet supportive care needs of family caregivers of children with cancer in India', Journal of Pediatric Nursing, 86, pp. 44 - 50, http://dx.doi.org/10.1016/j.pedn.2025.10.029
2026
Boensvang NN; Fridh MK; Wakefield CE; Bidstrup PE; Larsen HB, 2026, 'How Classmates Experience Visiting Their Hospitalised Peer During Cancer Treatment: A RESPECT Study', Journal of Advanced Nursing, 82, pp. 1667 - 1680, http://dx.doi.org/10.1111/jan.70017
2026
Ha L; Nevin SM; Wakefield CE; Jacovou J; Mizrahi D; Signorelli C, 2025, 'Exploring childhood cancer survivor, parent, healthcare and community professionals’ experiences of, and priorities for, using digital health to engage in physical activity: a mixed methods study', Journal of Cancer Survivorship, 19, pp. 1403 - 1418, http://dx.doi.org/10.1007/s11764-024-01560-z
2025
Schilstra CE; Ellis SJ; Sedger A; Burns MA; Miller KA; Wakefield CE; Cohn RJ; Lah S; Sansom-Daly UM; Anazodo AC; Fardell JE, 2025, 'Social Participation Among Long-Term Survivors of Childhood and Adolescent Cancer', Pediatric Blood and Cancer, 72, http://dx.doi.org/10.1002/pbc.32042
2025
Ha L; Signorelli C; Cohen J; Neville KA; Wakefield CE; Cohn RJ, 2025, 'Impact of a digital physical activity intervention on reducing sugar-sweetened beverage intake in young childhood cancer survivors: Epidemiology', British Journal of Cancer, 132, pp. 583 - 584, http://dx.doi.org/10.1038/s41416-025-02965-y
2025
Van Hoyweghen S; Claes KBM; de Putter R; Wakefield CE; Van Poucke M; Van Schoors M; Hellemans S; Verhofstadt L, 2025, 'Family-Level Impact of Germline Genetic Testing in Childhood Cancer: A Multi Family Member Interview Analysis', Cancers, 17, http://dx.doi.org/10.3390/cancers17030517
2025
Sansom-Daly UM; McLoone JK; Fardell JE; Evans HE; McGill BC; Robertson EG; Signorelli C; Ellis S; Ha L; Hetherington K; Houweling RE; Nevin SM; Schilstra CE; Mitchell R; Haber M; Cohn RJ; Wakefield CE, 2025, 'Bridging the Gap: Embedding Psychosocial Oncology Research into Comprehensive Cancer Care for Children and Young People', Cancers, 17, http://dx.doi.org/10.3390/cancers17132123
2025
Hayes TRC; Sansom-Daly UM; Kelada L; Baenziger J; Hetherington K; Cohn RJ; Holland LR; Plaster M; Houweling R; Wakefield CE, 2025, 'Exploring the impact of cancer on adolescents' and young adults' relational worlds', Journal of Psychosocial Oncology Research and Practice, 7, http://dx.doi.org/10.1097/OR9.0000000000000175
2025
Evans HE; Ralph M; Jaaniste T; Wakefield CE; Sansom-Daly UM, 2025, 'The Rhythm of Connection: Describing the Heartbeats Intervention for Patients and Families Receiving Paediatric Palliative Care', Children, 12, http://dx.doi.org/10.3390/children12070884
2025
Ha L; Signorelli C; McLoone JK; Wakefield CE; Alchin JE; Venkatesha V; Cohn RJ; Fardell JE, 2025, 'Risky, protective, and screening health behaviours among childhood cancer survivors: A cross-sectional survey in Australia and New Zealand', Journal of Cancer Survivorship, http://dx.doi.org/10.1007/s11764-025-01858-6
2025
Irestorm E; Wakefield CE; Hetherington K; McGill BC; Evans HE; McDonald F; Patterson P; Beattie A; Cohn RJ; Sansom-Daly UM, 2025, 'Recapturing Life: Virtual Peer-Based Psychological Support for Adolescent and Young Adult Cancer Survivors Delivered in the Community', Journal of Adolescent and Young Adult Oncology, http://dx.doi.org/10.1177/21565333251369689
2025
Ha L; Wakefield CE; Jacovou J; Johnston K; Drew D; Donoghoe MW; Mizrahi D; Lourenco RDA; Cohn RJ; Taylor N; Signorelli C; Roughley K; Joyner C; Wright A, 2025, '‘Making Moves’: Protocol for a hybrid effectiveness-implementation pre-post trial of a co-designed online physical activity program for childhood cancer survivors', Jsams Plus, 5, http://dx.doi.org/10.1016/j.jsampl.2025.100099
2025
Signorelli C; McLoone J; Wakefield C; Donoghoe M; Alchin JE; Johnston K; Baldwin R; Thornton-Benko E; Webber K; Foreman T; Neville K; Cohn R, 2025, 'Engage: A Survivorship Program to Improve Childhood Cancer Survivors' Self-Efficacy and Quality of Life', JCO Oncology Practice, 21, pp. 1274 - 1286, http://dx.doi.org/10.1200/OP-24-00815
2025
Elias J; McLoone JK; McKay S; Signorelli C; Cohn RJ; Wakefield CE; Mazariego C; Taylor N, 2025, 'Planning for Scale-Up and Sustainability: A Multi-site Process Evaluation Protocol for a Novel Intervention for Survivors of Childhood Brain Cancer', Global Implementation Research and Applications, 5, pp. 290 - 305, http://dx.doi.org/10.1007/s43477-025-00159-5
2025
Robertson EG; Hetherington K; Hunter JD; McGillycuddy M; Venkatesha V; Lau LMS; Khuong-Quang DA; Ziegler DS; Wakefield CE, 2025, 'Whatever It Takes: Parents' Perspectives of Patient-Derived Xenograft Mouse Models for Poor Prognosis Childhood Cancer', JCO Precision Oncology, 9, pp. e2400840, http://dx.doi.org/10.1200/PO-24-00840
2025
Schilstra CE; Wakefield CE; McLoone J; Wiener L; Donoghoe MW; Hoffman RI; Echodu M; Ortiz R; Ilbawi A; Cayrol J, 2025, 'Development of a World Health Organization international survey assessing the lived experience of people affected by cancer: outcomes from pilot testing, user feedback, and survey revision', Supportive Care in Cancer, 33, http://dx.doi.org/10.1007/s00520-025-09372-2
2025
Parker C; Schilstra CE; McCleary K; Martin M; Trahair TN; Kotecha RS; Ramachandran S; Cockcroft R; Conyers R; Cross S; Dalla-Pozza L; Downie P; Revesz T; Osborn M; Marshall GM; Wakefield CE; Mateos MK; Fardell JE, 2025, 'Psychosocial Outcomes in Parents of Children with Acute Lymphoblastic Leukaemia in Australia and New Zealand Through and Beyond Treatment', Cancers, 17, http://dx.doi.org/10.3390/cancers17071238
2025
Zhang T; Ren Z; Wakefield CE; Hui BPH; Akechi T; Shi C; Du X; Chen W; Lai L; Zhao C; Li Y; Zhou Y, 2025, 'Are digital psychological interventions for psychological distress and quality of life in cancer patients effective? A systematic review and network meta-analysis', Clinical Psychology Review, 115, http://dx.doi.org/10.1016/j.cpr.2024.102520
2025
Hill RE; Fardell JE; Mercieca-Bebber R; Wakefield CE; Signorelli C; Webber K; Johnston KA; Cohn RJ, 2025, 'Survivorship care plan utilization in Australia and New Zealand: survivors’, parents’ and healthcare providers’ perspectives', Supportive Care in Cancer, 33, http://dx.doi.org/10.1007/s00520-025-09238-7
2025
Hunter JD; Hetherington K; Wakefield CE; Tucker KM; McGill BC; Grant A; Fuentes-Bolanos NA; Padhye B; Gleeson M; Bhatia K; Peate M, 2025, 'Delivering Trio Germline Whole Genome Sequencing to Patients Newly Diagnosed With Childhood Cancer: Healthcare Professionals' Perspectives of the PREDICT Study', Cancer Medicine, 14, http://dx.doi.org/10.1002/cam4.70680
2025
McLoone JK; Wakefield CE; Glasson N; Wiener L; Ortiz R; Ilbawi A; Schilstra CE; Hoffman R; Cayrol J, 2025, 'The Lived Experience of Childhood Cancer Survivors and Their Parents: A Multi-National Study of Access to Survivorship Care and Information and Support Needs', Pediatric Blood and Cancer, 72, http://dx.doi.org/10.1002/pbc.31593
2025
Soosay Raj TA; Harrison J; Wakefield CE; Daur B; Felmingham B; Casey M; McLoone JK; Sullivan M; Staffieri SE; Anga G, 2025, 'Building capacity to treat childhood cancer in Papua New Guinea: ‘It’s a multidisciplinary village’', Journal of Global Health, 15, http://dx.doi.org/10.7189/JOGH.15.03008
2025
Robertson EG; Kelada L; Ilin R; Palmer EE; Bye A; Jaffe A; Kennedy SE; Ooi CY; Drew D; Wakefield CE, 2025, 'Psychological wellbeing among parents of a child living with a serious chronic illness: A cross-sectional survey study', Journal of Child Health Care, 29, pp. 626 - 641, http://dx.doi.org/10.1177/13674935241238485
2025
Long S; Schofield D; Kraindler J; Vink R; Ross K; Hart N; Evans H; Wilson A; Hyett J; Wakefield CE; Kelada L; Scott H; Lunke S; Wall M; Buckley MF; Fernihough G; McGillivray G; Roscioli T, 2025, 'The PreGen Research Program: Implementing Prenatal Genomic Testing in Australia—A Commentary', Australian and New Zealand Journal of Obstetrics and Gynaecology, 65, pp. 543 - 547, http://dx.doi.org/10.1111/ajo.13936
2025
Sansom-Daly UM; Kirton C; Lim CYS; Wakefield CE; Hetherington K; McGill BC; Evans HE; Patterson P; Ellis SJ, 2025, 'Support through the screen: therapeutic alliance and group cohesion processes in group videoconferencing-based psychological programs for young cancer survivors', Australian Psychologist, 60, pp. 125 - 138, http://dx.doi.org/10.1080/00050067.2024.2436922
2025
Finney J; Fargas V; Gonzalez T; Taylor N; Wakefield CE; Tucker K; Turbitt E; Williams R, 2025, 'Cancer genetic counseling via telegenetics and telephone: A qualitative study exploring the experience of patients and genetic counselors in an Australian cancer genetics context', Journal of Genetic Counseling, 34, http://dx.doi.org/10.1002/jgc4.1982
2025
Budden AK; Song S; Henry A; Wakefield CE; Abbott JA, 2025, 'A scoping review of participant reported outcome measures assessed during live and simulated surgical procedures', American Journal of Surgery, 240, pp. 116131, http://dx.doi.org/10.1016/j.amjsurg.2024.116131
2025
Docking KM; Hodges R; Campbell L; Chami S; Knijnik SR; Campbell E; Paquier P; Dalla-Pozza L; Wakefield CE; Waugh MC; Messina M; Morgan AT, 2025, 'Clinical Practice Guideline for the Management of Communication and Swallowing in Children Diagnosed With Childhood Brain Tumor or Leukemia', Pediatric Blood and Cancer, 72, http://dx.doi.org/10.1002/pbc.31749
2025
Lei Y; Hetherington K; Daly R; Rensen N; McGill BC; Ziegler DS; Lau LMS; Tyrrell V; Karpelowsky J; Cowley MJ; Tucker KM; Haber M; Barahona P; Wakefield CE, 2025, 'Data Sharing, Biopsies and Patient Confidentiality in a Precision Medicine Trial for Childhood Cancer: A Mixed Method Study of Parents, Oncologists, and Scientists’ Perspectives', Journal of Personalized Medicine, 15, http://dx.doi.org/10.3390/jpm15110531
2025
Gereis JM; Hetherington K; Robertson EG; Daly R; McGill BC; Ziegler DS; Wakefield CE, 2025, 'Animated videos for childhood cancer precision medicine: development and evaluation with parents and patients', Supportive Care in Cancer, 33, http://dx.doi.org/10.1007/s00520-025-10191-8
2025
Nobilo A; McLoone J; White M; Smithers-Sheedy H; Anderson J; Lingam R; Bailey C; Wakefield CE; Hancock JE; Hodgins M; Woolfenden S; Steinbeck K; Pierce K; Moore C; Lain S; Ho J; Glasson N; Gialamas A; Culnane E; Cazzolli R, 2025, 'Co-design of an intervention to enhance healthcare transition for adolescents and young adults with chronic medical conditions', Npj Health Systems, 2, http://dx.doi.org/10.1038/s44401-025-00041-4
2025
Robertson EG; Hetherington K; Prain M; Ma A; Ayton LN; Jamieson RV; Shepard E; Boyd L; Hall J; Boyd R; Karandrews S; Feller H; Simunovic MP; Grigg JR; Yamamoto K; Wakefield CE; Gonzalez-Cordero A, 2025, 'Australian research priorities for inherited retinal diseases: a James Lind Alliance priority setting partnership', BMJ Open, 15, http://dx.doi.org/10.1136/bmjopen-2025-100301
2025
Hanania JW; Shepherd RF; Wiener L; Sharp KMH; Similuk MN; Denburg AE; Wakefield CE, 2025, 'How We Approach the Integration of Psychological Services in the Care of Children With Cancer Predisposition Syndromes', Pediatric Blood and Cancer, 72, http://dx.doi.org/10.1002/pbc.32065
2025
Kelada L; Robertson EG; McKay S; McGill BC; Daly R; Mazariego C; Taylor N; Tyedmers E; Armitage N; Evans HE; Wakefield CE; Ziegler DS, 2024, 'Communicating with families of young people with hard-to-treat cancers: Healthcare professionals’ perspectives on challenges, skills, and training', Palliative and Supportive Care, 22, pp. 539 - 545, http://dx.doi.org/10.1017/S1478951523001992
2024
Daly R; Hetherington K; Wadling BR; Jacobs C; Karpelowsky J; Wakefield CE, 2024, 'It provides families with other avenues for treatment when there are no other options Surgeons' perspectives of being part of a precision medicine trial for poor prognosis paediatric cancer patients: A short report', Cancer Medicine, 13, http://dx.doi.org/10.1002/cam4.7209
2024
Robertson EG; Hetherington K; Daly R; Donoghoe MW; Handelsman N; Ziegler DS; Wakefield CE, 2024, 'The feasibility and acceptability of collecting psychosocial outcome measures embedded within a precision medicine trial for childhood cancer', Cancer Medicine, 13, http://dx.doi.org/10.1002/cam4.7339
2024
Budden AK; Henry A; Wakefield CE; Abbott JA, 2024, 'Surgeon stress, anxiety, and workload: a descriptive study of participant reported responses to fundamentals of laparoscopic surgery exercises', Surgical Endoscopy, 38, pp. 6518 - 6526, http://dx.doi.org/10.1007/s00464-024-11238-3
2024
Fredriksen T; Vatne TM; Haukeland YB; Czajkowski NO; Wakefield CE; Fjermestad KW, 2024, 'Evaluation of Siblings’ Perceived Relationship Outcomes with Their Parents in an Open Trial of the SIBS Intervention for Children with Chronic Disorders', Journal of Child and Family Studies, 33, pp. 2271 - 2285, http://dx.doi.org/10.1007/s10826-024-02824-z
2024
Lee AE; McLoone JK; Touyz LM; Wakefield CE; Cohn RJ; Signorelli C, 2024, 'It just never ends: Childhood cancer survivors' perceived psychosocial impacts of recurrence and second cancer', Palliative and Supportive Care, 22, pp. 31 - 40, http://dx.doi.org/10.1017/S1478951522001328
2024
Kelada L; Jaaniste T; Cuganesan A; Chin WL; Tan SC; Wu J; Ilin R; Robertson E; Drew D; Wakefield CE, 2024, 'Illness-related communication between siblings and parents of children with chronic illness and life-limiting conditions: A qualitative analysis', Palliative and Supportive Care, 22, pp. 1353 - 1359, http://dx.doi.org/10.1017/S1478951524001056
2024
Fardell JE; Schilstra C; Hikila J; Collins D; Kelada L; Lah S; Cohn RJ; Wakefield CE; Ellis S, 2024, 'Survivors of child and adolescent cancer experiences of bullying at school or work: self-report and parent proxy report', Journal of Psychosocial Oncology Research and Practice, 6, http://dx.doi.org/10.1097/OR9.0000000000000130
2024
Jongenelis MI; Gill M; Lawrence N; Wakefield CE, 2024, 'Quitting intentions and behaviours among young Australian e-cigarette users', Addiction, 119, pp. 1608 - 1615, http://dx.doi.org/10.1111/add.16530
2024
Schilstra CE; Sansom-Daly UM; Ellis SJ; Trahair TN; Anazodo AC; Amiruddin A; Lindsay T; Maguire F; Wakefield CE; Lah S; Bland E; Lenthen K; Rifkin A; Awan A; Kittos T; Hanbury N; Tsalidis S; Patterson P; McDonald F; Fardell JE, 2024, 'Guidelines for Caring for the Social Well-Being of Adolescents and Young Adults with Cancer in Australia', Journal of Adolescent and Young Adult Oncology, 13, pp. 8 - 29, http://dx.doi.org/10.1089/jayao.2023.0027
2024
Van Hoyweghen S; BM Claes K; de Putter R; Wakefield C; Van Schoors M; Hellemans S; Verhofstadt L, 2024, 'The psychological impact of genetic testing in childhood cancer: A systematic review', Psycho Oncology, 33, http://dx.doi.org/10.1002/pon.6279
2024
Mazariego CG; McKay S; Tyedmers E; Kelada L; McGill BC; Daly R; Wakefield CE; Ziegler DS; Taylor N, 2024, 'Co-design of a paediatric oncology medicines database (ProCure) to support complex care provision for children with a hard-to-treat cancer', Frontiers in Medicine, 11, pp. 1332434, http://dx.doi.org/10.3389/fmed.2024.1332434
2024
Mazariego C; Daly R; McGill B; Kelada L; McKay S; Hetherington K; Ziegler DS; Wakefield CE; Taylor N, 2024, 'Barriers to access of precision guided therapies for children with high-risk cancer', Pediatric Blood and Cancer, 71, http://dx.doi.org/10.1002/pbc.31147
2024
Sansom-Daly UM; Evans HE; Darlington AS; Weaver MS; Rosenberg AR; Wiener L; Anazodo A; Sue L; Cable M; Fernando RA; Herbert AR; Lindsay T; Cohn RJ; Wakefield CE, 2024, 'Alignment of Palliative Care Service Structure and Standards of Care for Adolescents and Young Adults with Cancer: An International Survey of Clinical Practice', Journal of Palliative Medicine, 27, pp. 1606 - 1617, http://dx.doi.org/10.1089/jpm.2024.0141
2024
Church AJ; Wakefield CE; Hetherington K; Shern JF, 2024, 'Promise and Perils of Precision Oncology for Patients With Pediatric and Young Adult Sarcomas.', Am Soc Clin Oncol Educ Book, 44, pp. e432794, http://dx.doi.org/10.1200/EDBK_432794
2024
van Kalsbeek RJ; Hudson MM; Mulder RL; Ehrhardt M; Green DM; Mulrooney DA; Hakkert J; den Hartogh J; Nijenhuis A; van Santen HM; Schouten-van Meeteren AYN; van Tinteren H; Verbruggen LC; Conklin HM; Jacola LM; Webster RT; Partanen M; Kollen WJW; Grootenhuis MA; Pieters R; Kremer LCM; Zwiers L; Zsiros J; van Zanten J; Zaidi A; Zaletel LZ; Wyrick K; Wouterse C; Wouters K; Wlodarski M; Witt O; de Winter L; Windham J; Wilson T; Willard V; Wijnen M; Wiener L; Wichink R; Whelan J; van de Wetering M; Weiss A; van Wegen Peelen C; Warren K; Wakefield C; van Vuurden D; de Vries A; de Vos-Kerkhof E; van Vliet J; Visser S; Verwaaijen E; Versluys B; van de Ven K; Uyuk G; Uyttebroeck A; Upadhyaya S; Turner E; Top A; Tonning-Olsson I; Tissing W; Tippett R; Tinkle C; Thomassen B; Thomas S; Terwisscha S; Tersteeg C; Taylor H; Talleur A; Takemoto C; Taj M; Sweeney T; Sulkers M; Spunt S; Spraker-Perlman H; Smith D; van der Sluis I; Sluijs D; Slooff R; Skinner R; Sieswerda I; Sehested A; Schulte F; Schoot R; Schmiegelow K; Schleiermacher G; Scheinemann K; Sawyer K; Saslawsky S; Santana V; van de Sande M; Rutkowski S; Roganovic J; Roberts S; Ribeiro R; Rehorst-Kleinlugtenbelt L; Redd D; Qaddoumi I; Potter B; Portegies M; Plasschaert S; Phillips B, 2024, 'Correction to: A joint international consensus statement for measuring quality of survival for patients with childhood cancer (Nature Medicine, (2023), 29, 6, (1340-1348), 10.1038/s41591-023-02339-y)', Nature Medicine, 30, pp. 2091, http://dx.doi.org/10.1038/s41591-024-03065-9
2024
van Kalsbeek RJ; Hudson MM; Mulder RL; Ehrhardt M; Green DM; Mulrooney DA; Hakkert J; den Hartogh J; Nijenhuis A; van Santen HM; Schouten-van Meeteren AYN; van Tinteren H; Verbruggen LC; Conklin HM; Jacola LM; Webster RT; Partanen M; Kollen WJW; Grootenhuis MA; Pieters R; Kremer LCM; Zwiers L; Zsiros J; van Zanten J; Zaidi A; Zaletel LZ; Wyrick K; Wouterse C; Wouters K; Wlodarski M; Witt O; de Winter L; Windham J; Wilson T; Willard V; Wijnen M; Wiener L; Wichink R; Whelan J; van de Wetering M; Weiss A; van Wegen Peelen C; Warren K; Wakefield C; van Vuurden D; de Vries A; de Vos-Kerkhof E; van Vliet J; Visser S; Verwaaijen E; Versluys B; van de Ven K; Uyuk G; Uyttebroeck A; Upadhyaya S; Turner E; Top A; Tonning-Olsson I; Tissing W; Tippett R; Tinkle C; Thomassen B; Thomas S; Terwisscha S; Tersteeg C; Taylor H; Talleur A; Takemoto C; Taj M; Sweeney T; Sulkers M; Spunt S; Spraker-Perlman H; Smith D; van der Sluis I; Sluijs D; Slooff R; Skinner R; Sieswerda I; Sehested A; Schulte F; Schoot R; Schmiegelow K; Schleiermacher G; Scheinemann K; Sawyer K; Saslawsky S; Santana V; van de Sande M; Rutkowski S; Roganovic J; Roberts S; Rehorst-Kleinlugtenbelt L; Redd D; Qaddoumi I; Potter B; Portegies M, 2024, 'Correction to: A joint international consensus statement for measuring quality of survival for patients with childhood cancer (Nature Medicine, (2023), 29, 6, (1340-1348), 10.1038/s41591-023-02339-y)', Nature Medicine, 30, pp. 603, http://dx.doi.org/10.1038/s41591-023-02651-7
2024
van Kalsbeek RJ; Hudson MM; Mulder RL; Ehrhardt M; Green DM; Mulrooney DA; Hakkert J; den Hartogh J; Nijenhuis A; van Santen HM; Schouten-van Meeteren AYN; van Tinteren H; Verbruggen LC; Conklin HM; Jacola LM; Webster RT; Partanen M; Kollen WJW; Grootenhuis MA; Pieters R; Kremer LCM; Zwiers L; Zsiros J; van Zanten J; Zaidi A; Zaletel LZ; Wyrick K; Wouterse C; Wouters K; Wlodarski M; Witt O; de Winter L; Windham J; Wilson T; Willard V; Wijnen M; Wiener L; Wichink R; Whelan J; van de Wetering M; Weiss A; van Wegen Peelen C; Warren K; Wakefield C; van Vuurden D; de Vries A; de Vos-Kerkhof E; van Vliet J; Visser S; Verwaaijen E; Versluys B; van de Ven K; Uyuk G; Uyttebroeck A; Upadhyaya S; Turner E; Top A; Tonning-Olsson I; Tissing W; Tippett R; Tinkle C; Thomassen B; Thomas S; Terwisscha S; Tersteeg C; Taylor H; Talleur A; Takemoto C; Taj M; Sweeney T; Sulkers M; Spunt S; Spraker-Perlman H; Smith D; van der Sluis I; Sluijs D; Slooff R; Skinner R; Sieswerda I; Sehested A; Schulte F; Schoot R; Schmiegelow K; Schleiermacher G; Scheinemann K; Sawyer K; Saslawsky S; Santana V; van de Sande M; Rutkowski S; Roganovic J; Roberts S; Rehorst-Kleinlugtenbelt L; Redd D; Qaddoumi I; Potter B; Portegies M; Plasschaert S; Phillips B; Peek A, 2024, 'Author Correction: A joint international consensus statement for measuring quality of survival for patients with childhood cancer (Nature Medicine, (2023), 29, 6, (1340-1348), 10.1038/s41591-023-02339-y)', Nature Medicine, 30, pp. 605, http://dx.doi.org/10.1038/s41591-023-02753-2
2024
Hetherington K; Wakefield CE; McGill BC; Tucker KM; Donoghoe MW; Daly R; Hunter JD; Ballinger M; Fuentes-Bolanos NA; Ziegler DS, 2024, 'When genetics and pediatric cancer collide: Understanding and optimizing families' experiences', Neuro Oncology Advances, 6, http://dx.doi.org/10.1093/noajnl/vdae133
2024
Boensvang NN; Weibel M; Wakefield CE; Bidstrup PE; Olsen M; Nissen KB; Spager V; Fridh MK; Larsen HB, 2024, 'Online Ambassador Visits for Hospitalized Children With Cancer: Qualitative Evaluation of Implementation', Jmir Pediatrics and Parenting, 7, http://dx.doi.org/10.2196/53309
2024
Cayrol J; Wakefield CE; Ilbawi A; Donoghoe M; Hoffman R; Echodu M; Schilstra C; Ortiz R; Wiener L; Gok C, 2024, 'The lived experience of people affected by cancer: A global cross-sectional survey protocol', Plos One, 19, pp. e0294492, http://dx.doi.org/10.1371/journal.pone.0294492
2024
Gonzalez T; Tucker K; Wakefield CE; Geelan-Small P; Macmillan S; Taylor N; Williams R, 2024, 'Comparing cancer genetic counselling using telegenetics with in-person and telephone appointments: Results of a partially randomised patient-preference pilot study', Journal of Telemedicine and Telecare, 30, pp. 949 - 960, http://dx.doi.org/10.1177/1357633X221112556
2024
Gerstl B; Signorelli C; Wakefield CE; Deans R; Vaishnav T; Johnston K; Neville K; Cohn RJ; Anazodo A, 2024, 'Sexual and reproductive complications and concerns of survivors of childhood, adolescent and adult cancer', Journal of Cancer Survivorship, 18, pp. 1201 - 1210, http://dx.doi.org/10.1007/s11764-023-01349-6
2024
Smyth R; Reid SM; Paton K; Guzys AT; Wakefield CE; Amor DJ, 2024, 'Causation in cerebral palsy: Parental beliefs and associated emotions', Developmental Medicine and Child Neurology, 66, pp. 258 - 266, http://dx.doi.org/10.1111/dmcn.15708
2024
Budden AK; Song S; Henry A; Wakefield CE; Abbott JA, 2024, 'Surgeon reported measures of stress and anxiety prior to and after elective gynecological surgery', Acta Obstetricia Et Gynecologica Scandinavica, 103, pp. 360 - 367, http://dx.doi.org/10.1111/aogs.14728
2024
Nguyen CQ; Kariyawasam DST; Ngai TSJ; Nguyen J; Alba-Concepcion K; Grattan SE; Palmer EE; Hetherington K; Wakefield CE; Dale RC; Woolfenden S; Mohammad S; Farrar MA, 2024, '‘High hopes for treatment’: Australian stakeholder perspectives of the clinical translation of advanced neurotherapeutics for rare neurological diseases', Health Expectations, 27, http://dx.doi.org/10.1111/hex.14063
2024
Foster E; Chen Z; Wakefield CE; Ademi Z; Hutton E; Steiner TJ; Zagami AS, 2024, 'Australian Headache Epidemiology Data (AHEAD): a pilot study to assess sampling and engagement methodology for a nationwide population-based survey', Journal of Headache and Pain, 25, http://dx.doi.org/10.1186/s10194-024-01773-8
2024
Signorelli C; Kelada L; Wakefield CE; Alchin JE; Adam I; Hoffmann P, 2024, 'Pilot testing “Teach Ted”: A digital application for children undergoing blood tests and their parents', Pec Innovation, 4, http://dx.doi.org/10.1016/j.pecinn.2023.100251
2024
Sansom-Daly UM; Zhang M; Evans HE; McLoone J; Wiener L; Cohn RJ; Anazodo A; Patterson P; Wakefield CE, 2023, 'Adapting the Voicing My CHOiCES Advance Care Planning Communication Guide for Australian Adolescents and Young Adults with Cancer: Appropriateness, Acceptability, and Considerations for Clinical Practice', Cancers, 15, pp. n/a - n/a, http://dx.doi.org/10.3390/cancers15072129
2023
Young AL; Imran A; Spoelma MJ; Williams R; Tucker KM; Halliday J; Forrest LE; Wakefield CE; Butow PN, 2023, 'Proband-mediated interventions to increase disclosure of genetic risk in families with a BRCA or Lynch syndrome condition: a systematic review', European Journal of Human Genetics, 31, pp. 18 - 34, http://dx.doi.org/10.1038/s41431-022-01200-z
2023
Katz TE; Wakefield CE; Signorelli C; Day AS; Vernon-Roberts A; Ooi CY, 2023, 'Gastroenterology services for patients with Cystic Fibrosis across Australia and New Zealand: a multi-stakeholder assessment of patients' and professionals’ perspectives', Frontiers in Pediatrics, 11, http://dx.doi.org/10.3389/fped.2023.1322941
2023
Ha L; Wakefield CE; Diaz C; Mizrahi D; Signorelli C; Yacef K; Simar D, 2023, 'Patterns of physical activity and sedentary behavior in child and adolescent cancer survivors assessed using wrist accelerometry: A cluster analysis approach', Health Informatics Journal, 29, http://dx.doi.org/10.1177/14604582231212525
2023
Wakefield CE; Hetherington K; Robertson EG; Donoghoe MW; Hunter JD; Vetsch J; Marron JM; Tucker KM; Marshall GM; Broom A; Haber M; Tyrrell V; Malkin D; Lau L; Mateos MK; O’Brien TA; Ziegler DS, 2023, 'Hopes, concerns, satisfaction and regret in a precision medicine trial for childhood cancer: a mixed-methods study of parent and patient perspectives', British Journal of Cancer, 129, pp. 1634 - 1644, http://dx.doi.org/10.1038/s41416-023-02429-1
2023
Zhang T; Wakefield CE; Ren Z; Chen W; Du X; Shi C; Lai L; Zhao C; Gao Y; Chen Z; Zhou Y; Wu T; Cai M, 2023, 'Effects of digital psychological interventions on physical symptoms in cancer patients: A systematic review and meta-analysis', General Hospital Psychiatry, 84, pp. 47 - 59, http://dx.doi.org/10.1016/j.genhosppsych.2023.05.016
2023
Tran A; Hou SHJ; Forbes C; Cho S; Forster VJ; Stokoe M; Wakefield CE; Wiener L; Heathcote LC; Michel G; Patterson P; Reynolds K; Schulte FSM, 2023, 'The Impact of the Early COVID-19 Global Pandemic on Children Undergoing Active Cancer Treatment and Their Parents', Current Oncology, 30, pp. 2441 - 2456, http://dx.doi.org/10.3390/curroncol30020186
2023
Fuentes Bolanos NA; Padhye B; Daley M; Hunter J; Hetherington K; Warby M; Courtney E; Kirk J; Josephi-Taylor S; Chen Y; Alvaro F; Barlow-Stewart K; Wong-Erasmus M; Barahona P; Ajuyah P; Altekoester AK; Tyrrell VJ; Lau LMS; Wakefield C; Sylvester D; Tucker K; Pinese M; Dalla Pozza L; O'Brien TA, 2023, 'Protocol for a comprehensive prospective cohort study of trio-based whole-genome sequencing for underlying cancer predisposition in paediatric and adolescent patients newly diagnosed with cancer: The PREDICT study', BMJ Open, 13, http://dx.doi.org/10.1136/bmjopen-2022-070082
2023
Allison KR; Patterson P; McDonald FEJ; Bibby K; Ciarrochi J; Tracey D; Hayes LL; Wright A; Konings S; Davis E; Hulbert-Williams NJ; Wakefield CE; White K, 2023, 'Truce: Feasibility and acceptability of an Acceptance and Commitment Therapy-based intervention for adolescents and young adults impacted by parental cancer', Journal of Contextual Behavioral Science, 28, pp. 91 - 101, http://dx.doi.org/10.1016/j.jcbs.2023.03.014
2023
Gereis JM; Hetherington K; Robertson EG; Daly R; Donoghoe MW; Ziegler DS; Marshall GM; Lau LMS; Marron JM; Wakefield CE, 2023, 'Parents’ and adolescents’ perspectives and understanding of information about childhood cancer precision medicine', Cancer, 129, pp. 3645 - 3655, http://dx.doi.org/10.1002/cncr.34914
2023
Koczwara B; Chan A; Jefford M; Lam WWT; Taylor C; Wakefield CE; Bhoo-Pathy N; Gyawali B; Harvet G; Lou Y; Pramesh CS; Takahashi M; Ke Y; Chan RJ, 2023, 'Cancer Survivorship in the Indo-Pacific: Priorities for Progress', JCO Global Oncology, 9, http://dx.doi.org/10.1200/GO.22.00305
2023
Signorelli C; Wakefield CE; McLoone JK; Johnston KA; Mertens AC; Osborn M; Cohn RJ; Alvaro F; Corbett R; Downie P; Egan K; Ellis S; Emery J; Fardell J; Foreman T; Gabriel M; Girgis A; Graham K; Johnston K; Jones J; Lockwood L; Maguire A; McCarthy M; Mechinaud F; Molloy S; Moore L; Skeen J; Tapp H; Till T; Truscott J; Turpin K; Williamson J; Walwyn T; Yallop K, 2023, 'Childhood Cancer Survivors' Reported Late Effects, Motivations for Seeking Survivorship Care, and Patterns of Attendance', Oncologist, 28, pp. E276 - E286, http://dx.doi.org/10.1093/oncolo/oyad004
2023
Tan J; McLoone JK; Wakefield CE; Nassar N; Cohn RJ; Signorelli C, 2023, 'Neuroblastoma survivors’ self-reported late effects, quality of life, health-care use, and risk perceptions', Palliative and Supportive Care, 22, pp. 296 - 305, http://dx.doi.org/10.1017/S1478951523000615
2023
Budden AK; Song S; Henry A; Nesbitt-Hawes E; Wakefield CE; Abbott JA, 2023, 'Acute Biological Changes in Gynecologic Surgeons during Surgery: A Prospective Study', Journal of Minimally Invasive Gynecology, 30, pp. 841 - 849, http://dx.doi.org/10.1016/j.jmig.2023.06.014
2023
Kenny K; Williams Veazey L; Broom A; Peterie M; Page A; Prainsack B; Wakefield CE; Itchins M; Khasraw M; Lwin Z, 2023, 'Hope in the era of precision oncology: a qualitative study of informal caregivers' experiences', BMJ Open, 13, http://dx.doi.org/10.1136/bmjopen-2022-065753
2023
McGill BC; Wakefield CE; Tucker KM; Daly RA; Donoghoe MW; Vetsch J; Warby M; Fuentes-Bolanos NA; Barlow-Stewart K; Kirk J; Courtney E; O’Brien TA; Marshall GM; Pinese M; Cowley MJ; Tyrrell V; Deyell RJ; Ziegler DS; Hetherington K, 2023, 'Parents’ expectations, preferences, and recall of germline findings in a childhood cancer precision medicine trial', Cancer, 129, pp. 3620 - 3632, http://dx.doi.org/10.1002/cncr.34917
2023
Hill RE; Mercieca-Bebber R; Fardell JE; Wakefield CE; Signorelli C; Webber K; Cohn RJ, 2023, 'Relationship between survivorship care plans and unmet information needs, quality of life, satisfaction with care, and propensity to engage with, and attend, follow-up care', Cancer, 129, pp. 3820 - 3832, http://dx.doi.org/10.1002/cncr.34984
2023
Daly R; Hetherington K; Hazell E; Wadling BR; Tyrrell V; Tucker KM; Marshall GM; Ziegler DS; Lau LMS; Trahair TN; O’Brien TA; Collins K; Gifford AJ; Haber M; Pinese M; Malkin D; Cowley MJ; Karpelowsky J; Drew D; Jacobs C; Wakefield CE, 2023, 'Precision Medicine Is Changing the Roles of Healthcare Professionals, Scientists, and Research Staff: Learnings from a Childhood Cancer Precision Medicine Trial', Journal of Personalized Medicine, 13, http://dx.doi.org/10.3390/jpm13071033
2023
Signorelli C; Schneuer FJ; Wakefield CE; McLoone JK; Trahair T; Cohn RJ; Nassar N, 2023, 'Hospitalizations in Australian children with neuroblastoma: A population-based study', Cancer Medicine, 12, pp. 10939 - 10949, http://dx.doi.org/10.1002/cam4.5806
2023
Webster SN; Spunt SL; Cunningham SJ; Wakefield CE; Smith SM; Alberts NM; Palesh O; Simons LE; Heathcote LC, 2023, 'International Survey of Pediatric Oncologists' Beliefs and Communication Practices Regarding Symptom Self-Monitoring by Childhood Cancer Survivors', JCO Oncology Practice, 19, pp. E650 - E659, http://dx.doi.org/10.1200/OP.22.00630
2023
Fardell JE; Hu N; Wakefield CE; Marshall G; Bell J; Lingam R; Nassar N, 2023, 'Impact of Hospitalizations due to Chronic Health Conditions on Early Child Development', Journal of Pediatric Psychology, 48, pp. 799 - 811, http://dx.doi.org/10.1093/jpepsy/jsad025
2023
Koczwara B; Chan A; Jefford M; Lam WWT; Taylor C; Wakefield CE; Bhoo Pathy N; Gyawali B; Harvet G; Lou Y; Pramesh CS; Takahashi M; Yu K; Chan RJ, 2023, 'Reply to E.C. Dee et al', JCO Global Oncology, 9, http://dx.doi.org/10.1200/GO.23.00102
2023
McLoone J; Hamayun M; Nagabushan S; Signorelli C; Wakefield C; Johnston K; Bell R; Cohn R, 2023, 'OUTC-09. PEDIATRIC LOW GRADE GLIOMA SURVIVORS’ NEED FOR SURVIVORSHIP CARE: ‘ENGAGE’ A MULTIDISCIPLINARY, E-HEALTH INTERVENTION', Neuro-Oncology, 25, pp. i37 - i37, http://dx.doi.org/10.1093/neuonc/noad073.146
2023
Hou SHJ; Forbes C; Cho S; Tran A; Forster VJ; Wakefield CE; Heathcote LC; Wiener L; Michel G; Patterson P; Stokoe M; Reynolds K; Schulte FMS, 2023, 'Mental health and health behaviors of parents of survivors of childhood cancer in the early COVID-19 pandemic: Exploring the role of intolerance of uncertainty', Journal of Psychosocial Oncology Research and Practice, 5, http://dx.doi.org/10.1097/OR9.0000000000000107
2023
Katz T; Wakefield CE; Signorelli C; Day AS; Vernon-Roberts A; Ooi CY, 2023, 'P298 Gastroenterology services for patients with cystic fibrosis across Australia and New Zealand: a multi-stakeholder assessment of patients’ and professionals’ perspectives', Journal of Cystic Fibrosis, 22, pp. S156 - S156, http://dx.doi.org/10.1016/s1569-1993(23)00669-0
2023
Høeg BL; Sevillano PB; Enesco I; Wakefield CE; Larsen HB; Bidstrup PE, 2023, 'Child-centered communication interventions in pediatric oncology: A scoping review and proposed new communication model', Pediatric Blood and Cancer, 70, http://dx.doi.org/10.1002/pbc.30533
2023
Nevin SM; McGill BC; Kelada L; Hilton G; Maack M; Elvidge KL; Farrar MA; Baynam G; Katz NT; Donovan L; Grattan S; Signorelli C; Bhattacharya K; Nunn K; Wakefield CE, 2023, 'The psychosocial impact of childhood dementia on children and their parents: a systematic review', Orphanet Journal of Rare Diseases, 18, http://dx.doi.org/10.1186/s13023-023-02859-3
2023
Budden A; Song S; Henry A; Wakefield CE; Abbott J, 2023, 'A systematic review of biological changes in surgeons’ acute stress levels during surgery', Surgery in Practice and Science, 13, pp. 100174, http://dx.doi.org/10.1016/j.sipas.2023.100174
2023
Body A; Donoghoe MW; Ahern ES; Lal L; Downie P; Leahy MF; Fuentes-Bolanos N; Anazodo A; Padhye B; Hamad N; Wakefield CE; Segelov E, 2023, 'Safety and patient reported outcomes of SARS-CoV-2 vaccination in patients with cancer', ANNALS OF ONCOLOGY, 34, pp. S1104 - S1104, http://dx.doi.org/10.1016/j.annonc.2023.09.888
2023
Espinoza-Salgado FS; García RR; E.wakefield C; Kelada L; Sansom-Daly UM; McGill BC; Tusie AZ; García FLJ; Cardos RDSC; Zapata-Tarrés M, 2022, 'Mexican cultural adaptation of the CASCAdE intervention program for parents of childhood cancer survivors', Psicooncologia, 19, pp. 63 - 80, http://dx.doi.org/10.5209/psic.80798
2022
Sansom-Daly UM; Wiener L; Darlington AS; Poort H; Rosenberg AR; Weaver MS; Schulte F; Anazodo A; Phillips C; Sue L; Herbert AR; Mack JW; Lindsay T; Evans H; Wakefield CE; Girgis A; Al-Awamer A; Kirchhoff A; Cohn R; Fair D; Cable M; Wernli K; Donovan L; Mosher P; Fernando R; Trethewie S, 2022, 'Thinking globally to improve care locally: A Delphi study protocol to achieve international clinical consensus on best-practice end-of-life communication with adolescents and young adults with cancer', Plos One, 17, http://dx.doi.org/10.1371/journal.pone.0270797
2022
Nevin SM; Wakefield CE; Le Marne F; Beavis E; Macintosh R; Sachdev R; Bye A; Palmer EE; Nunn K, 2022, 'Piloting positive psychology resources for caregivers of a child with a genetic developmental and epileptic encephalopathy', European Journal of Paediatric Neurology, 37, pp. 129 - 138, http://dx.doi.org/10.1016/j.ejpn.2022.01.022
2022
Page A; Broom A; Kenny K; Lwin Z; Wakefield CE; Itchins M; Khasraw M, 2022, 'Experiencing the SARS-CoV-2 Pandemic Whilst Living With Cancer', Qualitative Health Research, 32, pp. 426 - 439, http://dx.doi.org/10.1177/10497323211057082
2022
Darlington ASE; Wakefield CE; van Erp LME; van der Graaf WTA; Cohn RJ; Grootenhuis MA, 2022, 'Psychosocial consequences of surviving cancer diagnosed and treated in childhood versus in adolescence/young adulthood: A call for clearer delineation between groups', Cancer, 128, pp. 2690 - 2694, http://dx.doi.org/10.1002/cncr.34257
2022
Broom A; Kenny K; Williams Veazey L; Page A; Prainsack B; Wakefield CE; Khasraw M; Itchins M; Lwin Z, 2022, 'Living (well) with cancer in the precision era', Ssm Qualitative Research in Health, 2, http://dx.doi.org/10.1016/j.ssmqr.2022.100096
2022
Marchak JG; Christen S; Mulder RL; Baust K; Blom JMC; Brinkman TM; Elens I; Harju E; Kadan-Lottick NS; Khor JWT; Lemiere J; Recklitis CJ; Wakefield CE; Wiener L; Constine LS; Hudson MM; Kremer LCM; Skinner R; Vetsch J; Lee JL; Michel G, 2022, 'Recommendations for the surveillance of mental health problems in childhood, adolescent, and young adult cancer survivors: a report from the International Late Effects of Childhood Cancer Guideline Harmonization Group', Lancet Oncology, 23, pp. e184 - e196, http://dx.doi.org/10.1016/S1470-2045(21)00750-6
2022
Kirchhofer SM; Orm S; Haukeland YB; Fredriksen T; Wakefield CE; Fjermestad KW, 2022, 'A systematic review of social support for siblings of children with neurodevelopmental disorders', Research in Developmental Disabilities, 126, http://dx.doi.org/10.1016/j.ridd.2022.104234
2022
Nevin SM; Wakefield CE; Barlow-Stewart K; McGill BC; Bye A; Palmer EE; Dale RC; Gill D; Kothur K; Boggs K; Le Marne F; Beavis E; Macintosh R; Sachdev R, 2022, 'Psychosocial impact of genetic testing on parents of children with developmental and epileptic encephalopathy', Developmental Medicine and Child Neurology, 64, pp. 95 - 104, http://dx.doi.org/10.1111/dmcn.14971
2022
Kelada L; Wakefield C; Vidic N; Armstrong DS; Bennetts B; Boggs K; Christodoulou J; Harrison J; Ho G; Kapur N; Lindsey-Temple S; McDonald T; Mowat D; Schultz A; Selvadurai H; Tai A; Jaffe A, 2022, 'Genomic testing for children with interstitial and diffuse lung disease (chILD): Parent satisfaction, understanding and health-related quality of life', BMJ Open Respiratory Research, 9, http://dx.doi.org/10.1136/bmjresp-2021-001139
2022
Woolfenden S; Farrar MA; Eapen V; Masi A; Wakefield CE; Badawi N; Novak I; Nassar N; Lingam R; Dale RC, 2022, 'Delivering paediatric precision medicine: Genomic and environmental considerations along the causal pathway of childhood neurodevelopmental disorders', Developmental Medicine and Child Neurology, 64, pp. 1077 - 1084, http://dx.doi.org/10.1111/dmcn.15289
2022
Alchin JE; Signorelli C; McLoone JK; Wakefield CE; Fardell JE; Johnston K; Cohn RJ, 2022, 'Childhood Cancer Survivors’ Adherence to Healthcare Recommendations Made Through a Distance-Delivered Survivorship Program', Journal of Multidisciplinary Healthcare, 15, pp. 1719 - 1734, http://dx.doi.org/10.2147/JMDH.S363653
2022
Fleming CAK; Murphy-Alford AJ; Cohen J; Fleming MR; Wakefield CE; Naumann F, 2022, 'Poor diet quality and adverse eating behaviors in young survivors of childhood cancer', Pediatric Blood and Cancer, 69, http://dx.doi.org/10.1002/pbc.29408
2022
Ha L; Wakefield CE; Fardell J; Cohn RJ; Simar D; Signorelli C; Mizrahi D, 2022, 'Parent perceptions of their child’s and their own physical activity after treatment for childhood cancer', Supportive Care in Cancer, 30, pp. 8947 - 8957, http://dx.doi.org/10.1007/s00520-022-07288-9
2022
Ha L; Wakefield CE; Mizrahi D; Diaz C; Cohn RJ; Signorelli C; Yacef K; Simar D, 2022, 'A Digital Educational Intervention With Wearable Activity Trackers to Support Health Behaviors Among Childhood Cancer Survivors: Pilot Feasibility and Acceptability Study', Jmir Cancer, 8, pp. e38367, http://dx.doi.org/10.2196/38367
2022
Hu N; Fardell J; Wakefield CE; Marshall GM; Bell JC; Nassar N; Lingam R, 2022, 'School academic performance of children hospitalised with a chronic condition', Archives of Disease in Childhood, 107, pp. 289 - 296, http://dx.doi.org/10.1136/archdischild-2020-321285
2022
Schaffer M; McLoone JK; Wakefield CE; Brierley ME; Girgis A; McCarthy MC; Thornton-Benko E; Chan RJ; Johnston KA; Cohn RJ; Signorelli C, 2022, 'eHealth tools for childhood cancer survivorship care: A qualitative analysis of survivors', parents', and general practitioners' views', Pec Innovation, 1, pp. 100010, http://dx.doi.org/10.1016/j.pecinn.2021.100010
2022
Hetherington K; Wakefield CE; Kunalan KPK; Donoghoe MW; McGill BC; Fardell JE; Daly R; Deyell RJ; Ziegler DS, 2022, 'Quality of Life (QoL) of Children and Adolescents Participating in a Precision Medicine Trial for High-Risk Childhood Cancer', Cancers, 14, http://dx.doi.org/10.3390/cancers14215310
2022
Schilstra CE; McCleary K; Fardell JE; Donoghoe MW; McCormack E; Kotecha RS; Lourenco RDA; Ramachandran S; Cockcroft R; Conyers R; Cross S; Dalla-Pozza L; Downie P; Revesz T; Osborn M; Alvaro F; Wakefield CE; Marshall GM; Mateos MK; Trahair TN; Gok C, 2022, 'Prospective longitudinal evaluation of treatment-related toxicity and health-related quality of life during the first year of treatment for pediatric acute lymphoblastic leukemia', BMC Cancer, 22, pp. 985, http://dx.doi.org/10.1186/s12885-022-10072-x
2022
Gereis J; Hetherington K; Ha L; Robertson EG; Ziegler DS; Barlow-Stewart K; Tucker KM; Marron JM; Wakefield CE, 2022, 'Parents’ understanding of genome and exome sequencing for pediatric health conditions: a systematic review', European Journal of Human Genetics, 30, pp. 1216 - 1225, http://dx.doi.org/10.1038/s41431-022-01170-2
2022
Chittem M; Kelada L; Muppavaram N; Lingappa L; Wakefield CE, 2022, 'Unmet and under-met needs among Indian parents of children with neurological disorders', Journal of Pediatric Nursing, 63, pp. e1 - e9, http://dx.doi.org/10.1016/j.pedn.2021.11.015
2022
Tonorezos ES; Cohn RJ; Glaser AW; Lewin J; Poon E; Wakefield CE; Oeffinger KC, 2022, 'Long-term care for people treated for cancer during childhood and adolescence', Lancet, 399, pp. 1561 - 1572, http://dx.doi.org/10.1016/S0140-6736(22)00460-3
2022
Nguyen CQ; Kariyawasam D; Alba-Concepcion K; Grattan S; Hetherington K; Wakefield CE; Woolfenden S; Dale RC; Palmer EE; Farrar MA; Concepcion K, 2022, '‘Advocacy groups are the connectors’: Experiences and contributions of rare disease patient organization leaders in advanced neurotherapeutics', Health Expectations, 25, pp. 3175 - 3191, http://dx.doi.org/10.1111/hex.13625
2022
Schilstra CE; Fardell JE; Ellis SJ; Jones KM; Anazodo AC; Trahair TN; Lah S; Cohn RJ; Wakefield CE; Sansom-Daly UM, 2022, 'Social Anxiety Symptoms in Survivors of Childhood and Adolescent Cancer', Journal of Adolescent and Young Adult Oncology, 11, pp. 129 - 137, http://dx.doi.org/10.1089/jayao.2021.0050
2022
McLoone J; Wakefield CE; Marshall GM; Pierce K; Jaffe A; Bye A; Kennedy SE; Drew D; Lingam R, 2022, 'It's made a really hard situation even more difficult: The impact of COVID-19 on families of children with chronic illness', Plos One, 17, http://dx.doi.org/10.1371/journal.pone.0273622
2022
Nevin SM; Wakefield CE; Dadich A; LeMarne F; Macintosh R; Beavis E; Sachdev R; Bye A; Nunn K; Palmer EE, 2022, 'Hearing parents' voices: A priority-setting workshop to inform a suite of psychological resources for parents of children with rare genetic epilepsies', Pec Innovation, 1, http://dx.doi.org/10.1016/j.pecinn.2021.100014
2022
Hunter JD; Robertson EG; Hetherington K; Ziegler DS; Marshall GM; Kirk J; Marron JM; Denburg AE; Barlow-Stewart K; Warby M; Tucker KM; Lee BM; O’Brien TA; Wakefield CE; OBrien T, 2022, 'What’s in a Name? Parents’ and Healthcare Professionals’ Preferred Terminology for Pathogenic Variants in Childhood Cancer Predisposition Genes', Journal of Personalized Medicine, 12, pp. 1327, http://dx.doi.org/10.3390/jpm12081327
2022
Callander EJ; Bull C; Lain S; Wakefield CE; Lingam R; Marshall GM; Wake M; Nassar N, 2022, 'Inequality in early childhood chronic health conditions requiring hospitalisation: A data linkage study of health service utilisation and costs', Paediatric and Perinatal Epidemiology, 36, pp. 156 - 166, http://dx.doi.org/10.1111/ppe.12818
2022
Chow WK; Hetherington K; McGill BC; Sansom-Daly UM; Daly R; Miles G; Cohn RJ; Wakefield CE, 2022, '‘Like ships in the night’: A qualitative investigation of the impact of childhood cancer on parents’ emotional and sexual intimacy', Pediatric Blood and Cancer, 69, http://dx.doi.org/10.1002/pbc.30015
2022
Hou SHJ; Tran A; Cho S; Forbes C; Forster VJ; Stokoe M; Allapitan E; Wakefield CE; Wiener L; Heathcote LC; Michel G; Patterson P; Reynolds K; Schulte FSM, 2022, 'The Perceived Impact of COVID-19 on the Mental Health Status of Adolescent and Young Adult Survivors of Childhood Cancer and the Development of a Knowledge Translation Tool to Support Their Information Needs', Frontiers in Psychology, 13, http://dx.doi.org/10.3389/fpsyg.2022.867151
2022
McLoone JK; Chen W; Wakefield CE; Johnston K; Bell R; Thornton-Benko E; Cohn RJ; Signorelli C, 2022, 'Childhood cancer survivorship care: A qualitative study of healthcare providers’ professional preferences', Frontiers in Oncology, 12, http://dx.doi.org/10.3389/fonc.2022.945911
2022
Kelada L; Wakefield CE; Drew D; Ooi CY; Palmer EE; Bye A; De Marchi S; Jaffe A; Kennedy S, 2022, 'Siblings of young people with chronic illness: Caring responsibilities and psychosocial functioning', Journal of Child Health Care, 26, pp. 581 - 596, http://dx.doi.org/10.1177/13674935211033466
2022
Ha L; Mizrahi D; Cohn RJ; Simar D; Wakefield CE; Signorelli C, 2021, 'Accuracy of perceived physical activity and fitness levels among childhood cancer survivors', Pediatric Blood and Cancer, 68, pp. e29134, http://dx.doi.org/10.1002/pbc.29134
2021
Stafford L; Sinclair M; Rauch P; Turner J; Mann GB; Newman L; Wakefield CE; Gilham L; Mason K; Cannell J; Little R; Schofield P, 2021, 'Feasibility of Enhancing Parenting in Cancer, a psychoeducational intervention for communicating with children about parental cancer', Psycho Oncology, 30, pp. 1172 - 1177, http://dx.doi.org/10.1002/pon.5655
2021
Davies JP; Mcgill BC; Sansom-Daly UM; Wakefield CE; Kelly DM, 2021, '"This Is the First Time I've Talked about This": Considerations When Conducting Qualitative Research Interviews with Adolescents and Young Adults with Cancer', Journal of Adolescent and Young Adult Oncology, 10, pp. 540 - 548, http://dx.doi.org/10.1089/jayao.2020.0122
2021
Anazodo AC; Choi S; Signorelli C; Ellis S; Johnston K; Wakefield CE; Deans R; Neville KA; Cohn RJ, 2021, 'Reproductive Care of Childhood and Adolescent Cancer Survivors: A 12-Year Evaluation', Journal of Adolescent and Young Adult Oncology, 10, pp. 131 - 141, http://dx.doi.org/10.1089/jayao.2020.0157
2021
Edge R; Meyers J; Tiernan G; Li Z; Schiavuzzi A; Chan P; Vassallo A; Morrow A; Mazariego C; Wakefield CE; Canfell K; Taylor N, 2021, 'Cancer care disruption and reorganisation during the COVID-19 pandemic in Australia: A patient, carer and healthcare worker perspective', Plos One, 16, pp. e0257420, http://dx.doi.org/10.1371/journal.pone.0257420
2021
Kelada L; Wakefield CE; Muppavaram N; Lingappa L; Chittem M, 2021, 'Psychological outcomes, coping and illness perceptions among parents of children with neurological disorders', Psychology and Health, 36, pp. 1480 - 1496, http://dx.doi.org/10.1080/08870446.2020.1859113
2021
Burns MA; Fardell JE; Wakefield CE; Cohn RJ; Marshall GM; Lum A; Ellis SJ; Donnan B; Walwyn T; Carter A; Barton B; Lah S, 2021, 'School and educational support programmes for paediatric oncology patients and survivors: A systematic review of evidence and recommendations for future research and practice', Psycho Oncology, 30, pp. 431 - 443, http://dx.doi.org/10.1002/pon.5606
2021
Sansom‐daly UM; Wakefield CE; Signorelli C; Donoghoe MW; Anazodo A; Sawyer SM; Osborn M; Viney R; Daniell N; Faasse K; Cohn RJ; Sansom-Daly U, 2021, 'Patterns and predictors of healthcare use among adolescent and young adult cancer survivors versus a community comparison group', Cancers, 13, pp. 5270, http://dx.doi.org/10.3390/cancers13215270
2021
Bryan G; Kelly P; Chesters H; Franklin J; Griffiths H; Langton L; Langton L; Wakefield CE; Gibson F, 2021, 'Access to and experience of education for children and adolescents with cancer: a scoping review protocol', Systematic Reviews, 10, pp. 167, http://dx.doi.org/10.1186/s13643-021-01723-4
2021
Wakefield CE; Sansom‐daly UM; McGill BC; Hetherington K; Ellis SJ; Robertson EG; Donoghoe MW; McCarthy M; Kelada L; Girgis A; King M; Grootenhuis M; Anazodo A; Patterson P; Lowe C; Dalla‐pozza L; Miles G; Cohn RJ; Sansom-Daly U, 2021, 'Providing psychological support to parents of childhood cancer survivors: ‘cascade’ intervention trial results and lessons for the future', Cancers, 13, pp. 5597, http://dx.doi.org/10.3390/cancers13225597
2021
Bell L; Anderson K; Girgis A; Aoun S; Cunningham J; Wakefield CE; Shahid S; Smith AB; Diaz A; Lindsay D; Masa A; Garvey G; Smith B, 2021, '“We Have to Be Strong Ourselves”: Exploring the Support Needs of Informal Carers of Aboriginal and Torres Strait Islander People with Cancer', International Journal of Environmental Research and Public Health, 18, pp. 7281, http://dx.doi.org/10.3390/ijerph18147281
2021
Fardell JE; Wakefield CE; De Abreu Lourenco R; Signorelli C; McCarthy M; McLoone J; Osborn M; Gabriel M; Anazodo A; Alvaro F; Lockwood L; Walwyn T; Skeen J; Tillemans R; Cohn RJ; Corbett R; Downie P; Egan K; Ellis S; Emery J; Foreman T; Girgis A; Graham K; Johnston K; Jones J; Maguire A; Mechinaud F; Molloy S; Moore L; Tapp H; Till T; Truscott J; Turpin K; Williamson J; Yallop K, 2021, 'Long-term health-related quality of life in young childhood cancer survivors and their parents', Pediatric Blood and Cancer, 68, pp. e29398, http://dx.doi.org/10.1002/pbc.29398
2021
McLoone J; Wakefield CE; Sansom-Daly UM; Thornton-Benko E; Govender D; Gabriel M; Walwyn T; Signorelli C; Johnston K; Cohn RJ; Thornton E, 2021, 'The lived experience of children and adolescents with cancer', Australian Journal of General Practice, 50, pp. 545 - 549, http://dx.doi.org/10.31128/AJGP-04-21-5945
2021
Gerstl B; Signorelli C; Wakefield CE; D'Souza C; Deans R; Vaishnav T; Johnston K; Neville KA; Cohn RJ; Anazodo A, 2021, 'Feasibility, acceptability and appropriateness of a reproductive patient reported outcome measure for cancer survivors', Plos One, 16, pp. e0256497, http://dx.doi.org/10.1371/journal.pone.0256497
2021
Marchak JG; Devine KA; Hudson MM; Jacobson LA; Michel G; Peterson SR; Schulte F; Wakefield CE; Sands SA, 2021, 'Systematic Review of Educational Supports of Pediatric Cancer Survivors: Current Approaches and Future Directions', Journal of Clinical Oncology, 39, pp. 1813 - 1823, http://dx.doi.org/10.1200/JCO.20.02471
2021
Kamaladasa DS; Sansom-Daly UM; Hetherington K; McGill BC; Ellis SJ; Kelada L; Donoghoe MW; Evans H; Anazodo A; Patterson P; Cohn RJ; Wakefield CE, 2021, 'How Are Families Faring? Perceived Family Functioning among Adolescent and Young Adult Cancer Survivors in Comparison to Their Peers', Journal of Adolescent and Young Adult Oncology, 10, pp. 711 - 719, http://dx.doi.org/10.1089/jayao.2020.0215
2021
Kelada L; Wakefield CE; De Graves S; Treadgold C; Dumlao G; Schaffer M; O'Brien T, 2021, 'Evaluation of an in-hospital recreation room for hospitalised children and their families', Journal of Pediatric Nursing, 61, pp. 191 - 198, http://dx.doi.org/10.1016/j.pedn.2021.05.017
2021
Sajeev MF; Kelada L; Yahya Nur AB; Wakefield CE; Wewege MA; Karpelowsky J; Akimana B; Darlington AS; Signorelli C, 2021, 'Interactive video games to reduce paediatric procedural pain and anxiety: a systematic review and meta-analysis', British Journal of Anaesthesia, 127, pp. 608 - 619, http://dx.doi.org/10.1016/j.bja.2021.06.039
2021
Hsu J; Sansom-Daly UM; Hetherington K; Ellis SJ; Donoghoe MW; Cohn RJ; Zentella-Tusie A; Wakefield CE, 2021, 'Health service and medication use of parents of childhood cancer survivors: a controlled comparison study', Acta Oncologica, 60, pp. 1325 - 1334, http://dx.doi.org/10.1080/0284186X.2021.1955968
2021
Clarke K; Patterson P; McDonald FEJ; Wakefield CE; Sansom-Daly U; Zebrack B, 2021, 'The Development and Process Evaluation of a 3-Day Acceptance and Commitment Therapy Group Program for Adolescent Cancer Survivors', Child and Youth Care Forum, 50, pp. 229 - 246, http://dx.doi.org/10.1007/s10566-020-09571-4
2021
Donovan LA; Wakefield CE; Russell V; Fardell J; Mallitt KA; Hetherington K; Cohn R, 2021, 'Variables associated with grief and personal growth following the death of a child from cancer: A mixed method analysis', Death Studies, 45, pp. 702 - 713, http://dx.doi.org/10.1080/07481187.2019.1682087
2021
Robertson EG; Wakefield CE; Tsoli M; Kellie SJ; Alvaro F; Gifford AJ; Weber MA; Rodriguez M; Kirby M; Ziegler DS, 2021, 'Parents' experiences of postmortem tumor donation for high-grade gliomas: Benefits and suggested improvements', Neuro Oncology Advances, 3, pp. vdab087, http://dx.doi.org/10.1093/noajnl/vdab087
2021
Kariyawasam DST; D'Silva AM; Vetsch J; Wakefield CE; Wiley V; Farrar MA, 2021, '“We needed this”: perspectives of parents and healthcare professionals involved in a pilot newborn screening program for spinal muscular atrophy', Eclinicalmedicine, 33, pp. 100742, http://dx.doi.org/10.1016/j.eclinm.2021.100742
2021
Burns MA; Aralova M; Ellis SJ; Aslanyan KS; Egorkina T; Wakefield CE, 2021, 'Pediatric psycho-oncology in Russia: Caregiver mental health and sleep outcomes on the oncology wards', Psycho Oncology, 30, pp. 185 - 193, http://dx.doi.org/10.1002/pon.5547
2021
Heathcote LC; Loecher N; Spunt SL; Simon P; Tutelman PR; Wakefield CE; Ach E; Schapira L, 2021, 'Do qualitative interviews cause distress in adolescents and young adults asked to discuss fears of cancer recurrence?', Psycho Oncology, 30, pp. 123 - 126, http://dx.doi.org/10.1002/pon.5544
2021
Fawcett LK; Wakefield CE; Sivam S; Middleton PG; Wark P; Widger J; Jaffe A; Waters SA, 2021, 'Avatar acceptability: Views from the australian cystic fibrosis community on the use of personalised organoid technology to guide treatment decisions', Erj Open Research, 7, pp. 1 - 10, http://dx.doi.org/10.1183/23120541.00448-2020
2021
Sansom‐daly UM; Wakefield CE; Ellis SJ; McGill BC; Donoghoe MW; Butow P; Bryant RA; Sawyer SM; Patterson P; Anazodo A; Plaster M; Thompson K; Holland L; Osborn M; Maguire F; O’dwyer C; Lourenco RDA; Cohn RJ; Sansom-Daly U, 2021, 'Online, group‐based psychological support for adolescent and young adult cancer survivors: Results from the recapture life randomized trial', Cancers, 13, pp. 2460, http://dx.doi.org/10.3390/cancers13102460
2021
Ha L; Mizrahi D; Wakefield CE; Cohn RJ; Simar D; Signorelli C, 2021, 'The Use of Activity Trackers in Interventions for Childhood Cancer Patients and Survivors: A Systematic Review', Journal of Adolescent and Young Adult Oncology, 10, pp. 1 - 14, http://dx.doi.org/10.1089/jayao.2020.0099
2021
Kenny K; Broom A; Page A; Prainsack B; Wakefield CE; Itchins M; Lwin Z; Khasraw M, 2021, 'A sociology of precision-in-practice: The affective and temporal complexities of everyday clinical care', Sociology of Health and Illness, 43, pp. 2178 - 2195, http://dx.doi.org/10.1111/1467-9566.13389
2021
Signorelli C; Wakefield CE; McLoone JK; Mateos MK; Aaronson NK; Lavoipierre A; Cohn RJ; Alvaro F; Corbett R; Downie P; Egan K; Ellis S; Emery J; Fardell J; Foreman T; Gabriel M; Girgis A; Graham K; Johnston K; Jones J; Lockwood L; Maguire A; McCarthy M; Mechinaud F; Molloy S; Moore L; Osborn M; Skeen J; Tapp H; Till T; Truscott J; Turpin K; Walwyn T; Williamson J; Yallop K, 2021, 'A cost-effective approach to increasing participation in patient-reported outcomes research in cancer: A randomized trial of video invitations', International Journal of Cancer, 148, pp. 971 - 980, http://dx.doi.org/10.1002/ijc.33244
2021
Kelada L; Wakefield CE; Cruz Silva MC; Signorelli C, 2020, 'Camps for Children with Cancer and Their Families: A Systematic Review of Psychosocial and Physical Impacts', Journal of Developmental and Behavioral Pediatrics, 41, pp. 145 - 156, http://dx.doi.org/10.1097/DBP.0000000000000728
2020
Hill RE; Wakefield CE; Cohn RJ; Fardell JE; Brierley MEE; Kothe E; Jacobsen PB; Hetherington K; Mercieca-Bebber R, 2020, 'Survivorship Care Plans in Cancer: A Meta-Analysis and Systematic Review of Care Plan Outcomes', Oncologist, 25, pp. e351 - e372, http://dx.doi.org/10.1634/theoncologist.2019-0184
2020
Hill RE; Wakefield CE; Cohn RJ; Fardell JE; Brierley M-EE; Kothe E; Jacobsen PB; Hetherington K; Mercieca-Bebber R, 2020, 'Survivorship Care Plans in Cancer: A Meta-Analysis and Systematic Review of Care Plan Outcomes.', Oncologist, 25, pp. e351 - e372, http://dx.doi.org/10.1634/theoncologist.2019-0184
2020
McGill BC; Wakefield CE; Hetherington K; Munro LJ; Warby M; Lau L; Tyrrell V; Ziegler DS; O’brien TA; Marshall GM; Malkin D; Hansford JR; Tucker KM; Vetsch J; OBrien T, 2020, '“Balancing Expectations with Actual Realities”: Conversations with Clinicians and Scientists in the First Year of a High-Risk Childhood Cancer Precision Medicine Trial', Journal of Personalized Medicine, 10, pp. 9, http://dx.doi.org/10.3390/jpm10010009
2020
Touyz LM; Cohen J; Garnett SP; Grech AM; Gohil P; Cohn RJ; Wakefield CE, 2020, 'Acceptability and feasibility of a parent-targeted dietary intervention in young survivors of childhood cancer: “Reboot”', Pediatric Blood and Cancer, 67, http://dx.doi.org/10.1002/pbc.28533
2020
Signorelli C; Wakefield CE; Johnston KA; Fardell JE; McLoone JK; Brierley MEE; Schaffer M; Thornton-Benko E; Girgis A; Hamish Wallace W; Cohn RJ; Thornton E, 2020, 'Re-engage: A novel nurse-led program for survivors of childhood cancer who are disengaged from cancer-related care', Jnccn Journal of the National Comprehensive Cancer Network, 18, pp. 1067 - 1074, http://dx.doi.org/10.6004/jnccn.2020.7552
2020
Kelada L; Wakefield CE; Vetsch J; Schofield D; Sansom-Daly UM; Hetherington K; O'Brien T; Cohn RJ; Anazodo A; Viney R; Zeppel MJB, 2020, 'Financial toxicity of childhood cancer and changes to parents’ employment after treatment completion', Pediatric Blood and Cancer, 67, http://dx.doi.org/10.1002/pbc.28345
2020
Buchhorn-White J; Robertson EG; Wakefield CE; Cohen J, 2020, 'A decision aid for nutrition support is acceptable in the pediatric hospital setting', Journal of Pediatric Nursing, 55, pp. 165 - 173, http://dx.doi.org/10.1016/j.pedn.2020.08.013
2020
Wang Y; Logan S; Stern K; Wakefield CE; Cohn RJ; Agresta F; Jayasinghe Y; Deans R; Segelov E; McLachlan RI; Gerstl B; Sullivan E; Ledger WE; Anazodo A, 2020, 'Supportive oncofertility care, psychological health and reproductive concerns: a qualitative study', Supportive Care in Cancer, 28, pp. 809 - 817, http://dx.doi.org/10.1007/s00520-019-04883-1
2020
Daniel LC; van Litsenburg RRL; Rogers VE; Zhou ES; Ellis SJ; Wakefield CE; Stremler R; Walter L; Crabtree VML, 2020, 'A call to action for expanded sleep research in pediatric oncology: A position paper on behalf of the International Psycho-Oncology Society Pediatrics Special Interest Group', Psycho Oncology, 29, pp. 465 - 474, http://dx.doi.org/10.1002/pon.5242
2020
Nevin SM; Wakefield CE; Schilstra CE; McGill BC; Bye A; Palmer EE; Gok C, 2020, 'The information needs of parents of children with early-onset epilepsy: A systematic review', Epilepsy and Behavior, 112, pp. 107382, http://dx.doi.org/10.1016/j.yebeh.2020.107382
2020
Young AL; Butow PN; Tucker KM; Wakefield CE; Healey E; Williams R, 2020, 'When to break the news and whose responsibility is it? A cross-sectional qualitative study of health professionals' views regarding disclosure of BRCA genetic cancer risk', BMJ Open, 10, pp. e033127, http://dx.doi.org/10.1136/bmjopen-2019-033127
2020
Russo S; Wakefield CE; Fardell JE; Cohn RJ, 2020, 'Summer sun-exposure in Australian childhood cancer survivors and community reference groups', Seminars in Oncology, 47, pp. 48 - 55, http://dx.doi.org/10.1053/j.seminoncol.2020.02.004
2020
Lin B; Gutman T; Hanson CS; Ju A; Manera K; Butow P; Cohn RJ; Dalla-Pozza L; Greenzang KA; Mack J; Wakefield CE; Craig JC; Tong A, 2020, 'Communication during childhood cancer: Systematic review of patient perspectives', Cancer, 126, pp. 701 - 716, http://dx.doi.org/10.1002/cncr.32637
2020
Raharjo CV; Hetherington K; Donovan L; Fardell JE; Russell V; Cohn RJ; Morgan NL; Siddiqui J; Wakefield CE, 2020, 'An Evaluation of By My Side: Peer Support in Written Form is Acceptable and Useful for Parents Bereaved by Childhood Cancer', Journal of Pain and Symptom Management, 59, pp. 1278 - 1286, http://dx.doi.org/10.1016/j.jpainsymman.2020.01.013
2020
Baenziger J; Hetherington K; Wakefield CE; Carlson L; McGill BC; Cohn RJ; Michel G; Sansom-Daly UM, 2020, 'Understanding parents’ communication experiences in childhood cancer: a qualitative exploration and model for future research', Supportive Care in Cancer, 28, pp. 4467 - 4476, http://dx.doi.org/10.1007/s00520-019-05270-6
2020
Michel G; Brinkman TM; Wakefield CE; Grootenhuis M, 2020, 'Psychological Outcomes, Health-Related Quality of Life, and Neurocognitive Functioning in Survivors of Childhood Cancer and Their Parents', Pediatric Clinics of North America, 67, pp. 1103 - 1134, http://dx.doi.org/10.1016/j.pcl.2020.07.005
2020
Sansom-Daly UM; Wakefield CE; Patterson P; Cohn RJ; Rosenberg AR; Wiener L; Fardell JE, 2020, 'End-of-Life Communication Needs for Adolescents and Young Adults with Cancer: Recommendations for Research and Practice', Journal of Adolescent and Young Adult Oncology, 9, pp. 157 - 165, http://dx.doi.org/10.1089/jayao.2019.0084
2020
Mizrahi D; Fardell JE; Cohn RJ; Partin RE; Howell CR; Hudson MM; Robison LL; Ness KK; McBride J; Field P; Wakefield CE; Simar D, 2020, 'The 6-minute walk test is a good predictor of cardiorespiratory fitness in childhood cancer survivors when access to comprehensive testing is limited', International Journal of Cancer, 147, pp. 847 - 855, http://dx.doi.org/10.1002/ijc.32819
2020
Taylor N; Healey E; Morrow A; Greening S; Wakefield CE; Warwick L; Williams R; Tucker KM, 2020, 'Aligning intuition and theory: enhancing the replicability of behaviour change interventions in cancer genetics', Implementation Science Communications, 1, pp. 90, http://dx.doi.org/10.1186/s43058-020-00054-0
2020
Masa AJ; Martinez-Bredeck H; Butler TL; Anderson K; Girgis A; Aoun SM; Cunningham J; Wakefield CE; Shahid S; Smith AB; Garvey G, 2020, 'The experiences of caregivers of Indigenous cancer survivors in Australia, Canada, New Zealand, and the United States: a systematic review', Journal of Psychosocial Oncology Research & Practice, 2, pp. e040 - e040, http://dx.doi.org/10.1097/or9.0000000000000040
2020
Bell J; Lingam R; Wakefield CE; Fardell JE; Zeltzer J; Hu N; Woolfenden S; Callander E; Marshall GM; Nassar N, 2020, 'Prevalence, hospital admissions and costs of child chronic conditions: A population-based study', Journal of Paediatrics and Child Health, 56, pp. 1365 - 1370, http://dx.doi.org/10.1111/jpc.14932
2020
Vetsch J; Hetherington K; Wakefield C; Ziegler D, 2020, 'Families’ experiences of a precision medicine trial for childhood cancer', Oncology Central
2020
Robertson EG; Cohen J; Signorelli C; Grant DM; Fardell JE; Wakefield CE, 2020, 'What instruments should we use to assess paediatric decision-making interventions? A narrative review', Journal of Child Health Care, 24, pp. 458 - 472, http://dx.doi.org/10.1177/1367493519869717
2020
Nevin SM; McLoone J; Wakefield CE; Kennedy SE; McCarthy HJ, 2020, 'Genetic Testing in the Pediatric Nephrology Clinic: Understanding Families' Experiences', JOURNAL OF PEDIATRIC GENETICS, 11, pp. 117 - 125, http://dx.doi.org/10.1055/s-0040-1721439
2020
McLoone J; Wakefield CE; Taylor N; Johnston K; Sansom-Daly UM; Cohen J; O'Brien TA; Cohn RJ; Signorelli C, 2020, 'The COVID-19 pandemic: Distance-delivered care for childhood cancer survivors', Pediatric Blood and Cancer, 67, http://dx.doi.org/10.1002/pbc.28715
2020
Vetsch J; Wakefield CE; Tucker KM; McCarthy M; Signorelli C; Walwyn T; Alvaro F; Cohn RJ, 2020, 'Genetics-related service and information needs of childhood cancer survivors and parents: a mixed-methods study', European Journal of Human Genetics, 28, pp. 6 - 16, http://dx.doi.org/10.1038/s41431-019-0481-7
2020
Raber M; Crawford K; Baranowski T; Sharma SV; Schick V; Markham C; Roth M; Wakefield CE; Chandra J, 2020, 'Meal planning values impacted by the cancer experience in families with school-aged survivors—a qualitative exploration and recommendations for intervention development', Supportive Care in Cancer, 28, pp. 1305 - 1313, http://dx.doi.org/10.1007/s00520-019-04928-5
2020
Mizrahi D; Wakefield CE; Simar D; Ha L; McBride J; Field P; Cohn RJ; Fardell JE, 2020, 'Barriers and enablers to physical activity and aerobic fitness deficits among childhood cancer survivors', Pediatric Blood and Cancer, 67, pp. e28339, http://dx.doi.org/10.1002/pbc.28339
2020
Vetsch J; Wakefield CE; Duve E; McGill BC; Warby M; Tucker KM; Malkin D; Lau L; Ziegler DS, 2019, 'Parents', health care professionals', and scientists' experiences of a precision medicine pilot trial for patients with high-risk childhood cancer: A qualitative study', JCO Precision Oncology, 3, pp. 1 - 11, http://dx.doi.org/10.1200/PO.19.00235
2019
Lum A; Wakefield CE; Donnan B; Burns MA; Fardell JE; Jaffe A; Kasparian NA; Kennedy SE; Leach ST; Lemberg DA; Marshall GM, 2019, 'School students with chronic illness have unmet academic, social, and emotional school needs', School Psychology, 34, pp. 627 - 636, http://dx.doi.org/10.1037/spq0000311
2019
Lum A; Wakefield CE; Donnan B; Burns MA; Fardell JE; Jaffe A; Kasparian NA; Kennedy SE; Leach ST; Lemberg DA; Marshall GM, 2019, 'Facilitating engagement with school in students with chronic illness through positive education: A mixed-methods comparison study', School Psychology, 34, pp. 677 - 686, http://dx.doi.org/10.1037/spq0000315
2019
Signorelli C; Wakefield C; McLoone JK; Fardell J; Jones JM; Turpin KH; Emery J; Michel G; Downie P; Skeen JE; Cohn R, 2019, 'Childhood cancer survivorship: barriers and preferences', BMJ Supportive and Palliative Care, 12, pp. E687 - E695, http://dx.doi.org/10.1136/bmjspcare-2019-002001
2019
Kelada L; Wakefield CE; Carlson L; Hetherington K; McGill BC; McCarthy MC; Miles G; Cohn RJ; Sansom-Daly UM, 2019, 'How Parents of Childhood Cancer Survivors Perceive Support From Their Extended Families', Journal of Child and Family Studies, 28, pp. 1537 - 1547, http://dx.doi.org/10.1007/s10826-019-01394-9
2019
Mizrahi D; Fardell JE; Wakefield CE; Simar D; Maguire AM; Hubbard G; Cohn RJ; Fardell J; Foreman T; Girgis A; Signorelli C; Ellis S, 2019, 'How physically active do Australian and New Zealander childhood cancer survivors perceive themselves? A report from the ANZCHOG survivorship study', Complementary Therapies in Medicine, 44, pp. 196 - 203, http://dx.doi.org/10.1016/j.ctim.2019.04.020
2019
Sansom-Daly UM; Wakefield CE; Hetherington K; Evans HE; Ellis SJ; McGill BC; Cohn RJ, 2019, 'Author reply', Internal Medicine Journal, 49, pp. 808 - 809, http://dx.doi.org/10.1111/imj.14320
2019
Touyz LM; Cohen J; Cohn RJ; Garnett SP; Anazodo A; Gohil P; Grech AM; Ng A; Wakefield CE, 2019, 'Childhood cancer survivors report preferring lifestyle interventions delivered in person rather than online: An adolescent and parent perspective', Pediatric Blood and Cancer, 66, http://dx.doi.org/10.1002/pbc.27922
2019
Vetsch J; Wakefield CE; Techakesari P; Warby M; Ziegler DS; O'Brien TA; Drinkwater C; Neeman N; Tucker K, 2019, 'Healthcare professionals’ attitudes toward cancer precision medicine: A systematic review', Seminars in Oncology, 46, pp. 291 - 303, http://dx.doi.org/10.1053/j.seminoncol.2019.05.001
2019
Gabriel MG; Wakefield CE; Vetsch J; Karpelowsky JS; Darlington ASE; Cohn RJ; Signorelli C; Alvaro F; Corbett R; Downie P; Egan K; Ellis S; Emery J; Fardell J; Foreman T; Gabriel M; Girgis A; Graham K; Johnston K; Jones J; Lockwood L; Maguire A; McCarthy M; McLoone J; Mechinaud F; Molloy S; Moore L; Osborn M; Skeen J; Tapp H; Till T; Truscott J; Turpin K; Williamson J; Walwyn T; Yallop K, 2019, 'Paediatric surgery for childhood cancer: Lasting experiences and needs of children and parents', European Journal of Cancer Care, 28, pp. e13116, http://dx.doi.org/10.1111/ecc.13116
2019
Young AL; Butow PN; Tucker KM; Wakefield CE; Healey E; Williams R, 2019, 'Challenges and strategies proposed by genetic health professionals to assist with family communication', European Journal of Human Genetics, 27, pp. 1630 - 1638, http://dx.doi.org/10.1038/s41431-019-0447-9
2019
Kelada L; Wakefield CE; Heathcote LC; Jaaniste T; Signorelli C; Fardell JE; Donoghoe M; McCarthy MC; Gabriel M; Cohn RJ, 2019, 'Perceived cancer-related pain and fatigue, information needs, and fear of cancer recurrence among adult survivors of childhood cancer', Patient Education and Counseling, 102, pp. 2270 - 2278, http://dx.doi.org/10.1016/j.pec.2019.06.022
2019
Young AL; Butow PN; Rhodes P; Tucker KM; Williams R; Healey E; Wakefield CE, 2019, 'Talking across generations: Family communication about BRCA1 and BRCA2 genetic cancer risk', Journal of Genetic Counseling, 28, pp. 516 - 532, http://dx.doi.org/10.1002/jgc4.1055
2019
Darlington AS; Long-Sutehall T; Randall D; Wakefield C; Robinson V; Brierley J, 2019, 'Parents’ experiences of requests for organ and tissue donation: the value of asking', Archives of Disease in Childhood, 104, pp. 837 - 843, http://dx.doi.org/10.1136/archdischild-2018-316382
2019
McGill BC; Wakefield CE; Vetsch J; Lim Q; Warby M; Metcalfe A; Byrne JA; Cohn RJ; Tucker KM, 2019, '“I remember how I felt, but I don't remember the gene”: Families’ experiences of cancer-related genetic testing in childhood', Pediatric Blood and Cancer, 66, http://dx.doi.org/10.1002/pbc.27762
2019
Robertson EG; Wakefield CE; Cohn RJ; Battisti RA; Donoghoe MW; Ziegler DS; Fardell JE; Mitchell R; O'Brien TA, 2019, 'Piloting a parent and patient decision aid to support clinical trial decision making in childhood cancer', Psycho Oncology, 28, pp. 1520 - 1529, http://dx.doi.org/10.1002/pon.5109
2019
Brierley MEE; Sansom-Daly UM; Baenziger J; McGill B; Wakefield CE, 2019, 'Impact of physical appearance changes reported by adolescent and young adult cancer survivors: A qualitative analysis', European Journal of Cancer Care, 28, http://dx.doi.org/10.1111/ecc.13052
2019
Sinclair M; Schofield P; Turner J; Rauch P; Wakefield C; Mann GB; Newman L; Mason K; Gilham L; Cannell J; Stafford L, 2019, 'Maternal breast cancer and communicating with children: A qualitative exploration of what resources mothers want and what health professionals provide', European Journal of Cancer Care, 28, http://dx.doi.org/10.1111/ecc.13153
2019
Ellis SJ; Fardell JE; Wakefield CE; Schilstra CE; Burns MA; Donnan B; Walwyn T; Lum A; Marshall G; Carter A; Barton B; Cohn RJ; Gok C, 2019, 'Are we meeting the training needs of healthcare and education professionals supporting children with cancer in their return to school?', Pediatric Blood and Cancer, 66, pp. e27575, http://dx.doi.org/10.1002/pbc.27575
2019
Vetsch J; Wakefield CE; Doolan EL; Signorelli C; McGill BM; Moore L; Techakesari P; Pieters R; Patenaude AF; McCarthy M; Cohn RJ; Wakefield C; Cohn R; Girgis A; McLoone J; Fardell J, 2019, '‘Why us?’ Causal attributions of childhood cancer survivors, survivors’ parents and community comparisons - a mixed methods analysis', Acta Oncologica, 58, pp. 209 - 217, http://dx.doi.org/10.1080/0284186X.2018.1532600
2019
Warby M; Wakefield CE; Vetsch J; Tucker KM, 2019, 'Families’ and health care professionals’ attitudes towards Li-Fraumeni syndrome testing in children: A systematic review', Clinical Genetics, 95, pp. 140 - 150, http://dx.doi.org/10.1111/cge.13442
2019
Signorelli C; Wakefield CE; Fardell JE; Foreman T; Johnston KA; Emery J; Thornton-Benko E; Girgis A; Lie HC; Cohn RJ; Alvaro F; Corbett R; Downie P; Egan K; Ellis S; Gabriel M; Graham K; Jones J; Lockwood L; Maguire A; McCarthy M; McLoone J; Mechinaud F; Molloy S; Moore L; Osborn M; Skeen J; Tapp H; Till T; Truscott J; Turpin K; Walwyn T; Yallop K; Wakefield C; Signorelli C; Thornton E, 2019, 'The Role of Primary Care Physicians in Childhood Cancer Survivorship Care: Multiperspective Interviews', Oncologist, 24, pp. 710 - 719, http://dx.doi.org/10.1634/theoncologist.2018-0103
2019
Collins DE; Ellis SJ; Janin MM; Wakefield CE; Bussey K; Cohn RJ; Lah S; Fardell JE, 2019, 'A Systematic Review Summarizing the State of Evidence on Bullying in Childhood Cancer Patients/Survivors', Journal of Pediatric Oncology Nursing, 36, pp. 55 - 68, http://dx.doi.org/10.1177/1043454218810136
2019
McGill BC; Wakefield CE; Vetsch J; Barlow-Stewart K; Kasparian NA; Patenaude AF; Young MA; Cohn RJ; Tucker KM, 2019, 'Children and young people's understanding of inherited conditions and their attitudes towards genetic testing: A systematic review', Clinical Genetics, 95, pp. 10 - 22, http://dx.doi.org/10.1111/cge.13253
2019
Donovan LA; Wakefield CE; Russell V; Hetherington K; Cohn RJ, 2019, 'Brief report: Bereaved parents informing research design: The place of a pilot study', Death Studies, 43, pp. 62 - 69, http://dx.doi.org/10.1080/07481187.2018.1436616
2019
Young AL; Butow PN; Tucker KM; Williams R; Healey E; Wakefield CE, 2019, 'Health professional and at-risk BRCA young adult perspectives about information needs: What does Gen Y need to know?', Journal of Genetic Counseling, 28, pp. 1154 - 1165, http://dx.doi.org/10.1002/jgc4.1167
2019
Robertson EG; Wakefield CE; Shaw J; Darlington AS; McGill BC; Cohn RJ; Fardell JE, 2019, 'Decision-making in childhood cancer: parents’ and adolescents’ views and perceptions', Supportive Care in Cancer, 27, pp. 4331 - 4340, http://dx.doi.org/10.1007/s00520-019-04728-x
2019
Kelada L; Wakefield CE; Doolan EL; Drew D; Wiener L; Michel G; Cohn RJ, 2019, 'Grandparents of children with cancer: a controlled comparison of perceived family functioning', Supportive Care in Cancer, 27, pp. 2087 - 2094, http://dx.doi.org/10.1007/s00520-018-4468-7
2019
Grimmett C; Brooks C; Recio-Saucedo A; Armstrong A; Cutress RI; Gareth Evans D; Copson E; Turner L; Meiser B; Wakefield CE; Eccles D; Foster C, 2019, 'Development of Breast Cancer Choices: a decision support tool for young women with breast cancer deciding whether to have genetic testing for BRCA1/2 mutations', Supportive Care in Cancer, 27, pp. 297 - 309, http://dx.doi.org/10.1007/s00520-018-4307-x
2019
Goddard E; Cohen J; Bramley L; Wakefield CE; Beck EJ, 2019, 'Dietary intake and diet quality in children receiving treatment for cancer', Nutrition Reviews, 77, pp. 267 - 277, http://dx.doi.org/10.1093/nutrit/nuy069
2019
Signorelli C; Wakefield CE; Fardell JE; Brierley ME; Darlington AS; Williamson J; Downie P; Cohn RJ, 2019, 'Perceptions of future health and cancer risk in adult survivors of childhood cancer: Implications for engagement in follow-up care', Cancer, 125, pp. 1008 - 1009, http://dx.doi.org/10.1002/cncr.31934
2019
Mizrahi D; Wakefield CE; Ha LJ; Cohn R; Simar DE; Fardell J, 2019, 'Satisfaction with an exercise physiology consultation after treatment for childhood cancer: An opportunity for healthy lifestyle education', Heart and Mind, 3, pp. 77 - 106, http://dx.doi.org/10.4103/hm.hm_47_19
2019
Clifford BK; Mizrahi D; Sandler CX; Barry BK; Simar D; Wakefield CE; Goldstein D, 2018, 'Barriers and facilitators of exercise experienced by cancer survivors: a mixed methods systematic review', Supportive Care in Cancer, 26, pp. 685 - 700, http://dx.doi.org/10.1007/s00520-017-3964-5
2018
Wakefield CE; Quinn VF; Fardell JE; Signorelli C; Tucker KM; Patenaude AF; Malkin D; Walwyn T; Alvaro F; Cohn RJ, 2018, 'Family history-taking practices and genetic confidence in primary and tertiary care providers for childhood cancer survivors', Pediatric Blood and Cancer, 65, http://dx.doi.org/10.1002/pbc.26923
2018
Vetsch J; Wakefield CE; Warby M; Tucker K; Patterson P; McGill BC; Metcalfe A; Cohn RJ; Fardell JE, 2018, 'Cancer-Related Genetic Testing and Personalized Medicine for Adolescents: A Narrative Review of Impact and Understanding', Journal of Adolescent and Young Adult Oncology, 7, pp. 259 - 262, http://dx.doi.org/10.1089/jayao.2017.0102
2018
Wakefield CE; Doolan EL; Fardell JE; Signorelli C; Quinn VF; Tucker KF; Patenaude AF; Marshall GM; Lock RB; Georgiou G; Cohn RJ; Tucker K, 2018, 'Protocol for the avatar acceptability study: A multiperspective cross-sectional study evaluating the acceptability of using patient-derived xenografts to guide personalised cancer care in Australia and New Zealand', BMJ Open, 8, pp. e024064, http://dx.doi.org/10.1136/bmjopen-2018-024064
2018
Vetsch J; Wakefield CE; Robertson EG; Trahair TN; Mateos MK; Grootenhuis M; Marshall GM; Cohn RJ; Fardell JE, 2018, 'Health-related quality of life of survivors of childhood acute lymphoblastic leukemia: a systematic review', Quality of Life Research, 27, pp. 1431 - 1443, http://dx.doi.org/10.1007/s11136-018-1788-5
2018
Gabriel MG; Wakefield CE; Vetsch J; Karpelowsky JS; Darlington ASE; Grant DM; Signorelli C, 2018, 'The Psychosocial Experiences and Needs of Children Undergoing Surgery and Their Parents: A Systematic Review', Journal of Pediatric Health Care, 32, pp. 133 - 149, http://dx.doi.org/10.1016/j.pedhc.2017.08.003
2018
Touyz LM; Wakefield CE; Grech AM; Quinn VF; Costa DSJ; Zhang FF; Cohn RJ; Sajeev M; Cohen J, 2018, 'Parent-targeted home-based interventions for increasing fruit and vegetable intake in children: A systematic review and meta-analysis', Nutrition Reviews, 76, pp. 154 - 173, http://dx.doi.org/10.1093/nutrit/nux066
2018
Wakefield CE; Doolan EL; Fardell JE; Signorelli C; Quinn VF; Tucker KM; Patenaude AF; Marshall GM; Lock RB; Georgiou G; Cohn RJ, 2018, 'The Avatar Acceptability Study: Survivor, Parent and Community Willingness to Use Patient-Derived Xenografts to Personalize Cancer Care', Ebiomedicine, 37, pp. 205 - 213, http://dx.doi.org/10.1016/j.ebiom.2018.10.060
2018
Nandakumar BS; Fardell JE; Wakefield CE; Signorelli C; McLoone JK; Skeen J; Maguire AM; Cohn RJ; Alvaro F; Corbett R; Downie P; Egan K; Emery J; Ellis S; Foreman T; Gabriel M; Girgis A; Graham K; Johnston K; Jones J; Lockwood L; McCarthy M; Molloy S; Osborn M; Tapp H; Till T; Truscott J; Turpin K; Walwyn T; Yallop K, 2018, 'Attitudes and experiences of childhood cancer survivors transitioning from pediatric care to adult care', Supportive Care in Cancer, 26, pp. 2743 - 2750, http://dx.doi.org/10.1007/s00520-018-4077-5
2018
Fardell JE; Patterson P; Wakefield CE; Signorelli C; Cohn R; Anazodo A; Zebrack B; Sansom-Daly U, 2018, 'A Narrative Review of Models of Care for Adolescents and Young Adults with Cancer: Barriers and Recommendations.', Journal of Adolescent and Young Adult Oncology, 7, pp. 148 - 152, http://dx.doi.org/10.1089/jayao.2017.0100
2018
Fardell JE; Wakefield CE; Patterson P; Lum A; Cohn RJ; Pini SA; Sansom-Daly UM, 2018, 'Narrative Review of the Educational, Vocational, and Financial Needs of Adolescents and Young Adults with Cancer: Recommendations for Support and Research', Journal of Adolescent and Young Adult Oncology, 7, pp. 143 - 147, http://dx.doi.org/10.1089/jayao.2017.0086
2018
Sansom-Daly UM; Wakefield CE; Bryant RA; Patterson P; Anazodo A; Butow P; Sawyer SM; McGill BC; Evans HE; Cohn RJ; Robertson E, 2018, 'Feasibility, acceptability, and safety of the Recapture Life videoconferencing intervention for adolescent and young adult cancer survivors', Psycho-Oncology, 28, pp. 284 - 292, http://dx.doi.org/10.1002/pon.4938
2018
Robertson EG; Wakefield CE; Signorelli C; Cohn RJ; Patenaude A; Foster C; Pettit T; Fardell JE, 2018, 'Strategies to facilitate shared decision-making about pediatric oncology clinical trial enrollment: A systematic review', Patient Education and Counseling, 101, pp. 1157 - 1174, http://dx.doi.org/10.1016/j.pec.2018.02.001
2018
Gan LL; Lum A; Wakefield CE; Donnan BM; Marshall GM; Burns MA; Jaffe A; Leach S; Lemberg DA; Fardell JE, 2018, 'The School Experiences of Siblings of Children with Chronic Illness: Australian Parents' Perceptions', Educational and Developmental Psychologist, 35, pp. 36 - 50, http://dx.doi.org/10.1017/edp.2018.3
2018
Sansom-Daly UM; Wakefield CE; Robertson EG; McGill BC; Wilson HL; Bryant RA, 2018, 'Adolescent and young adult cancer survivors' memory and future thinking processes place them at risk for poor mental health', Psycho Oncology, 27, pp. 2709 - 2716, http://dx.doi.org/10.1002/pon.4856
2018
Janin MMH; Ellis SJ; Wakefield CE; Fardell JE, 2018, 'Talking about Cancer among Adolescent and Young Adult Cancer Patients and Survivors: A Systematic Review', Journal of Adolescent and Young Adult Oncology, 7, pp. 515 - 524, http://dx.doi.org/10.1089/jayao.2017.0131
2018
Janin MMH; Ellis SJ; Lum A; Wakefield CE; Fardell JE, 2018, 'Parents’ Perspectives on Their Child's Social Experience in the Context of Childhood Chronic Illness: A Qualitative Study', Journal of Pediatric Nursing, 42, pp. e10 - e18, http://dx.doi.org/10.1016/j.pedn.2018.06.010
2018
Robertson EG; Wakefield CE; Cohn RJ; O'Brien T; Ziegler DS; Fardell JE, 2018, 'The development of delta: Using agile to develop a decision aid for pediatric oncology clinical trial enrollment', Jmir Research Protocols, 7, pp. e119, http://dx.doi.org/10.2196/resprot.9258
2018
Touyz L; Cohen J; Wakefield C; Grech A; Garnett S; Gohil P; Cohn R, 2018, 'Design and rationale for a parent-led intervention to increase fruit and vegetable intake in young childhood cancer survivors (reboot): Protocol for a pilot study', Jmir Research Protocols, 20, http://dx.doi.org/10.2196/resprot.9252
2018
Signorelli C; Wakefield CE; Johnston KA; Fardell JE; Brierley MEE; Thornton-Benko E; Foreman T; Webber K; Wallace WH; Cohn RJ; Thornton E, 2018, 'Re-engage' pilot study protocol: A nurse-led eHealth intervention to re-engage, educate and empower childhood cancer survivors', BMJ Open, 8, pp. e022269, http://dx.doi.org/10.1136/bmjopen-2018-022269
2018
Vetsch J; McGill BC; Sansom-Daly UM; Hetherington K; Ellis SJ; Marshall KH; Wakefield CE, 2018, 'Comorbidity of distress experienced by parents of childhood cancer survivors points to the importance of understanding transdiagnostic cognitive-affective mechanisms.', Acta Oncologica, 58, pp. 1 - 2, http://dx.doi.org/10.1080/0284186X.2018.1512157
2018
Vetsch J; Wakefield CE; McGill BC; Cohn RJ; Ellis SJ; Stefanic N; Sawyer SM; Zebrack B; Sansom-Daly UM, 2018, 'Educational and vocational goal disruption in adolescent and young adult cancer survivors', Psycho Oncology, 27, pp. 532 - 538, http://dx.doi.org/10.1002/pon.4525
2018
Signorelli C; Wakefield CE; Fardell JE; Thornton-Benko E; Emery J; McLoone JK; Cohn RJ; McLoone J; Thornton E, 2018, 'Recruiting primary care physicians to qualitative research: Experiences and recommendations from a childhood cancer survivorship study', Pediatric Blood and Cancer, 65, http://dx.doi.org/10.1002/pbc.26762
2018
Fardell JE; Wakefield CE; Signorelli C; Hill R; Skeen J; Maguire AM; McLoone JK; Cohn RJ; Alvaro F; Corbett R; Downie P; Egan K; Ellis S; Foreman T; Gabriel M; Girgis A; Graham K; Johnston K; Jones J; Lockwood L; McCarthy M; Molloy S; Osborn M; Tapp H; Till T; Truscott J; Turpin K; Walwyn T; Yallop K, 2017, 'Transition of childhood cancer survivors to adult care: The survivor perspective', Pediatric Blood and Cancer, 64, http://dx.doi.org/10.1002/pbc.26354
2017
Lin M; Sansom-Daly UM; Wakefield CE; McGill BC; Cohn RJ, 2017, 'Health Literacy in Adolescents and Young Adults: Perspectives from Australian Cancer Survivors', Journal of Adolescent and Young Adult Oncology, 6, pp. 150 - 158, http://dx.doi.org/10.1089/jayao.2016.0024
2017
van Breeschoten J; De Abreu Lourenco R; Signorelli C; Haas M; Cohn RJ; Wakefield CE; Fardell JE, 2017, 'Patterns and drivers of health care use in long-term childhood cancer survivors: A systematic review', Critical Reviews in Oncology Hematology, 120, pp. 60 - 76, http://dx.doi.org/10.1016/j.critrevonc.2017.10.004
2017
Wakefield CE; Fardell JE; Doolan EL; Drew D; De Abreu Lourenco R; Young AL; Cohn RJ, 2017, 'Grandparents of children with cancer: Quality of life, medication and hospitalizations', Pediatric Blood and Cancer, 64, pp. 163 - 171, http://dx.doi.org/10.1002/pbc.26153
2017
Vetsch J; Fardell JE; Wakefield CE; Signorelli C; Michel G; McLoone JK; Walwyn T; Tapp H; Truscott J; Cohn RJ, 2017, '“Forewarned and forearmed”: Long-term childhood cancer survivors’ and parents’ information needs and implications for survivorship models of care', Patient Education and Counseling, 100, pp. 355 - 363, http://dx.doi.org/10.1016/j.pec.2016.09.013
2017
Cohen J; Wakefield CE; Tapsell LC; Walton K; Cohn RJ, 2017, 'Parent, patient and health professional perspectives regarding enteral nutrition in paediatric oncology', Nutrition and Dietetics, 74, pp. 476 - 487, http://dx.doi.org/10.1111/1747-0080.12336
2017
Sajeev M; Cohen J; Wakefield CE; Fardell JE; Cohn RJ, 2017, 'Decision Aid for Nutrition Support in Pediatric Oncology: A Pilot Study', Journal of Parenteral and Enteral Nutrition, 41, pp. 1336 - 1347, http://dx.doi.org/10.1177/0148607116661840
2017
Gan LL; Lum A; Wakefield CE; Nandakumar B; Fardell JE, 2017, 'School Experiences of Siblings of Children with Chronic Illness: A Systematic Literature Review', Journal of Pediatric Nursing, 33, pp. 23 - 32, http://dx.doi.org/10.1016/j.pedn.2016.11.007
2017
Signorelli C; Wakefield CE; McLoone JK; Fardell JE; Lawrence RA; Osborn M; Truscott J; Tapp H; Cohn RJ, 2017, 'Models of childhood cancer survivorship care in Australia and New Zealand: Strengths and challenges', Asia Pacific Journal of Clinical Oncology, 13, pp. 407 - 415, http://dx.doi.org/10.1111/ajco.12700
2017
Young AL; Butow PN; Vetsch J; Quinn VF; Patenaude AF; Tucker KM; Wakefield CE, 2017, 'Family Communication, Risk Perception and Cancer Knowledge of Young Adults from BRCA1/2 Families: a Systematic Review', Journal of Genetic Counseling, 26, pp. 1179 - 1196, http://dx.doi.org/10.1007/s10897-017-0125-4
2017
Stafford L; Sinclair M; Turner J; Newman L; Wakefield C; Krishnasamy M; Mann GB; Gilham L; Mason K; Rauch P; Cannell J; Schofield P, 2017, 'Study protocol for Enhancing Parenting In Cancer (EPIC): Development and evaluation of a brief psycho-educational intervention to support parents with cancer who have young children', Pilot and Feasibility Studies, 3, pp. 72, http://dx.doi.org/10.1186/s40814-017-0215-y
2017
McGill BC; Sansom-Daly UM; Wakefield CE; Ellis SJ; Robertson EG; Cohn RJ, 2017, 'Therapeutic Alliance and Group Cohesion in an Online Support Program for Adolescent and Young Adult Cancer Survivors: Lessons from "recapture Life"', Journal of Adolescent and Young Adult Oncology, 6, pp. 568 - 572, http://dx.doi.org/10.1089/jayao.2017.0001
2017
Healey E; Taylor N; Greening S; Wakefield CE; Warwick L; Williams R; Tucker K, 2017, 'Quantifying family dissemination and identifying barriers to communication of risk information in Australian BRCA families', Genetics in Medicine, 19, pp. 1323 - 1331, http://dx.doi.org/10.1038/gim.2017.52
2017
Mizrahi D; Wakefield CE; Fardell JE; Quinn VF; Lim Q; Clifford BK; Simar D; Ness KK; Cohn RJ, 2017, 'Distance-delivered physical activity interventions for childhood cancer survivors: A systematic review and meta-analysis', Critical Reviews in Oncology Hematology, 118, pp. 27 - 41, http://dx.doi.org/10.1016/j.critrevonc.2017.08.008
2017
Sansom-Daly UM; Evans HE; Ellis SJ; McGill BC; Hetherington K; Wakefield CE, 2017, 'Something's got to give: time–cost trade-offs in site-specific research approval can negatively impact patient recruitment in multi-institutional studies', Internal Medicine Journal, 47, pp. 1088 - 1089, http://dx.doi.org/10.1111/imj.13535
2017
Lum A; Donnan B; Wakefield CE; Fardell JE; Marshall GM, 2017, 'Establishing Australian school re-entry service guidelines for children diagnosed with cancer', Journal of Paediatrics and Child Health, 53, pp. 529 - 533, http://dx.doi.org/10.1111/jpc.13563
2017
Wakefield CE; Fardell JE; Doolan EL; Aaronson NK; Jacobsen PB; Cohn RJ; King M, 2017, 'Participation in psychosocial oncology and quality-of-life research: a systematic review', Lancet Oncology, 18, pp. e153 - e165, http://dx.doi.org/10.1016/S1470-2045(17)30100-6
2017
Signorelli C; Wakefield CE; Fardell JE; Wallace WHB; Robertson EG; McLoone JK; Cohn RJ, 2017, 'The impact of long-term follow-up care for childhood cancer survivors: A systematic review', Critical Reviews in Oncology Hematology, 114, pp. 131 - 138, http://dx.doi.org/10.1016/j.critrevonc.2017.04.007
2017
Lum A; Wakefield CE; Donnan B; Burns MA; Fardell JE; Marshall GM, 2017, 'Understanding the school experiences of children and adolescents with serious chronic illness: a systematic meta-review', Child Care Health and Development, 43, pp. 645 - 662, http://dx.doi.org/10.1111/cch.12475
2017
Fardell JE; Vetsch J; Trahair T; Mateos MK; Grootenhuis MA; Touyz LM; Marshall GM; Wakefield CE, 2017, 'Health-related quality of life of children on treatment for acute lymphoblastic leukemia: A systematic review', Pediatric Blood and Cancer, 64, http://dx.doi.org/10.1002/pbc.26489
2017
Russo S; Warby M; Tucker KM; Wakefield CE; Cohn RJ, 2017, 'Importance of updating family cancer history in childhood cancer survivors', Familial Cancer, 16, pp. 605 - 610, http://dx.doi.org/10.1007/s10689-017-9988-7
2017
Lim Q; McGill BC; Quinn VF; Tucker KM; Mizrahi D; Patenaude AF; Warby M; Cohn RJ; Wakefield CE, 2017, 'Parents’ attitudes toward genetic testing of children for health conditions: A systematic review', Clinical Genetics, 92, pp. 569 - 578, http://dx.doi.org/10.1111/cge.12989
2017
May E; mcgill B; Anazodo A; wakefield C; Sansom-Daly U; Robertson E, 2017, 'Adolescent and Young Adult Cancer Survivors’ Experiences of the Healthcare System: A Qualitative Study.', Journal of Adolescent and Young Adult Oncology, 7, pp. 88 - 96, http://dx.doi.org/10.1089/jayao.2017.0015
2017
Ellis SJ; Wakefield CE; Antill G; Burns M; Patterson P, 2017, 'Supporting children facing a parent's cancer diagnosis: a systematic review of children's psychosocial needs and existing interventions', European Journal of Cancer Care, 26, pp. e12432, http://dx.doi.org/10.1111/ecc.12432
2017
Sansom-Daly UM; McGill BC; Anazodo AC; Plaster M; Maguire F; O'Dwyer C; Ellis SJ; Robertson EG; Cohn RJ; Wakefield CE, 2016, 'The Reality of Relapse: Impact of Cancer Relapse on Survivorship Interventions and Patient-Reported Outcomes Data', Pediatric Blood and Cancer, 63, pp. 1492 - 1493, http://dx.doi.org/10.1002/pbc.26001
2016
Wakefield C; Lin S; Drew D; McLoone J; Doolan E; Young A; Fardell J; Cohn R; Drew D; McLoone J, 2016, 'Development and Evaluation of an Information Booklet for Grandparents of Children With Cancer', Journal of Pediatric Oncology Nursing, 33, pp. 361 - 369, http://dx.doi.org/10.1177/1043454215602689
2016
Anazodo AC; Stern CJ; Mclachlan RI; Gerstl B; Agresta F; Cohn RJ; Jayasinghe Y; Wakefield CE; Daly G; Chan D; Gilbert L; Kemertzis M; Orme LM; Wand H; Viney R; Gillam L; Deans R; Jetti M; Wu J; Chapman M; Ledger W; Sullivan EA, 2016, 'A study protocol for the australasian oncofertility registry: Monitoring referral patterns and the uptake, quality, and complications of fertility preservation strategies in Australia and New Zealand', Journal of Adolescent and Young Adult Oncology, 5, pp. 215 - 225, http://dx.doi.org/10.1089/jayao.2015.0062
2016
Cohen J; Wakefield CE; Laing DG, 2016, 'Smell and taste disorders resulting from cancer and chemotherapy', Current Pharmaceutical Design, 22, pp. 2253 - 2263, http://dx.doi.org/10.2174/1381612822666160216150812
2016
Naumann FL; Hunt M; Ali D; Wakefield CE; Moultrie K; Cohn RJ, 2016, 'Erratum to: "Assessment of fundamental movement skills in childhood cancer patients." [Pediatr Blood Cancer 62, (2015), 2211-2215].', Pediatric Blood and Cancer, 63, pp. 574, http://dx.doi.org/10.1002/pbc.25920
2016
Aralova M; Robertson E; Putrya A; Goncharova L; Wakefield C; Aslanyan K, 2016, 'Relationships between Russian mothers and their children with, and without, cancer: A controlled study', International Journal of Healthcare, 2, http://dx.doi.org/10.5430/ijh.v2n2p73
2016
Cavanagh BM; Wakefield CE; McLoone JK; Garvey G; Cohn RJ, 2016, 'Cancer survivorship services for indigenous peoples: where we stand, where to improve? A systematic review', Journal of Cancer Survivorship, 10, pp. 330 - 341, http://dx.doi.org/10.1007/s11764-015-0479-2
2016
Robertson EG; Sansom-Daly UM; Wakefield CE; Ellis SJ; Mcgill BC; Doolan EL; Cohn RJ, 2016, 'Sexual and romantic relationships: Experiences of adolescent and young adult cancer survivors', Journal of Adolescent and Young Adult Oncology, 5, pp. 286 - 291, http://dx.doi.org/10.1089/jayao.2015.0061
2016
Sansom-Daly UM; Lin M; Robertson EG; Wakefield CE; McGill BC; Girgis A; Cohn RJ, 2016, 'Health Literacy in Adolescents and Young Adults: An Updated Review', Journal of Adolescent and Young Adult Oncology, 5, pp. 106 - 118, http://dx.doi.org/10.1089/jayao.2015.0059
2016
Anazodo AC; Gerstl B; Stern CJ; Mclachlan RI; Agresta F; Jayasinghe Y; Cohn RJ; Wakefield CE; Chapman M; Ledger W; Sullivan EA, 2016, 'Utilizing the experience of consumers in consultation to develop the australasian oncofertility consortium charter', Journal of Adolescent and Young Adult Oncology, 5, pp. 232 - 239, http://dx.doi.org/10.1089/jayao.2015.0056
2016
McCarthy MC; DeGraves S; Wakefield CE; Bowden MJ; Marks LV; Williams LK, 2016, 'The association of psychosocial screening and service provision in pediatric oncology: the Psychosocial Assessment Tool (PAT2.0) into clinical practice', Supportive Care in Cancer, 24, pp. 2945 - 2952, http://dx.doi.org/10.1007/s00520-016-3107-4
2016
Lawrence RA; McLoone JK; Wakefield CE; Cohn RJ, 2016, 'Primary Care Physicians’ Perspectives of Their Role in Cancer Care: A Systematic Review', Journal of General Internal Medicine, 31, pp. 1222 - 1236, http://dx.doi.org/10.1007/s11606-016-3746-7
2016
Sansom-Daly UM; Wakefield CE; McGill BC; Wilson HL; Patterson P, 2016, 'Consensus among international ethical guidelines for the provision of videoconferencing-based mental health treatments', Jmir Mental Health, 3, http://dx.doi.org/10.2196/mental.5481
2016
Georgiou G; Wakefield CE; McGill BC; Fardell JE; Signorelli C; Hanlon L; Tucker K; Patenaude AF; Cohn RJ, 2016, 'Genetic testing for the risk of developing late effects among survivors of childhood cancer: Consumer understanding, acceptance, and willingness to pay', Cancer, 122, pp. 2876 - 2885, http://dx.doi.org/10.1002/cncr.30119
2016
Wakefield CE; Sansom-Daly UM; McGill BC; Ellis SJ; Doolan EL; Robertson EG; Mathur S; Cohn RJ, 2016, 'Acceptability and feasibility of an e-mental health intervention for parents of childhood cancer survivors: “Cascade”', Supportive Care in Cancer, 24, pp. 2685 - 2694, http://dx.doi.org/10.1007/s00520-016-3077-6
2016
Ellis SJ; Wakefield CE; McLoone JK; Robertson EG; Cohn RJ, 2016, 'Fertility concerns among child and adolescent cancer survivors and their parents: A qualitative analysis', Journal of Psychosocial Oncology, 34, pp. 347 - 362, http://dx.doi.org/10.1080/07347332.2016.1196806
2016
Russo S; Fardell JE; Signorelli C; Wakefield CE; Mcloone JK; Cohn RJ, 2016, 'Sleep Disturbances in Childhood Cancer Survivors', Pediatric Blood and Cancer, 63, pp. 759 - 760, http://dx.doi.org/10.1002/pbc.25858
2016
Sansom-Daly UM; Bryant RA; Cohn RJ; Wakefield CE, 2016, 'Rumination and self-defining memories in the context of health concerns', Memory, 24, pp. 939 - 948, http://dx.doi.org/10.1080/09658211.2015.1059860
2016
Wakefield CE; Hanlon LV; Tucker KM; Patenaude AF; Signorelli C; McLoone JK; Cohn RJ, 2016, 'The psychological impact of genetic information on children: A systematic review', Genetics in Medicine, 18, pp. 755 - 762, http://dx.doi.org/10.1038/gim.2015.181
2016
McCarthy MC; Wakefield CE; DeGraves S; Bowden M; Eyles D; Williams LK, 2016, 'Feasibility of clinical psychosocial screening in pediatric oncology: Implementing the PAT2.0', Journal of Psychosocial Oncology, 34, pp. 363 - 375, http://dx.doi.org/10.1080/07347332.2016.1210273
2016
Wakefield CE; McLoone JK; Donovan LA; Cohn RJ, 2015, 'Thank you for your lovely card: ethical considerations in responding to bereaved parents invited in error to participate in childhood cancer survivorship research', Medicine Health Care and Philosophy, 18, pp. 113 - 119, http://dx.doi.org/10.1007/s11019-014-9587-4
2015
Evans NT; Wakefield CE; McLoone JK; Cohn RJ, 2015, 'Familial diagnostic experiences in paediatric oncology', British Journal of Cancer, 112, pp. 20 - 23, http://dx.doi.org/10.1038/bjc.2014.516
2015
Wakefield CE; Butow PN; Aaronson NA; Hack TF; Hulbert-Williams NJ; Jacobsen PB, 2015, 'Patient-reported depression measures in cancer: A meta-review', Lancet Psychiatry, 2, pp. 635 - 647, http://dx.doi.org/10.1016/S2215-0366(15)00168-6
2015
Robertson EG; Wakefield CE; Marshall KH; Sansom-Daly UM, 2015, 'Strategies to improve adherence to treatment in adolescents and young adults with cancer: a systematic review', Clinical Oncology in Adolescents and Young Adults, 5, pp. 35 - 49, http://dx.doi.org/10.2147/coaya.s85988
2015
Fleming CAK; Cohen J; Murphy A; Wakefield CE; Cohn RJ; Naumann FL, 2015, 'Parent feeding interactions and practices during childhood cancer treatment. A qualitative investigation', APPETITE, 89, pp. 219 - 225, http://dx.doi.org/10.1016/j.appet.2014.12.225
2015
Donnan BM; Webster T; Wakefield CE; Dalla-Pozza L; Alvaro F; Lavoipierre J; Marshall GM, 2015, 'What about School? Educational Challenges for Children and Adolescents with Cancer', Australian Educational and Developmental Psychologist, 32, pp. 23 - 40, http://dx.doi.org/10.1017/edp.2015.9
2015
Martin E; Healey E; Williams R; Greening S; Warwick L; Wakefield C; Tucker K, 2015, 'AT RISK AND UNREACHABLE - IMPLEMENTING THE FAMILY COMMUNICATION TOOL INTO THE CLINIC TO IMPROVE DISSEMINATION OF INFORMATION', Asia-Pacific Journal of Clinical Oncology, 11, pp. 103 - 103, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000364320800128&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2015
Patterson P; McDonald FEJ; Ciarrochi J; Hayes L; Tracey D; Wakefield CE; White K, 2015, 'A study protocol for Truce: A pragmatic controlled trial of a seven-week acceptance and commitment therapy program for young people who have a parent with cancer', BMC Psychology, 3, http://dx.doi.org/10.1186/S40359-015-0087-Y
2015
Cohen J; Wakefield CE; Tapsell LC; Walton K; Fleming CAK; Cohn RJ, 2015, 'Exploring the views of parents regarding dietary habits of their young cancer-surviving children', Supportive Care in Cancer, 23, pp. 463 - 471, http://dx.doi.org/10.1007/s00520-014-2394-x
2015
Wakefield CE; Sansom-Daly UM; McGill BC; McCarthy M; Girgis A; Grootenhuis M; Barton B; Patterson P; Osborn M; Lowe C; Anazodo A; Miles G; Cohn RJ, 2015, 'Online parent-targeted cognitive-behavioural therapy intervention to improve quality of life in families of young cancer survivors: Study protocol for a randomised controlled trial', Trials, 16, pp. 153, http://dx.doi.org/10.1186/s13063-015-0681-6
2015
Naumann FL; Hunt M; Ali D; Wakefield CE; Moultrie K; Cohn RJ, 2015, 'Assessment of Fundamental Movement Skills in Childhood Cancer Patients', Pediatric Blood and Cancer, 62, pp. 2211 - 2215, http://dx.doi.org/10.1002/pbc.25676
2015
Bogg TFT; Shaw PJ; Cohn RJ; Wakefield CE; Hardy LL; Broderick C; Naumann F, 2015, 'Physical activity and screen-time of childhood haematopoietic stem cell transplant survivors', Acta paediatrica (Oslo, Norway : 1992), 104, pp. e455 - e459, http://dx.doi.org/10.1111/apa.13120
2015
Vedi A; Pennington V; O’Meara M; Stark K; Senner A; Hunstead P; Adnum K; Londall W; Maurice L; Wakefield C; Cohn RJ, 2015, 'Management of fever and neutropenia in children with cancer', Supportive Care in Cancer, 23, pp. 2079 - 2087, http://dx.doi.org/10.1007/s00520-014-2572-x
2015
Donovan LA; Wakefield CE; Russell V; Cohn RJ, 2015, 'Hospital-based bereavement services following the death of a child: A mixed study review', Palliative Medicine, 29, pp. 193 - 210, http://dx.doi.org/10.1177/0269216314556851
2015
Signorelli C; Mcloone JK; Wakefield CE; Cohn RJ, 2015, 'Dental hygiene in childhood cancer survivors: The importance of tertiary long term follow-up care', Pediatric Blood and Cancer, 62, pp. 921, http://dx.doi.org/10.1002/pbc.25421
2015
Sansom-Daly UM; Wakefield CE; McGill BC; Patterson P, 2015, 'Ethical and Clinical Challenges Delivering Group-based Cognitive-Behavioural Therapy to Adolescents and Young Adults with Cancer Using Videoconferencing Technology', Australian Psychologist, 50, pp. 271 - 278, http://dx.doi.org/10.1111/ap.12112
2015
Patterson P; McDonald FEJ; Anazodo A; Costa DSJ; Wakefield CE; White K; Thompson K; Osborn MP, 2015, 'Validation of the distress thermometer for use among adolescents and young adults with cancer in Australia: a multicenter study protocol', CLINICAL ONCOLOGY IN ADOLESCENTS AND YOUNG ADULTS, 5, pp. 51 - 62, http://dx.doi.org/10.2147/COAYA.S83811
2015
Wakefield CE; McLoone JK; Evans NT; Ellis SJ; Cohn RJ, 2014, 'It's More than Dollars and Cents: The Impact of Childhood Cancer on Parents Occupational and Financial Health', Journal of Psychosocial Oncology, 32, pp. 602 - 621, http://dx.doi.org/10.1080/07347332.2014.936653
2014
Cohn R; McLoone JK; Signorelli C; Wakefield CE, 2014, 'CHILDHOOD CANCER SURVIVORS: WHAT ARE THEIR MOTIVATORS AND BARRIERS TO PARTICIPATING IN LONG TERM FOLLOW-UP CARE?', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, 10, pp. 88 - 88, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000345350900041&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2014
McLoone JK; Jones J; Wakefield CE; Johnston K; Cohn RJ, 2014, 'CENTRALISED LONG TERM FOLLOW-UP CLINICS FOR CHILDHOOD CANCER SURVIVORS: WHY DO SO MANY SURVIVORS NOT ATTEND?', PEDIATRIC BLOOD & CANCER, 61, pp. S306 - S306, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000343932100837&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2014
Wakefield CE; McLoone JK; Tucker K; Patenaude AF; Doolan EJ; Cohn RJ, 2014, 'Are Childhood Cancer Survivors and Their Parents Interested in Receiving Genetics-related Information and Services? A Multi-perspective, Mixed Methods Study', PSYCHO-ONCOLOGY, 23, pp. 91 - 92, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000344003700130&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2014
Cheung LLT; Wakefield CE; Ellis SJ; Mandalis A; Frow E; Cohn RJ, 2014, 'Neuropsychology reports for childhood brain tumor survivors: Implementation of recommendations at home and school', Pediatric Blood and Cancer, 61, pp. 1080 - 1087, http://dx.doi.org/10.1002/pbc.24940
2014
Sansom-Daly UM; Bryant RA; Cohn RJ; Wakefield CE, 2014, 'Imagining the future in health anxiety: the impact of rumination on the specificity of illness-related memory and future thinking', Anxiety, Stress, & Coping, 27, pp. 587 - 600, http://dx.doi.org/10.1080/10615806.2014.880111
2014
Patterson P; McDonald FEJ; Butow P; White KJ; Costa DSJ; Millar B; Bell ML; Wakefield CE; Cohn RJ, 2014, 'Psychometric evaluation of the Sibling Cancer Needs Instrument (SCNI): an instrument to assess the psychosocial unmet needs of young people who are siblings of cancer patients', Supportive Care in Cancer, 22, pp. 653 - 665, http://dx.doi.org/10.1007/s00520-013-2020-3
2014
Wakefield CE; Drew D; Ellis SJ; Doolan EL; McLoone JK; Cohn RJ, 2014, '‘What they’re not telling you’: A new scale to measure grandparents’ information needs when their grandchild has cancer', Patient Education and Counseling, 94, pp. 351 - 355, http://dx.doi.org/10.1016/j.pec.2013.10.030
2014
Wakefield CE; Drew D; Ellis SJ; Doolan EL; McLoone JK; Cohn RJ, 2014, 'Grandparents of children with cancer: A controlled study of distress, support, and barriers to care', Psycho Oncology, 23, pp. 855 - 861, http://dx.doi.org/10.1002/pon.3513
2014
Wakefield CE; McLoone J; Butow PN; Lenthen K; Cohn RJ, 2013, 'Support after the completion of cancer treatment: Perspectives of Australian adolescents and their families', European Journal of Cancer Care, 22, pp. 530 - 539, http://dx.doi.org/10.1111/ecc.12059
2013
Sansom-Daly UM; Wakefield CE; Johnston K; Cohn RJ; Wilson CL; Ashton LJ, 2013, 'Further evidence for the co-occurrence of adverse health behaviors among childhood cancer survivors', Pediatric Blood and Cancer, 60, pp. 167 - 168, http://dx.doi.org/10.1002/pbc.24305
2013
Watts KJ; Meiser B; Wakefield CE; Barratt AL; Howard K; Cheah BC; Mann GJ; Lobb EA; Gaff CL; Patel MI, 2013, 'Online Prostate Cancer Screening Decision Aid for At-Risk Men: A Randomized Trial.', Health Psychology, 33, pp. 986 - 997, http://dx.doi.org/10.1037/a0034405
2013
Murray L; Miller A; Dayoub C; Wakefield C; Homewood J, 2013, 'Communication and consent: Discussion and organ donation decisions for self and family', Transplantation Proceedings, 45, pp. 10 - 12, http://dx.doi.org/10.1016/j.transproceed.2012.10.021
2013
Daniel G; Wakefield CE; Ryan B; Fleming CAK; Levett N; Cohn RJ, 2013, 'Accommodation in pediatric oncology: Parental experiences, preferences and unmet needs', Rural and Remote Health, 13, pp. 2005 - 2014
2013
Bui T; Wakefield CE; Kasparian NA; Tyler J; Abbott J; Tucker K, 2013, 'Oral contraceptive use in women at increased risk of breast/ovarian cancer: Knowledge and attitudes', Psycho-oncology, 22, pp. 228 - 232, http://dx.doi.org/10.1002/pon.2049
2013
Wakefield C; Douma K; Henselmans I; Lichtenthal W; Peate M, 2013, 'Thinking About the Needs of Early Career Professionals in Psycho-Oncology and Future Directions for Support', PSYCHO-ONCOLOGY, 22, pp. 113 - 114, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000325687200171&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2013
McLoone J; Wakefield CE; Yoong SL; Cohn RJ, 2013, 'Parental sleep experiences on the pediatric oncology ward', Supportive Care in Cancer, 21, pp. 557 - 564, http://download.springer.com.wwwproxy0.library.unsw.edu.au/static/pdf/570/art%253A10.1007%252Fs00520-012-1547-z.pdf?auth66=1364277525_c952fcc580a28ff5406d4c2912c68264&ext=.pdf
2013
Ellis SJ; Drew D; Wakefield CE; Saikal SL; Punch D; Cohn RJ, 2013, 'Results of a Nurse-Led Intervention: Connecting Pediatric Cancer Patients From the Hospital to the School Using Videoconferencing Technologies', Journal of Pediatric Oncology Nursing, 30, pp. 333 - 341, http://dx.doi.org/10.1177/1043454213514633
2013
Peate M; Watts KJ; Wakefield CE, 2013, 'The ‘value’ of values clarification in cancer-related decision aids', Patient Education and Counseling, 90, pp. 281 - 283, http://dx.doi.org/10.1016/j.pec.2012.10.023
2013
Wakefield CE; sansom-daly U, 2013, 'Distress and adjustment among adolescents and young adults with cancer: an empirical and conceptual review', Translational Pediatrics, 2, pp. 167 - 197, http://www.thetp.org/article/view/2851
2013
Sansom-Daly UM; Wakefield CE; Johnston K; Cohn RJ; Wilson CL; Ashton LJ, 2013, 'Parental smoking may confer negligible environmental, but significant lifestyle costs to childhood cancer survivors', Pediatric Blood and Cancer, 60, pp. 161 - 162, http://dx.doi.org/10.1002/pbc.24209
2013
Wakefield CE; Thorne HJ; Kirk J; Niedermayr E; Doolan EL; Tucker K, 2013, 'Improving mutation notification when new genetic information is identified in research: A trial of two strategies in familial breast cancer', Genetics in Medicine, 15, pp. 187 - 194, http://dx.doi.org/10.1038/gim.2012.115
2013
McLoone JK; Wakefield CE; Cohn RJ, 2013, 'Childhood cancer survivors' school (re)entry: Australian parents' perceptions', European Journal of Cancer Care, 22, pp. 484 - 492, http://dx.doi.org/10.1111/ecc.12054
2013
Patterson P; Wakefield CE; McDonald FEJ; Wilson H; Davis E; Sansom-Daly UM, 2013, 'Assessment of psychosocial outcomes in adolescents and young adults with cancer: a systematic review of available instruments', Clinical Oncology in Adolescents and Young Adults, 3, pp. 13 - 27, http://dx.doi.org/10.2147/COAYA.S29735
2013
Drew D; Wakefield CE; Ellis SJ; Doolan EL; McLoone JK; Cohn RJ, 2013, '‘Give as much help as you can, but tread carefully’: Grandparenting across the generations when a grandchild is diagnosed with cancer', European Journal of Oncology Nursing, 17, pp. 896 - 896, http://dx.doi.org/10.1016/j.ejon.2013.09.024
2013
Sansom-Daly U; Peate M; Wakefield CE; Bryant RA; Cohn RJ, 2012, 'A Systematic Review of Psychological interventions for Adolescents and Young Adults Living With Chronic Illness', Health Psychology, 31, pp. 380 - 393, http://dx.doi.org/10.1037/a0025977
2012
Wakefield CE; Butow PN; Fleming C; Daniel G; Cohn RJ, 2012, 'Family information needs at childhood cancer treatment completion', Pediatric Blood and Cancer, 58, pp. 621 - 626, http://dx.doi.org/10.1002/pbc.23316
2012
Sansom-Daly U; Wakefield CE; Bryant RA; Butow PN; Sawyer S; Patterson P; Anazodo A; Thompson K; Cohn RJ, 2012, 'Online group-based cognitive-behavioural therapy for adolescents and young adults after cancer treatment: A multicenter randomised controlled trial of Recapture Life-AYA', BMC Cancer, 12, pp. 339 - 351, http://www.biomedcentral.com/1471-2407/12/339
2012
Drew D; Wakefield CE; Ellis SE; Cohn RJ, 2012, '"The Forgotten Caregivers": Information and Support Needs of Grandparents of Children With Cancer', PSYCHO-ONCOLOGY, 21, pp. 62 - 63, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000299780800110&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2012
Drew D; Wakefield CE; Punch D; Ellis SJ; Cohn RJ, 2012, 'From the Hospital Bed to the Classroom - Connecting Children With Cancer Using Online Videoconferencing', PSYCHO-ONCOLOGY, 21, pp. 62 - 62, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000299780800109&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2012
Wakefield CE; McLoone J; Fleming C; Peate M; Thomas E; Sansom-Daly U; Butow PN; Cohn RJ, 2012, 'Adolescent Cancer and Health-Related Decision-Making: An Australian Multi-Perspective Family Analysis of Appointment Attendance and Involvement in Medical and Lifestyle Choices', Journal of Adolescent and Young Adult Oncology, 1, pp. 173 - 180, http://dx.doi.org/10.1089/jayao.2011.0030
2012
Wakefield CE; McLoone J; Butow PN; Lenthen K; Cohn RJ, 2012, 'Parental adjustment to the completion of their child's cancer treatment', Pediatric Blood and Cancer, 56, pp. 524 - 531, http://dx.doi.org/10.1002/pbc.22725
2012
Cohen J; Wakefield CE; Fleming C; Gawthorne R; Tapsell LC; Cohn RJ, 2012, 'Dietary intake after treatment in child cancer survivors', Pediatric Blood and Cancer, 58, pp. 752 - 757, http://dx.doi.org/10.1002/pbc.23280
2012
Ratnayake P; Wakefield CE; Meiser B; Suthers G; Price M; Duffy J; Tucker K, 2011, 'An exploration of the communication preferences regarding genetic testing in individuals from families with identified breast/ovarian cancer mutations', Familial Cancer, 10, pp. 97 - 105, http://dx.doi.org/10.1007/s10689-010-9383-0
2011
Wakefield CE; Reid J; Homewood J, 2011, 'Religious and Ethnic Influences on Willingness to Donate Organs and Donor Behavior: An Australian Perspective', Progress in Transplantation, 21, pp. 161 - 168, http://dx.doi.org/10.1177/152692481102100213
2011
Wakefield CE; Ratnayake P; Meiser B; Suthers G; Price M; Duffy J; Tucker K, 2011, '"For all my family's sake, i should go and find out": An Australian report on genetic counseling and testing uptake in individuals at high risk of breast and/or ovarian cancer', Genetic Testing and Molecular Biomarkers, 15, pp. 379 - 385, http://dx.doi.org/10.1089/gtmb.2010.0158
2011
Wakefield CE; Watts KJ; Meiser B; Sansom-Daly U; Barratt A; Mann GJ; Lobb EA; Gaff C; Howard K; Patel MI, 2011, 'Development and pilot testing of an online screening decision aid for men with a family history of prostate cancer', Patient Education and Counseling, 83, pp. 64 - 72
2011
Peate ML; Meiser B; Hickey MS; Thewes B; Saunders C; Butow PN; Martinello R; Martinello R; Fallon-Ferguson J; Wakefield C; Zorbas H; Rovelli S; Friedlander ML, 2011, 'Development and pilot testing of a fertility decision aid for young women diagnosed with early breast cancer', The breast journal, 17, pp. 112 - 114, http://dx.doi.org/10.1111/j.1524-4741.2010.01033.x
2011
Wakefield CE; Reid J; Homewood J, 2011, 'Religious and ethnic influences on willingness to donate organs and donor behavior: An Australian perspective.', Progress in Transplantation: the journal for procurement and clinical transplant professionals, 21, pp. 161 - 168, http://www.ncbi.nlm.nih.gov/pubmed/21736247
2011
McLoone J; Wakefield CE; Butow PN; Fleming C; Cohn RJ, 2011, 'Returning to school after adolescent cancer: A qualitative examination of Australian survivors’ and their families’ perspectives.', Journal of Adolescent and Young Adult Oncology, 1, pp. 87 - 94
2011
Philipson S; Wakefield CE; Kasparian NA, 2011, 'Women’s knowledge, beliefs and information needs in relation to the risks and benefits associated with use of the oral contraceptive pill.', Journal of Women's Health, 20, pp. 635 - 642, http://dx.doi.org/10.1089/jwh.2010.2455
2011
Cohen J; Rosen K; Russell K; Wakefield CE; Goodenough BJ, 2010, 'Paediatric oncology patient preferences for oral nutritional supplements in a clinical setting', Supportive Care in Cancer, http://dx.doi.org/10.1007/s00520-010-0943-5
2010
Wakefield CE, 2010, 'Translating research results into practice: An example from survivorship research in adolescent oncology.', Nursing review, pp. 14 - 15
2010
Wakefield CE; McLoone J; Goodenough BJ; Lenthen K; Cairns DR; Cohn RJ, 2010, 'The psychosocial impact of completing childhood cancer treatment: A systematic review of the literature.', Journal of Pediatric Psychology, 35, pp. 262 - 274
2010
Wakefield CE; Homewood J; Taylor A; Mahmut MK; Meiser B, 2010, 'Time perspective in hereditary cancer: Psychometric properties of a short form of the zimbardo time perspective inventory in a community and clinical sample', Genetic Testing and Molecular Biomarkers, 14, pp. 617 - 627, http://dx.doi.org/10.1089/gtmb.2009.0185
2010
Wakefield CE; Watts KJ; Homewood J; Meiser B; Siminoff L, 2010, 'Attitudes toward organ donation and donor behaviour: A review of the international literature', Progress in Transplantation: the journal for procurement and clinical transplant professionals, 20, pp. 380 - 391
2010
Wakefield CE; Watts KJ; Homewood J; Meiser B; Siminoff LA, 2010, 'Attitudes toward Organ Donation and Donor Behavior: A Review of the International Literature', Progress in Transplantation, 20, pp. 380 - 391, http://dx.doi.org/10.1177/152692481002000412
2010
Wakefield CE; Juan A; Kasparian NA, 2009, 'Men at increased risk of developing breast cancer: language preferences for naming a cancer-related mutation', Genetic Testing and Molecular Biomarkers, 13, pp. 395 - 398
2009
Wakefield CE; Meiser B; Homewood J; Ward RL; O Donnell S; Kirk J, 2008, 'Randomized trial of a decision aid for individuals considering genetic testing for hereditary nonpolyposis colorectal cancer risk', Cancer, 113, pp. 956 - 965
2008
Wakefield CE; Meiser B; Homewood J; Taylor A; Gleeson MA; Williams R; Tucker K; Ward RL, 2008, 'A randomized trial of a breast/ovarian cancer genetic testing decision aid used as a communication aid during genetic counseling', Psycho - Oncology, 17, pp. 844 - 854
2008
Wakefield CE; Meiser B; Homewood J; Peate ML; Taylor A; Lobb EA; Kirk J; Young M; Williams R; Dudding T; Tucker K, 2008, 'A randomized controlled trial of a decision aid for women considering genetic testing for breast and ovarian cancer risk', Breast Cancer Research and Treatment, 107, pp. 289 - 301, http://dx.doi.org/10.1007/s10549-007-9539-2
2008
Juan A; Wakefield CE; Kasparian NA; Kirk J; Tyler J; Tucker K, 2008, 'Development and pilot testing of a decision aid for men considering genetic testing for breast and /or ovarian cancer-related mutations (BRCA 1/2)', Genetic Testing, 12, pp. 523 - 532
2008
Wakefield CE; Meiser B; Gaff C; Barratt A; Patel M; Suthers GK; Lobb EA; Ramsay JR; Mann GJ, 2008, 'Issues faced by unaffected men with a family history of prostate cancer: A multidisciplinary overview', Journal of Urology, 180, pp. 38 - 46, http://dx.doi.org/10.1016/j.juro.2008.03.020
2008
Wakefield CE; Kasparian NA; Meiser B; Homewood J; Kirk J; Tucker K, 2007, 'Attitudes toward genetic testing for cancer risk after genetic counseling and decision support: A qualitative comparison between hereditary cancer types', Genetic Testing, 11, pp. 401 - 411, http://dx.doi.org/10.1089/gte.2007.0013
2007
Wakefield CE; Homewood J; Mahmut M; Taylor A; Meiser B, 2007, 'Usefulness of the threatening medical situations inventory in individuals considering genetic testing for cancer risk', Patient Education and Counseling, 69, pp. 29 - 38
2007
Wakefield CE; Meiser B; Homewood J; Barlow-Stewart K; Tucker K, 2007, 'A comparison of community, clinician and patient preferences for naming a cancer-related mutation', Clinical Geriatrics, 9, pp. 311 - 320
2007
Kasparian NA; Wakefield CE; Meiser B, 2007, 'Assessment of psychosocial outcomes in genetic counseling research: An overview of available measurement scales', Journal of Genetic Counseling, 16, pp. 693 - 712, http://dx.doi.org/10.1007/s10897-007-9111-6
2007
Wakefield CE; Meiser B; Homewood J; Peate ML; Kirk J; Warner B; Lobb E; Gaff C; Tucker K, 2007, 'Development and pilot testing of two decision aids for indivduals considering genetic testing for cancer risk', Journal of Genetic Counseling, 16, pp. 325 - 339
2007
Wakefield CE; Homewood J; Taylor AJ, 2006, 'Early blindness may be associated with changes in performance on verbal fluency tasks', Journal of Visual Impairment and Blindness, 100, pp. 306 - 310, http://dx.doi.org/10.1177/0145482x0610000508
2006
Wakefield CE; Homewood J; Taylor A, 2004, 'Cognitive compensations for blindness in children: An exploratory investigation using odour-naming', Perception, 33, pp. 429 - 442
2004
Cohen J; Wakefield CE; Bartle J; Cohn RJ, 2002, 'Nutritional interventions in childhood cancer survivors', Cochrane Database of Systematic Reviews, 2012, pp. Art. No.: CD009678. - Art. No.: CD009678., http://10.0.3.234/14651858.CD009678
2002
Other
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Tyrrell V; Mayoh C; Ekert P; Cowley M; Ziegler D; Wong M; Barahona P; Pinese M; Haber M; Salomon R; Courtney E; Lock R; Fuentes-Bolanos N; Marshall G; Warby M; Trahair T; Khuong Quang DA; Wakefield C; Tucker K; Barlow-Stewart K; Padhye B; Lau L, 2025, Zero Childhood Cancer: a national approach to improving outcomes of Australian children with cancer through multiomic precision medicine, Elsevier BV, http://dx.doi.org/10.1016/j.pathol.2024.12.099
2025
Preprints
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Body A; Donoghoe M; Lal L; Wakefield C; Ahern ES; Anazodo A; Fuentes Bolanos NA; Padhye B; Downie P; Opat S; Hamad N; Leahy MF; Milch V; Segelov E, 2024, Vaccine beliefs, adverse effects, and quality of life in patients with cancer undergoing routine COVID-19 vaccination, http://dx.doi.org/10.1101/2024.06.02.24308345
2024
Kelada L; Robertson E; McKay S; McGill B; Daly R; Mazariego C; Taylor N; Tyedmers E; Evans H; Wakefield C; Ziegler D, 2023, Communicating with families of young people with hard-to-treat cancers: Healthcare professionals’ perspectives on challenges, skills, and training, http://dx.doi.org/10.22541/au.168438965.52340962/v1
2023
Boensvang NN; Weibel M; Wakefield CE; Bidstrup PE; Olsen M; Nissen KB; Spager V; Fridh MK; Larsen HB, 2023, Online Ambassador Visits for Hospitalized Children With Cancer: Qualitative Evaluation of Implementation (Preprint), http://dx.doi.org/10.2196/preprints.53309
2023
E TK; Wakefield C; Signorelli C; Day A; Vernon-Roberts A; Ooi C, 2023, Gastroenterology services for patients with Cystic Fibrosis across Australia and New Zealand: A multi-stakeholder assessment of patients’ and professionals’ perspectives, http://dx.doi.org/10.22541/au.168271385.50624670/v1
2023
Donoghue M; Body A; Wakefield C; Ahern E; Segelov E, 2023, SARS-CoV-2 post-vaccine surveillance studies in Australian children and adults with cancer: SerOzNET Quality of Life, Toxicity and Vaccine Beliefs Substudy Statistical Analysis Plan, http://dx.doi.org/10.1101/2023.02.28.23286595
2023
Nevin S; McGill B; Kelada L; Hilton G; Donnell M; Elvidge K; Farrar M; Baynam G; Katz N; Donovan L; Grattan S; Signorelli C; Bhattacharya K; Nunn K; Wakefield C, 2023, ‘The psychosocial impact of childhood dementia on children and their parents: A systematic review’, http://dx.doi.org/10.21203/rs.3.rs-2282768/v1
2023
Schaffer M; McLoone J; Wakefield C; Brierley M-E; Girgis A; McCarthy M; Thornton-Benko E; Chan R; Johnston K; Cohn R; Signorelli C, 2021, eHealth tools for childhood cancer survivorship care: A qualitative analysis of survivors’, parents’, and general practitioners’ views., http://dx.doi.org/10.22541/au.161893480.05196827/v1
2021
Fleming C; Murphy-Alford A; Cohen J; Fleming M; Wakefield C; Naumann F, 2021, Poor diet quality and adverse eating behaviours in young survivors of childhood cancer, http://dx.doi.org/10.22541/au.161107475.55687074/v1
2021
Anazodo A; Choi S; Signorelli C; Ellis S; Johnston K; Wakefield C; Deans R; Neville K; Cohn RJ, 2020, Reproductive Care of Childhood and Adolescent Cancer Survivors: A Twelve-Year Evaluation, http://dx.doi.org/10.22541/au.159160329.93924889
2020
Touyz L; Cohen J; Wakefield C; Grech A; Garnett S; Gohil P; Cohn R, 2017, Design and rationale for Reboot: A behavioural medicine pilot intervention to increase fruit and vegetable intake in young childhood cancer survivors, http://dx.doi.org/10.2196/preprints.9252.a
2017
Robertson EG; Wakefield CE; Cohn RJ; O'Brien T; Ziegler DS; Fardell JE, 2017, The Development of Delta: Using Agile to Develop a Decision Aid for Pediatric Oncology Clinical Trial Enrollment (Preprint), http://dx.doi.org/10.2196/preprints.9258
2017
Touyz L; Cohen J; Wakefield C; Grech A; Garnett S; Gohil P; Cohn R, 2017, Design and Rationale for a Parent-Led Intervention to Increase Fruit and Vegetable Intake in Young Childhood Cancer Survivors (Reboot): Protocol for a Pilot Study (Preprint), http://dx.doi.org/10.2196/preprints.9252
2017
Wakefield C; Doolan EL; Fardell JE; Signorelli C; Veronica QF; Tucker KM; Patenaude AF; Marshall GM; Lock RB; Georgiou G; Cohn RJ, The Avatar Acceptability Study: Survivor, Parent and Community Willingness to Use Patient-Derived Xenografts to Personalize Cancer Care, http://dx.doi.org/10.2139/ssrn.3260779
Ren Z; Zhang T; Wakefield C; Du X; Chen W; Shi C; Zhao C; Lai L; Chen Z; Cai M; Lin Q; Zhou Z, Comparative Efficacy and Acceptability of Digital Psychological Interventions to Improve Depression, Anxiety and Quality of Life in Cancer Patients: A Systematic Review and Network Meta-Analysis, http://dx.doi.org/10.2139/ssrn.4179405
Webster SN; Spunt SL; Cunningham SJ; Wakefield C; Smith SM; Alberts NM; Palesh O; Simons L; Heathcote LC, International Survey of Pediatric Oncologists’ Beliefs and Communication Practices Regarding Symptom Self-Monitoring by Childhood Cancer Survivors, http://dx.doi.org/10.2139/ssrn.4188800
Darlington A-S; Long-Sutehall T; Randall D; Wakefield C; Robinson V; Brierley J, Parents' Experiences of Requests for Organ and Tissue Donation: The Value of Asking, http://dx.doi.org/10.2139/ssrn.3234866
Kariyawasam DST; D'Silva AM; Vetsch J; Wakefield C; Wiley V; Farrar MA, <i>'We Needed This'</i>: Perspectives of Parents and Healthcare Professionals Involved in a Pilot Newborn Screening Program for Spinal Muscular Atrophy, http://dx.doi.org/10.2139/ssrn.3682109
Conference Papers
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Nevin S; Kelada L; Wakefield C; Hilton G; Maack M; Djafar J; Elvidge K; Farrar M, 2024, 'Childhood Dementia Insight: A mixed-methods study investigating the psychosocial, quality of life, and psychological impacts of childhood dementia on families', in EUROPEAN JOURNAL OF HUMAN GENETICS, SPRINGERNATURE, GERMANY, Berlin, pp. 1217 - 1217, presented at 57th Conference of the European-Society-of-Human-Genetics (ESHG), GERMANY, Berlin, 01 June 2024 - 04 June 2024
2024
Tyrrell V; Mayoh C; Ekert P; Cowley M; Ziegler D; Wong M; Barahona P; Pinese M; Haber M; Salomon R; Courtney E; Lock R; Fuentes-Bolanos N; Marshall G; Warby M; Trahair T; Dong AKQ; Wakefield C; Tucker K; Barlow-Stewart K; Padhye B; Lau L, 2024, 'Zero Childhood Cancer National Precision Medicine Program: Improving outcomes for children with high risk cancer cancer utilising comprehensive, integrated multiomic profiling', in EUROPEAN JOURNAL OF HUMAN GENETICS, SPRINGERNATURE, GERMANY, Berlin, pp. 800 - 800, presented at 57th Conference of the European-Society-of-Human-Genetics (ESHG), GERMANY, Berlin, 01 June 2024 - 04 June 2024
2024
Foster E; Chen Z; Wakefield C; Ademi Z; Hutton E; Steiner T; Zagami A, 2024, '2967 Australian headache epidemiology data (AHEAD): a pilot study', in Poster Abstracts, BMJ Publishing Group Ltd, pp. A7.2 - A7, presented at ANZAN Annual Scientific Meeting 2024 Abstracts, http://dx.doi.org/10.1136/bmjno-2024-anzan.19
2024
Mckay S; Mazariego C; Dobson M; Tyedmers E; Kelada L; McGill B; Daly R; Wakefield CE; Ziegler D; Taylor N, 2023, 'Development of an implementation-focused logic model framework: a practical example of use to design and support complex care provision for children with a hard-to-treat-cancer', in IMPLEMENTATION SCIENCE, BMC
2023
McLoone J; Hamayun M; Nagabushan S; Signorelli C; Wakefield C; Johnston K; Bell R; Cohn R, 2023, 'PEDIATRIC LOW GRADE GLIOMA SURVIVORS' NEED FOR SURVIVORSHIP CARE: 'ENGAGE' A MULTIDISCIPLINARY, E-HEALTH INTERVENTION.', in NEURO-ONCOLOGY, OXFORD UNIV PRESS INC, DC, Washington, presented at 7th Pediatric Neuro-Oncology Research Conference, DC, Washington, 22 June 2023 - 24 June 2023
2023
Kelada L; Wakefield CE; Sansom-Daly UM; Dumlao G; Hetherington K; McGill BC; Patterson P; Ross K; Schleicher N; Espinoza-Salgado FS; Hill L, 2023, 'INTERNATIONAL IMPLEMENTATION OF AN ONLINE MENTAL HEALTH PROGRAM FOR PARENTS OF YOUNG CANCER SURVIVORS (CASCADE): IMPLEMENTATION PROCESS AND LESSONS LEARNED', in INTERNATIONAL JOURNAL OF BEHAVIORAL MEDICINE, SPRINGER, pp. S37 - S37
2023
Tyedmers E; Mazariego C; Dobson M; Mckay S; Kelada L; McGill B; Daly R; Wakefield C; Ziegler D; Taylor N, 2023, 'Designing for implementation: co-design of a paediatric oncology medicines database (ProCure) to support complex care provision for children with a hard-to-treat cancer', in IMPLEMENTATION SCIENCE, BMC
2023
Kelada L; Robertson E; McGill BC; Daly R; Mazariego C; Taylor N; McKay S; Tyedmers E; Wakefield CE; Ziegler D, 2023, 'CHALLENGES FACED BY HEALTHCARE PROFESSIONALS WHEN COMMUNICATING WITH FAMILIES OF YOUNG PEOPLE WITH A HARD-TO-TREAT CANCER', in INTERNATIONAL JOURNAL OF BEHAVIORAL MEDICINE, SPRINGER, pp. S90 - S90
2023
Body A; Wakefield C; Vi TTL; Donoghoe M; Bolanos NAF; Anazodo A; Ho C; Grech L; Ahern ES; Segelov E, 2022, 'Patient-reported toxicity and quality of life following Sars-CoV-2 vaccination in adults and children with cancer', in JOURNAL OF CLINICAL ONCOLOGY, LIPPINCOTT WILLIAMS & WILKINS, ELECTR NETWORK, presented at Annual Meeting of the American-Society-of-Clinical-Oncology (ASCO), ELECTR NETWORK, 03 June 2022 - 07 June 2022
2022
Robertson E; Wakefield C; Hetherington K; Ziegler D, 2020, 'Parents' Expectations and Experiences of a Precision Medicine Trial for High-Risk Paediatric Cancer', in PEDIATRIC BLOOD & CANCER, WILEY, pp. S47 - S47, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000581769200091&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2020
Fawcett L; Wakefield C; Widger J; Jaffe A; Waters S, 2020, 'ACCEPTABILITY OF USING PERSONALISED MINI‐ORGAN‐AVATARS TO ACCELERATE DRUG DISCOVERY AND PREDICT DRUG RESPONSE IN CYSTIC FIBROSIS PATIENTS', in TSANZSRS 2020 The Australia & New Zealand Society of Respiratory Science and The Thoracic Society of Australia and New Zealand (ANZSRS/TSANZ) Annual Scientific Meeting for Leaders in Lung Health & Respiratory Science, Melbourne - cancelled due to COVID, presented at TSANZSRS 2020, Melbourne - cancelled due to COVID, http://dx.doi.org/10.1111/resp.13778
2020
Robertson EG; Mitchell R; Wakefield CE; Lewis P; Cousens N; Marshall GM; Russell SJ; Ziegler DS; Anazodo AC; Trahair TN; Barbaric D; Cohn RJ; Alvaro F; O'Brien T, 2018, 'Enrolment in early phase paediatric oncology clinical trials: the healthcare professionals’ perspective (poster)', Sydney, presented at Australian and New Zealand Children’s Haematology and Oncology Group (ANZCHOG), Sydney, 14 June 2018 - 16 June 2018
2018
Mizrahi D; Wakefield CE; Fardell JE; Simar D; Maguire A; Hubbard G; McBride J; Field P; Cohn RJ, 2018, 'An Investigation Of Physical Activity And Cardiorespiratory Fitness In Childhood Cancer Survivors.', in MEDICINE AND SCIENCE IN SPORTS AND EXERCISE, LIPPINCOTT WILLIAMS & WILKINS, MN, Minneapolis, pp. 705 - 705, presented at Annual Meeting of the American-College-of-Sports-Medicine (ACSM), MN, Minneapolis, 29 May 2018 - 02 June 2018, http://dx.doi.org/10.26190/unsworks/27201
2018
Mizrahi D; Fardell J; Simar D; Wakefield C; Clifford B; Lim Q; Quinn V; McLoone J; Alvaro F; Walwyn T; Cohn R, 2017, 'Investigating Physical Activity Levels And Distance-delivered Interventions Amongst Survivors Of Childhood Cancer', in MEDICINE AND SCIENCE IN SPORTS AND EXERCISE, LIPPINCOTT WILLIAMS & WILKINS, CO, Denver, pp. 899 - 899, presented at Annual Meeting of the American-College-of-Sports-Medicine (ACSM), CO, Denver, 30 May 2017 - 03 June 2017, http://dx.doi.org/10.1249/01.mss.0000519442.10544.83
2017
Wakefield C; Quinn V; Doolan E; Fardell J; Tucker K; Patenaude A; Marshall K; Lock R; Signorelli C; Georgiou G; Cohn R, 2017, 'The use of Murine Models of Chemosensitivity to Anticancer Agents in Childhood Cancer Clinical Care: Survivor, Parent and Community Acceptability and Willingness-to-Pay', in PEDIATRIC BLOOD & CANCER, WILEY, pp. S60 - S61, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000408978201113&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2017
Robertson EG; Fardell J; Cohn R; Wakefield C, 2017, 'Decision-Making in Pediatric Oncology: Needs, Preferences and Experiences of Families', in PEDIATRIC BLOOD & CANCER, WILEY, pp. S491 - S492, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000408978204230&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2017
Sansom-Daly U; Wakefield C; McGill B; Wilson H, 2015, 'Autobiographical disruption and mechanisms of distress among young adults with cancer: implications for tailoring evidence-based support', in PSYCHO-ONCOLOGY, WILEY-BLACKWELL, pp. 78 - 79, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000358255000142&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2015
Fleming CAK; Cohen J; Murphy A; Wakefield CE; Cohn RJ; Naumann FL, 2015, 'Parent feeding interactions and practices during childhood cancer treatment. A qualitative investigation', in Appetite, pp. 219 - 225, http://dx.doi.org/10.1016/j.appet.2014.12.225
2015
Naumann FL; Hunt M; Wakefield C; Cohn R, 2015, 'What effect does Childhood Cancer Treatment have on Physiological Capacity and Fundamental Movement Skill Development?', in MEDICINE AND SCIENCE IN SPORTS AND EXERCISE, LIPPINCOTT WILLIAMS & WILKINS, pp. 906 - 907, http://dx.doi.org/10.1249/01.mss.0000479190.14828.d4
2015
Healey E; Williams R; Greening S; Warwick L; Wakefield C; Tucker K, 2014, 'IMPROVING INFORMATION DISSEMINATION IN BRCA1/2 FAMILIES WITH A FAMILY COMMUNICATION TOOL', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY-BLACKWELL, pp. 124 - 125, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000346343700375&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2014
Healey E; Williams R; Greening S; Warwick L; Wakefield C; Tucker K, 2014, 'UNDERSTANDING INFORMATION DISSEMINATION CHALLENGES IN BRCA1/2 FAMILIES', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY-BLACKWELL, pp. 125 - 125, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000346343700376&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2014
Sansom-Daly UM; Wakefield CE; Bryant RA; Ellis S; Doolan E; Cohn RJ, 2014, 'Adapting evidence-based psychological therapy to the computer screen for adolescent and young adult cancer survivors: preliminary results from the 'recapture life' randomised controlled trial', in Asia-Pacific Journal of Clinical Oncology, Wiley-Blackwell, pp. 36 - 36, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000346343700102&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2014
Sansom-Daly UM; Bryant RA; Cohn RJ; Wakefield CE, 2014, 'MAKING SENSE AND MOVING ON: UNDERSTANDING THE IMPACT OF CANCER ON THE LIFE NARRATIVES AND ADJUSTMENT OF ADOLESCENT AND YOUNG ADULT CANCER SURVIVORS, COMPARED TO HEALTHY CONTROLS.', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY-BLACKWELL, pp. 115 - 115, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000346343700345&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2014
Cohen J; Wakefield CE; Cohn RJ, 2013, 'A SYSTEMATIC REVIEW OF NUTRITIONAL INTERVENTIONS FOR CHILDHOOD CANCER SURVIVORS', in PEDIATRIC BLOOD & CANCER, WILEY-BLACKWELL, pp. 163 - 163, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000324735501151&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2013
Fleming C; Cohen J; Wakefield C, 2013, 'DIET QUALITY IN AUSTRALIAN CHILDHOOD CANCER PATIENTS RECENTLY AFTER TREATMENT', in PEDIATRIC BLOOD & CANCER, WILEY-BLACKWELL, pp. 227 - 227, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000324735501442&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2013
Sansom-Daly U; Bryant R; Cohn R; Wakefield C, 2013, '" ... AND THEN I GOT CANCER'': EXAMINING THE LIFE NARRATIVES AND IMAGINED FUTURES OF ADOLESCENTS AND YOUNG ADULTS WITH CANCER, COMPARED TO HEALTHY AGE-MATCHED CONTROLS', in PEDIATRIC BLOOD & CANCER, WILEY-BLACKWELL, pp. 179 - 179, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000324735501218&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2013
Sansom-Daly UM; Wakefield CE; Bryant RA; Ellis SJ; Doolan EL; Cohn RJ, 2013, 'Adapting Evidence-Based Therapy to the Computer Screen in Adolescent and Young Adult Oncology: A Randomised Controlled Trial Evaluating the `Recapture Life' Program', in PSYCHO-ONCOLOGY, WILEY-BLACKWELL, pp. 99 - 99, 04 November 2013 - 08 November 2013, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=000325687200150&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2013
Sansom-Daly UM; Wakefield CE; Bryant RA; Cohn RJ, 2012, 'THE EFFECTS OF RUMINATION ON ILLNESS-RELATED FUTURE THINKING IN YOUNG PEOPLE: IMPLICATIONS FOR PROMOTING RESILIENCE AFTER CANCER', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY-BLACKWELL, pp. 249 - 250, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000310544400092&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2012
Sansom-Daly U; Wakefield CE; Bryant RA; Cohn RJ, 2012, 'ONLINE GROUP-BASED COGNITIVE-BEHAVIOURAL THERAPY FOR ADOLESCENTS AND YOUNG ADULTS AFTER CANCER TREATMENT: THE RECAPTURE LIFE-AYA PILOT STUDY', in PEDIATRIC BLOOD & CANCER, WILEY PERIODICALS, INC, pp. 1122 - 1122, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000309754300642&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2012
Wakefield CE; Drew D; Doolan EJ; McLoone J; Cohn RJ; Ellis S, 2012, 'Grandparents of children with cancer: A controlled study of distress, support and barriers to care.', in 2012 IPOS 14th World Congress of Psycho-Oncology and Psychosocial Academy, Wiley-Blackwell, Brisbane, QLD, Australia, presented at 2012 IPOS 14th World Congress of Psycho-Oncology and Psychosocial Academy, Brisbane, QLD, Australia, 13 November 2012 - 15 November 2012, http://cosa-ipos-2012.p.asnevents.com.au/event/abstract/912
2012
Wakefield CE; Drew D; Ellis SJ; Doolan EJ; Cohn RJ, 2012, 'PREVALENCE OF GRANDPARENTAL DISTRESS, SUPPORT SERVICE USAGE AND BARRIERS TO ACCESS: A COMPARISON OF GRANDPARENTS OF CHILDREN WITH CANCER AND MATCHED CONTROLS', in PEDIATRIC BLOOD & CANCER, WILEY PERIODICALS, INC, pp. 1127 - 1127, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000309754300666&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2012
Wakefield C; McLoone JK; Wong SL; Cohn RJ, 2011, 'HOW MUCH SLEEP ARE PARENTS GETTING ON THE PEDIATRIC ONCOLOGY WARD?', in PEDIATRIC BLOOD & CANCER, WILEY PERIODICALS, INC, pp. 852 - 853, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000295239600598&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2011
Sansom-Daly U; Casey JS; Goodenough B; Wakefield CE; Cohn RJ, 2011, 'THE REMEMBERED LEGACY OF CANCER: CANCER-RELATED MEMORIES AND POST-TRAUMATIC OUTCOMES IN CHILDHOOD CANCER SURVIVORS AND THEIR FAMILIES', in PEDIATRIC BLOOD & CANCER, WILEY PERIODICALS, INC, pp. 759 - 759, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000295239600210&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2011
Wakefield CE; Sansom-Daly UM; Ellis SJ; Doolan EL; Cohn RJ, 2011, ''Cope, Adapt, Survive': Trialling an Online Psychological Intervention for Parents After Their Child's Cancer Treatment', in PSYCHO-ONCOLOGY, WILEY-BLACKWELL, pp. 100 - 100, 16 October 2011 - 20 October 2011, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=000325687200151&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2011
Cohen J; Wakefield C; Fleming CAK; Cohn RJ, 2011, 'WHAT DO PARENTS OF CHILDHOOD CANCER PATIENTS ACTUALLY THINK ABOUT ENTERAL NUTRITION?', in PEDIATRIC BLOOD & CANCER, WILEY PERIODICALS, INC, pp. 835 - 835, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000295239600522&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2011
Cohen J; Wakefield CE; Fleming C; Cohn RJ, 2011, 'CONSEQUENCES OF TREATMENT ON THE FOOD PREFERENCES AND DIETARY HABITS OF CHILDHOOD CANCER SURVIVORS', in PEDIATRIC BLOOD & CANCER, WILEY PERIODICALS, INC, pp. 827 - 828, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000295239600491&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2011
Wakefield CE; Meiser B; Barratt A; Patel MS; Gaff C; Mann GJ; Lobb EA; Ramsay JR, 2010, 'Risk assessment and information needs regarding the screening options of unaffected men with a strong family history of prostate cancer', in Asia-Pacific Journal of Clinical Oncology, Blackwell Publishing Asia, Australia, pp. A52, presented at Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting 2010, Victoria, Australia
2010
Meiser B; Watts KJ; Wakefield CE; Sansom-daly U; Barratt A; Patel MS; Lobb E; Gaff C; Howard K; Mann GJ, 2010, 'An online screening decision aid for men with a family history of prostate cancer: development and pilot-testing', Kingscliffe, NSW, presented at kconFab 2010, Kingscliffe, NSW, 17 August 2010 - 20 August 2010
2010
Watts KJ; Wakefield CE; Meiser B; Sansom-daly U; Barratt A; Patel MS; Lobb E; Gaff C; Howard K; Mann G, 2009, 'Two-stage development and pilot-testing of an online screening decision aid for men with a family history of prostate cancer', in Asia-Pacific Journal of Clinical Oncology, Blackwell Publishing Asia, Australia, pp. A260 - A260, presented at 36th Annual Meeting of the Clinical Oncological Society of Australia, Gold Coast, Queensland, 17 November 2009 - 19 November 2009
2009
Watts KJ; Wakefield CE; Meiser B; Barratt A; Howard K; Patel MS; Suthers GK; Gaff C; Mann GJ; Lobb EA; Ramsay JR, 2008, 'Development of a tailored, online decision aid on screening options for unaffected men with a family history of prostate cancer', in Psycho-oncology, John Wiley & Sons, New York, pp. S157, presented at International Psycho-Oncology Society (IPOS) 10th World Congress of Psycho-Oncology, Madrid, Spain, 09 June 2008 - 13 June 2008
2008
Juan A; Wakefield CE; Kasparian NA; Kirk J; Tyler J; Tucker K, 2008, 'Men at increased risk of developing breast cancer: A decision aid for men considering genetic testing', in Asia-Pacific Journal of Clinical Oncology, Blackwell Publishing Asia, Australia, pp. 145 - 179, presented at 35th Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting, Sydney, Australia
2008
Watts KJ; Wakefield CE; Meiser B; Barratt A; Patel MS; Mann GJ; Lobb E; Howard K; Gaff C; Ramsay JR, 2008, 'Development of a tailored, Online decision aid on screening options for unaffected men with a family history of prostate cancer', in Psycho - Oncology, John Wiley & Sons Ltd, Chichester, W Sussex, England, pp. S157 - S157, presented at Psycho-Oncology 2008
2008
Wakefield CE; McLoone J; Goodenough B; Lenthen K; Cairns DR; Cohn RJ, 2008, 'Psychosocial issues following recent childhood cancer treatment completion: A systematic literature review and guidelines for end-of-treatment support', in Asia-Pacific Journal of Clinical Oncology, Blackwell Publishing Asia, Australia, pp. 145 - 179, presented at 35th Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting, Sydney, Australia
2008
Wakefield CE; Meiser B; Watts KJ; Barratt A; Patel MS; Mann G; Lobb E; Howard K; Gaff C; Ramsay J, 2008, 'Development of a tailored, online decision aid on screening options for unaffected men with a family history of prostate cancer', in European Journal of Human Genetics, Nature Publishing Group, London, England, pp. 458 - 459, presented at European Meeting on Psychosocial Aspects of Genetics (EMPAG), Barcelona, Spain, 31 May 2008 - 03 June 2008
2008
Meiser B; Collins V; Tiller K; Wakefield CE, 2007, 'Hereditary non-polyposis colorectal cancer (HNPCC) and related matters: Counselling issues', in Asia-Pacific Journal of Clinical Oncology, Blackwell Publishing Asia, Australia, pp. A42, presented at Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting 2007, Adelaide, Australia
2007
Wakefield CE; Meiser B; Barratt A; Patel MK; Gaff C; Mann GJ; Lobb EA; Ramsay JR, 2007, 'Development of an Online screening decision aid for unaffected men with a strong family history of prostate cancer', in Psycho - Oncology, John Wiley & Sons Ltd, Chichester, W Sussex, England, pp. S127 - S128, presented at Psycho-Oncology 2007
2007
Wakefield CE; Meiser B; Homewood J; Kirk J; Tucker K, 2007, 'Translation of research in hereditary breast/ovarian cancer to other settings: A decision aid for individuals considering genetic testing for hereditary non-polyposis colorectal cancer', in Psycho - Oncology, John Wiley & Sons Ltd, Chichester, W Sussex, England, pp. S20 - S21, presented at Psycho-Oncology 2007
2007
Wakefield CE; Meiser B; Homewood J; Kirk J; Tucker K, 2007, 'A randomised controlled trial of a decision aid for individuals considering genetic testing for hereditary non-polyposis colorectal cancer (HNPCC)', in Asia-Pacific Journal of Clinical Oncology, Blackwell Publishing Asia, Australia, pp. A67, presented at Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting 2007, Adelaide, Australia
2007
Peate M; Wakefield CE; Meiser B; Homewood J; Barlow-Stewart K; Tucker K, 2006, 'What should you call a cancer-related mutation? A comparison of community, clinician and patient preferences', in Asia-Pacific Journal of Clinical Oncology, Blackwell Publishing Asia, Australia, pp. 145 - 179, presented at Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting 2006, Melbourne, Australia
2006
Meiser B; Wakefield CE; Homewood J; Kirk J; Tucker K, 2006, ''Timing and use of a decision aid for genetic testing for hereditary breast/ovarian cancer risk'', in Psycho - Oncology, John Wiley & Sons Ltd, Chichester, W Sussex, England, pp. S109 - S109, presented at 8th World Congress of Psycho-Oncology, Ferrara-Vience, Italy, 16 October 2006 - 21 October 2006
2006
Wakefield C; Meiser B; Homewood J; Kirk J; Tucker K, 2004, 'Development and pilot testing of a decision aid for genetic testing for hereditary non-polyposis colorectal cancer (HNPCC)', in PSYCHO-ONCOLOGY, JOHN WILEY & SONS LTD, pp. S82 - S83, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000223957800174&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2004
Wakefield C; Meiser B; Homewood J; Lobb E; Kirk J; Tucker K, 2003, 'Development of two decision aids for genetic testing for hereditary cancer.', in AMERICAN JOURNAL OF HUMAN GENETICS, UNIV CHICAGO PRESS, CALIFORNIA, LOS ANGELES, pp. 360 - 360, presented at Annual Meeting of the American-Society-of-Human-Genetics, CALIFORNIA, LOS ANGELES, 04 November 2003 - 08 November 2003, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000185599701114&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2003
Book Chapters
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Hetherington K; Hunter JD; Lockridge R; Warby M; Raygadam M; Wakefield CE; Wiener L, 2023, 'The Psychosocial Impact of Familial Endocrine Cancer Syndromes (FECS) on the Patient and Caregiver', in Familial Endocrine Cancer Syndromes Navigating the Transition of Care for Pediatric and Adolescent Patients, pp. 1 - 35, http://dx.doi.org/10.1007/978-3-031-37275-9_1
2023
Schwartz LA; Wakefield CE; McLoone JK; Werba DeRosa B; Kazak AE, 2021, 'Adult Survivors of Childhood Cancer', in Butow PN; Lam WWT (ed.), Psycho-Oncology, Oxford University Press, pp. 767 - 772, http://dx.doi.org/10.1093/med/9780190097653.003.0096
2021
Patenaude AF; Wakefield CE, 2021, 'Psychosocial aspects of childhood cancer genetics', in Hereditary Basis of Childhood Cancer, pp. 445 - 471, http://dx.doi.org/10.1007/978-3-030-74448-9_15
2021
sansom-daly U; McGill B; kasparian N; Patterson P; Muscara F; Wakefield C, 2016, 'Navigating the impact of serious illness across the family system using evidence-based therapeutic approaches', in Menzies R; Kyrios M; Kazantzis N (ed.), Innovations and Future Directions in the Behavioural and Cognitive Therapies, Australian Academic Press, Queensland, pp. 176 - 181, https://www.australianacademicpress.com.au/books/details/287/Innovations_and_Future_Directions_in_the_Behavioural_and_Cognitive_Therapies
2016
Signorelli C; Fardell J; Wakefield C; Cohn R, 2016, 'The Cost of Cure: Chronic Conditions in Survivors of Child, Adolescent, and Young Adult Cancers', in Koczwara B (ed.), Cancer and Chronic Conditions Addressing the Problem of Multimorbidity in Cancer Patients and Survivors, Springer, Singapore, pp. 371 - 420, http://dx.doi.org/10.1007/978-981-10-1844-2_13
2016
Cohen JE; Wakefield CE; Bartle J; Cohn RJ, 2012, 'Nutritional interventions for survivors of childhood cancer', in Cochrane Database of Systematic Reviews, Wiley, http://dx.doi.org/10.1002/14651858.cd009678
2012
Conference Abstracts
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McKay S; Mazariego C; Elias J; McLoone J; Signorelli C; Wakefield C; Cohn R; Ayliff N, 2023, 'Using process mapping to capture variability within paediatric cancer survivorship services: understanding factors influencing implementation of the Engage program', in Proceedings of the 2nd Implementation Science Health Conference Australia: Sydney, NSW, Australia, 23-24 March 2023, Implementation Science, Sydney, Australia, Vol. 18, pp. 38 - 38, presented at Implementation Science Health Conference Australia, Sydney, Australia, 23 March 2023 - 24 March 2023, http://dx.doi.org/10.1186/s13012-023-01292-1
2023
Sansom-Daly UM; Wiener L; Rosenberg A; Weaver M; Poort H; Darlington A-S; Schulte F; Herbert A; Sue L; Anazodo A; Trethewie S; Fernando RA; Cohn RJ; Lindsay T; Donovan L; Mack J; Evans HE; Cable M; Girgis A; Wakefield CE, 2022, 'Improving capacity for equitable end-of-life communication for adolescents and young adults with cancer: What training do health-professionals need to facilitate best-practice?', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, Vol. 18, pp. 62 - 63
2022
Gereis J; Hetherington K; Robertson E; Ziegler D; Wakefield C, 2022, 'PARENTS' AND PATIENTS' UNDERSTANDING OF A PRECISION MEDICINE TRIAL FOR HIGH-RISK CHILDHOOD CANCER', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 69, pp. S399 - S399, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000859203901450&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2022
Sansom-Daly UM; Evans HE; Wiener L; Patterson P; Anazodo A; Girgis A; Cohn RJ; Wakefield CE, 2022, 'Improving end-of-life communication for all adolescents and young adults with cancer: A multi-perspective, mixed-methods evaluation of the voicing my CHOiCES™ tool', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, Vol. 18, pp. 97 - 98
2022
Mazariego CG; Dobson M; McKay S; McGill B; Daly R; Wakefield C; Ziegler D; Taylor N, 2022, 'Designing for implementation: co-design of a paediatric oncology medicines database (ProCure) to support complex care provision for children with a hard-to-treat cancer', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, Vol. 18, pp. 229 - 229
2022
Body A; Wakefield C; Luong VTT; Donoghoe M; Fuentes Bolanos NA; Anazodo A; Ho C; Grech L; Ahern ES; Segelov E, 2022, 'Patient-reported toxicity and quality of life following Sars-CoV-2 vaccination in adults and children with cancer.', in JOURNAL OF CLINICAL ONCOLOGY, LIPPINCOTT WILLIAMS & WILKINS, Vol. 40, http://dx.doi.org/10.1200/JCO.2022.40.17_suppl.LBA12068
2022
Elias J; McLoone JK; Signorelli C; Mazariego C; McKay S; Wakefield CE; Cohn RJ; Taylor NJ, 2022, 'Developing an intervention logic model for 'Engage': A novel, multi-disciplinary program for survivors of childhood cancer', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, Vol. 18, pp. 232 - 232
2022
McLoone J; Signorelli C; Wakefield CE; Donoghoe M; Johnston K; Bell R; Cohn RJ, 2022, 'The 'ENGAGE' program: Effective childhood cancer survivorship care', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, Vol. 18, pp. 80 - 80
2022
Ha L; Mizrahi D; Johnston K; Drew D; Diaz C; Cohn RJ; Yacef K; Signorelli C; Wakefield CE; Simar D, 2021, 'Improving physical activity levels among childhood cancer survivors: A digital educational program', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, Vol. 17, pp. 13 - 13, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000693805000015&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2021
Vetsch J; Wakefield CE; Warby M; Tucker K; Duve E; Marshall G; Trahair T; O'Brien T; Lau L; Ziegler D, 2019, 'Families' and healthcare professionals' uncertainties in the era of cancer precision medicine: results from PRISM', in EUROPEAN JOURNAL OF HUMAN GENETICS, NATURE PUBLISHING GROUP, SWEDEN, Gothenburg, Vol. 27, pp. 1172 - 1172, presented at 52nd Conference of the European-Society-of-Human-Genetics (ESHG), SWEDEN, Gothenburg, 15 June 2019 - 18 June 2019, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000489313900238&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2019
Lum A; Fardell J; Wakefield C; Schilstra C; Burns M; Ellis S; Marshall G; Donnan B; Walwyn T; Barton B; Cohn R, 2019, 'Processes of Support in Australia for Students with Cancer: Current Strengths and Weaknesses (For Educational Day: Gaps and Models of Care for Schooling After Cancer)', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 66, pp. S120 - S121, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000488458001094&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2019
Fardell J; Wakefield C; Burns M; Marshall G; Donnan B; Walwyn T; Barton B; Lum A; Cohn R, 2019, 'Development of a School Support Website for Children and Adolescents with Cancer (for Educational Day Series: Gaps and Models of Care for Schooling After Cancer)', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 66, pp. S409 - S409, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000488458004182&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2019
Robertson E; Wakefield C; Cohn R; Robert B; Donoghoe M; Ziegler D; Fardell J; Mitchell R; O'Brien T, 2019, 'Delta: A Parent and Patient Decision Aid to Support Clinical Trial Decision-Making in Childhood Cancer', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 66, pp. S118 - S118, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000488458001090&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2019
Wakefield CE; Sansom-Daly U; Hetherington K; Ellis S; Girgis A; McCarthy M; Miles G; Patterson P; Awford K; Cohn R, 2019, 'Feasibility, Acceptability and Safety of a Novel Online Group-Based Psychological Support Program for Parents After Their Child's Cancer Treatment: A Three-Armed Randomized Trial of 'Cascade'', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 66, pp. S12 - S12, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000488458000019&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2019
Mcgill B; Wakefield C; Vetsch J; Duve E; Warby M; Cohn R; Tucker K, 2019, 'Parents' and Young Adults' Perspectives on Undertaking Cancer-Related Genetic Testing in Childhood: A Mixed-Methods Study', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 66, pp. S117 - S118, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000488458001089&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2019
Young AL; Butow PN; Rhodes P; Tucker KM; Williams R; Healey E; Wakefield CE, 2019, 'Communication across generations: disclosure of BRCA cancer risk with young adults', in EUROPEAN JOURNAL OF HUMAN GENETICS, NATURE PUBLISHING GROUP, SWEDEN, Gothenburg, Vol. 27, pp. 1171 - 1171, presented at 52nd Conference of the European-Society-of-Human-Genetics (ESHG), SWEDEN, Gothenburg, 15 June 2019 - 18 June 2019, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000489313900236&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2019
Robertson E; Wakefield C; Cohn R; Fardell J, 2018, 'The Development of Delta: A Decision Aid to Help Parents Considering Enroling their Child in a Paediatric Oncology Clinical Trial', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 65, pp. S587 - S587, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000445195005094&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2018
Ellis S; Sansom-Daly U; Cohn R; Juraskova L; Butow P; Wakefield C, 2018, 'Improving Sleep in Parents of Children with Cancer: Development and Evaluation of a Hospital-Based Cognitive Behavioral Therapy Intervention', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 65, pp. S10 - S11, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000445195000019&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2018
Ellis SJ; Wakefield CE; Sansom-Daly UM; Butow P; Juraskova I; Gan Y; Cohn RJ, 2018, 'Prevalence and Predictors of Sleep Quality and Quantity in Caregivers of Childhood Cancer Patients Receiving Outpatient Treatment', in PSYCHO-ONCOLOGY, WILEY, Vol. 27, pp. 138 - 138, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000448188000365&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2018
Sansom-Daly UM; Wakefield CE; Wiener L; Anazodo A; Cohn RJ; Patterson P; Girgis A; Sanson-Fisher R; Donovan L; Drew D, 2018, 'Bridging the gap between standards and 'standard-practice' using advance-care planning tools: The Difficult Discussions study', in PSYCHO-ONCOLOGY, WILEY, Vol. 27, pp. 110 - 110, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000448188000287&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2018
Mizrahi D; Wakefield C; Simar D; Maguire A; Hubbard G; Fardell J; McBride J; Field P; Cohn RJ, 2018, 'Is physical activity and cardiorespiratory fitness reduced among childhood cancer survivors?', in JOURNAL OF CLINICAL ONCOLOGY, AMER SOC CLINICAL ONCOLOGY, Vol. 36, http://dx.doi.org/10.1200/JCO.2018.36.15_suppl.10569
2018
Ellis S; Burns M; Wakefield C; Egorkina T; Aralova M, 2018, 'Psycho-Oncology in Russia: Parent Psychological Distress and Sleep Outcomes on the Paediatric Oncology Ward', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 65, pp. S569 - S570, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000445195005054&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2018
Mizrahi D; Wakefield CE; Fardell JE; Simar D; Maguire A; Hubbard G; McBride J; Field P; Cohn RJ, 2018, 'An Investigation Of Physical Activity And Cardiorespiratory Fitness In Childhood Cancer Survivors.', in Medicine & Science in Sports & Exercise, Ovid Technologies (Wolters Kluwer Health), Vol. 50, pp. 705 - 705, http://dx.doi.org/10.1249/01.mss.0000538323.14277.a2
2018
Wakefield CE; Vetsch J; Tucker KM; Warby M; O'Brien T; Techakesari P; Glenn M; Trahair TN; Marron JM; Lau L; Tyrell V; Ziegler D, 2018, 'Families' and Healthcare Professionals' Hopes and Expectations Participating in a Precision Medicine Trial for Children with High-Risk Cancer: The PRISM-Impact Study', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 65, pp. S62 - S62, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000445195000120&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2018
Vetsch J; Wakefield CE; Tucker K; Warby M; Techakesari P; Marshall G; Trahair TN; O'Brien T; Marron JM; Lau L; Tyrell V; Ziegler D, 2018, 'The PRISM-IMPACT study: What are the hopes and expectations of families and health care professionals enrolling in a personalised medicine trial for high risk childhood cancers?', in EUROPEAN JOURNAL OF HUMAN GENETICS, NATURE PUBLISHING GROUP, ITALY, Milan, Vol. 27, pp. 690 - 691, presented at 51st Conference of the European-Society-of-Human-Genetics (ESHG) in conjunction with the European Meeting on Psychosocial Aspects of Genetics (EMPAG), ITALY, Milan, 16 June 2018 - 19 June 2018, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000489313105140&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2018
Signorelli C; Wakefield C; Gabriel M; Vetsch J; Karpelowsky J; Darlington AS; Richard C, 2018, 'How Does Surgery Impact Childhood Cancer Patients? The Lasting Experiences and Needs of Survivors and Their Parents', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 65, pp. S490 - S490, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000445195004114&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2018
Signorelli C; Wakefield C; Gabriel M; Vetsch J; Karpelowsky J; Darlington A-S; Cohn R, 2018, 'The Lasting Impact of Surgery for Childhood Cancer: Survivors' and Parents' Experiences and Needs', in PSYCHO-ONCOLOGY, WILEY, Vol. 27, pp. 141 - 142, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000448188000374&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2018
Stafford L; Sinclair M; Rauch P; Turner J; Newman L; Cannell J; Gilham L; Mann B; Mason K; Schofield P; Wakefield C, 2018, 'Communicating with Children About Parental Cancer: Development of The Enhancing Parenting in Cancer (EPIC) Intervention - An Innovative and Accessible Resource to Support Parents with Cancer Who Have Young Children', in PSYCHO-ONCOLOGY, WILEY, Vol. 27, pp. 130 - 131, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000448188000345&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2018
Robertson E; Wakefield C; Cohn R; McGill B; Fardell J, 2018, 'Decision making in paediatric oncology: experiences and preferences of parents', in PSYCHO-ONCOLOGY, WILEY, Vol. 27, pp. 3 - 3, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000426522700002&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2018
Fardell JE; Ellis SJ; Wakefield CE; Lah S; Collins DE; Schilstra CE; Cohn RJ, 2018, 'Examining social competency in survivors of childhood cancer', in PSYCHO-ONCOLOGY, WILEY, Vol. 27, pp. 185 - 185, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000448188000493&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2018
Signorelli C; Wakefield C; Johnston K; Fardell J; Brierley M-E; Thornton-Benko E; Foreman T; Webber K; Wallace H; Cohn R, 2018, '"Re-engage": Promoting engagement and empowering childhood cancer survivors through a new nurse-led ehealth intervention', in PSYCHO-ONCOLOGY, WILEY, Vol. 27, pp. 194 - 195, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000448188000519&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2018
Hill RE; Fardell JE; Wakefield CE; Cohn RJ; Brierley M-EE; Kothe E; Hetherington K; Mercieca-Bebber R, 2018, 'The effect of survivorship care plans on cancer survivors' patient-reported outcomes: A meta-analysis and systematic review', in PSYCHO-ONCOLOGY, WILEY, Vol. 27, pp. 189 - 189, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000448188000504&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2018
Robertson EG; Wakefield CE; Cohn RJ; Fardell JE, 2018, 'The development of Delta: A decision aid to help parents considering enroling their child in a paediatric oncology clinical trial', in PSYCHO-ONCOLOGY, WILEY, Vol. 27, pp. 215 - 215, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000448188000574&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2018
Fardell JE; Ellis SJ; Wakefield CE; Lum A; Marshall G; Burns MA; Donnan B; Walwyn T; Barton B; Cohn RJ, 2018, 'Developing an Australia-Wide Interactive School Re-Entry Website for Children and Adolescents with Cancer', in PSYCHO-ONCOLOGY, WILEY, Vol. 27, pp. 92 - 92, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000448188000240&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2018
Signorelli C; Wakefield C; Johnston K; Fardell J; Mary-Ellen B; Thornton-Benko E; Foreman T; Webber K; Wallace WH; Cohn R, 2018, 'Re-engage: A Nurse-led eHealth Intervention to Promote Engagement and Empower Childhood Cancer Survivors', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 65, pp. S698 - S699, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000445195005338&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2018
Robertson E; Wakefield C; Cohn R; O'Brien T; Ziegler D; Fardell J, 2018, 'The development of Delta: a decision aid to help parents considering enroling their child in a paediatric oncology clinical trial', in PSYCHO-ONCOLOGY, WILEY, Vol. 27, pp. 10 - 10, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000426522700019&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2018
Wakefield C, 2018, '"When ethics, genetics and paediatrics collide": Genetics-related service needs and the acceptability of new approaches to personalized medicine in children's cancer', in PSYCHO-ONCOLOGY, WILEY, Vol. 27, pp. 8 - 9, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000448188000015&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2018
Wakefield C, 2018, '"The impact of cancer on families": A tribute to Andrea Farkas Patenaude's contribution to psycho-oncology, with a focus on pediatric and hereditary cancers', in PSYCHO-ONCOLOGY, WILEY, Vol. 27, pp. 8 - 8, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000448188000013&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2018
Robertson EG; Mitchell R; Wakefield CE; Lewis P; Cousens N; Marshall GM; Russell SJ; Ziegler DS; Anazodo A; Trahair TN; Barbaric D; Cohn RJ; Alvaro F; O'Brien TA, 2018, 'Enrolment in early phase paediatric oncology clinical trials: the healthcare professionals’ perspective.', Hong Kong, presented at International Psycho-Oncology Society, Hong Kong, 31 October 2018 - 02 November 2018
2018
McGill BC; Wakefield CE; Vetsch J; Cohn RJ; Warby M; Tucker KM, 2018, 'I remember the feeling not the gene: Families' experiences of and attitudes towards genetic testing in childhood cancer', in EUROPEAN JOURNAL OF HUMAN GENETICS, NATURE PUBLISHING GROUP, ITALY, Milan, Vol. 27, pp. 701 - 702, presented at 51st Conference of the European-Society-of-Human-Genetics (ESHG) in conjunction with the European Meeting on Psychosocial Aspects of Genetics (EMPAG), ITALY, Milan, 16 June 2018 - 19 June 2018, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000489313105163&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2018
Young AL; Butow PN; Rhodes P; Tucker KM; Williams R; Healey E; Wakefield CE, 2018, 'The complexity of families: Young adults and their families' communication about hereditary breast and ovarian cancer risk', in PSYCHO-ONCOLOGY, WILEY, Vol. 27, pp. 149 - 149, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000448188000394&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2018
McGill BC; Wakefield CE; Vetsch J; Cohn RJ; Warby M; Tucker KM, 2018, 'Families' experiences of genetic testing in the context of childhood cancer: The "GenPact" study', in PSYCHO-ONCOLOGY, WILEY, Vol. 27, pp. 59 - 60, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000448188000150&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2018
Sansom-Daly UM; Wakefield CE; Wiener L; Evans HE; McGill BC; Patterson P; Donovan L; Drew D; Girgis A; Sanson-Fisher R; Anazodo A; Cohn RJ, 2017, 'Doing Better at 'Difficult Discussions': Australian Oncology Professionals' Perspectives on End-of-Life Communication with Adolescents and Young Adults with Cancer', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, Vol. 13, pp. 95 - 96, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000413954500097&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2017
Ellis S; Wakefield C; Sansom-Daly U; Juraskova I; Butow P, 2017, 'CAT NAP (Carers at night in pediatrics): Development and evaluation of an evidence-based intervention to improve sleep in parents of children with cancer', in PSYCHO-ONCOLOGY, WILEY, Vol. 26, pp. 103 - 103, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000407688900276&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2017
Wakefield C; Doolan E; Signorelli C; Tucker K; Patenaude A; Vetsch J; Cohn R, 2017, 'Genetics-Related Beliefs, and Information and Service Needs, of Childhood Cancer Survivors and Their Parents', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 64, pp. S59 - S60, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000408978201111&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2017
Signorelli C; Wakefield CE; Fardell JE; Michel G; Jones JM; Turpin KH; Emery J; McLoone JK; Cohn RJ, 2017, 'Improving the Quality of Follow-Up Care for Pediatric Cancer Survivors: A Mixed-Methods Study on Preferences for Models of Survivorship Care', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 64, pp. S379 - S380, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000408978203268&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2017
Robertson E; Fardell J; Cohn R; Wakefield C, 2017, 'Decision making in pediatric oncology: Needs, preferences, and experiences of families', in PSYCHO-ONCOLOGY, WILEY, Vol. 26, pp. 104 - 104, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000407688900277&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2017
Mizrahi D; Wakefield CE; Simar D; Maguire AM; Osborn M; Hubbard G; Cohn RJ; Fardell JE, 2017, 'Do Childhood Cancer Survivors Achieve Recommended Physical Activity Levels? A Report from the Anzchog Survivorship Study', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, Vol. 13, pp. 86 - 86, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000413954500073&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2017
Tillemans R; Lourenco RDA; Fardell JE; Wakefield C; Signorelli C; Jordana M; Cohn R, 2016, 'What influences quality of life in paediatric cancer survivors?', in QUALITY OF LIFE RESEARCH, SPRINGER, Vol. 25, pp. 162 - 163, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000398451600397&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2016
Wakefield C; Georgiou G; McGill B; Fardell J; Signorelli C; Hanlon L; Tucker K; Patenaude A; Cohn R, 2016, 'Genetic testing for childhood cancer survivors' risk of late effects: Consumer understanding, acceptance and willingness-to-pay', in PSYCHO-ONCOLOGY, WILEY-BLACKWELL, Vol. 25, pp. 107 - 108, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000385942700235&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2016
Robertson E; Fardell J; O'Brien T; Cohn R; Mitchell R; Drew D; Ziegler D; Marshall G; Wakefield C, 2016, 'Treatment Decision Making for Young People with Cancer and Their Parents', in PEDIATRIC BLOOD & CANCER, WILEY-BLACKWELL, Vol. 63, pp. S232 - S232, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000384818801393&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2016
Fardell J; Wakefield C; Signorelli C; Russo S; McLoone J; Cohn R, 2016, 'Health Behaviours in Survivors of Childhood Cancer: Modifiable Risk Factors for Developing Late Effects', in PEDIATRIC BLOOD & CANCER, WILEY-BLACKWELL, Vol. 63, pp. S61 - S61, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000384818800575&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2016
Wakefield C; Georgiou G; McGill B; Fardell J; Signorelli C; Hanlon L; Tucker K; Patenaude A; Cohn R, 2016, 'Genetic Testing for Childhood Cancer Survivors' Risk of Late Effects: Consumer Understanding, Acceptance and Willingness-To-Pay', in PEDIATRIC BLOOD & CANCER, WILEY-BLACKWELL, Vol. 63, pp. S88 - S88, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000384818800705&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2016
Fardell J; Donovan L; Wakefield C; Russell V; Mitchell R; O'Brien T; Ziegler D; Glenn M; Cohn R, 2016, 'Outcomes of Bereaved Parents Whose Child Did or Did not Participate in An Early Phase Clinical Trial', in PEDIATRIC BLOOD & CANCER, WILEY-BLACKWELL, Vol. 63, pp. S62 - S62, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000384818800579&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2016
Wakefield C; Sansom-Daly U; Brittany MG; Robertson E; Ellis S; Marshall K; Hetherington K; Doolan E; Cohn R, 2016, ''Cascade': A randomized trial of online support for parents after their child's cancer treatment', in PSYCHO-ONCOLOGY, WILEY-BLACKWELL, Dublin, Ireland, Vol. 25, pp. 106 - 107, presented at World Congress of Psycho-oncology, Dublin, Ireland, 17 October 2016 - 21 October 2016, http://dx.doi.org/10.1002/pon.v25.S3/issuetoc
2016
Touyz L; Wakefield C; Cohen J; Cohn R, 2016, 'Design and Rationale for Reboot Kids: A Parent-Targeted Behavioural Intervention to Promote Healthy Eating Habits in Children Recently off Cancer Treatment', in PEDIATRIC BLOOD & CANCER, WILEY-BLACKWELL, Vol. 63, pp. S58 - S58, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000384818800562&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2016
Donovan L; Wakefield C; Cohn R; Russell V, 2015, 'Recreating life after death-the place of professional and social support in the lives of parents following the death of a child from cancer', in PSYCHO-ONCOLOGY, WILEY-BLACKWELL, Vol. 24, pp. 13 - 14, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000358255000026&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2015
McLoone JK; Wakefield CE; Lawrence R; Cohn RJ, 2013, 'WHERE TO CARE FOR CHILDHOOD CANCER SURVIVORS? SURVIVOR AND ONCOLOGY SERVICE PROVIDER PERSPECTIVES', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY-BLACKWELL, Vol. 9, pp. 124 - 124, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000325868800204&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2013
Drew D; Punch D; Ellis S; Wakefield CE, 2011, 'KEEPING children connected - bringing the classroom into the bone marrow transplant room', in BONE MARROW TRANSPLANTATION, NATURE PUBLISHING GROUP, FRANCE, Paris, Vol. 46, pp. S401 - S401, presented at 37th European Group for Bone and Marrow Transplantation/27th Meeting of the EBMT Nurses Group/10th Meeting of the EBMT Management Group, FRANCE, Paris, 03 April 2011 - 06 April 2011, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000289195403027&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2011
Wakefield C; Drew D; Ellis S; Cohn RJ, 2011, 'MEETING THE INFORMATION NEEDS OF GRANDPARENTS OF CHILDREN WITH CANCER', in PEDIATRIC BLOOD & CANCER, WILEY PERIODICALS, INC, Vol. 57, pp. 853 - 853, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000295239600599&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2011
Conference Presentations
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Nevin S; Wakefield C; Le Marne F; Beavis E; Macintosh R; Sachdev R; Bye A; Palmer E; Nunn K, 2021, 'Evaluating positive psychology resources among caregivers of a child with a genetic epilepsy', presented at The Australian and New Zealand Child Neurology Society (ANZCNZ) 9th Annual Scientific Meeting, Held virtually, 13 September 2021 - 15 September 2021
2021
Logan S; Anazodo A; Wakefield C; Cohn R; Stern K; Agresta F; Jayasinghe Y; Deans R; Segelov E; Mclachlan R; Gerstl B; Sullivan E; Ledger W, 2018, 'Oncofertility care and the impact on reproductive concerns, psychological distress and satisfaction in cancer patients at diagnosis, parents and partners', presented at Fertility Society of Australia, Melbourne, 10 September 2018 - 12 September 2018
2018
Anazodo A; Logan S; Wakefield CE; Cohn R; Stern K; Agresta F; Jayasinghe Y; Deans R; Segelov E; McLachlan RI; Gerstl B; Sullian E; Ledger W, 2018, 'Oncofertility care and the impact on reproductive concerns, psychological distress and satisfaction in cancer patients at diagnosis, parents and partners', presented at 3rd Global Adolescent and Young Adult Cancer Congress, Sheraton Grand Elizabeth Street Sydney, 04 December 2018 - 06 December 2018
2018
Sansom-Daly U; Wakefield C; McGill B; Wilson H; Robertson E; Ellis S; Doolan E; Patterson P; Cohn R, 2015, 'Clinical challenges in implementing psychosocial support in the online space: experiences from the 'Recapture Life' trial', https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000358255000027&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2015
Wakefield C; Drew D; Doolan E; Young A; Cohn R, 2015, 'Translation of research to practice for grandparents of children with cancer: national dissemination and evaluation of a new resource', https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000358255000025&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2015
Donovan L; Wakefield C; Russell V; Cohn R, 2015, 'Transitional social support: a developing framework for hospital-based bereavement care following the death of a child from cancer', https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000358255000045&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2015
Anazodo AC; Stern C; MaLachlan R; Gerstl B; Agresta F; Cohn R; Jayasinghe Y; Wakefield CE; Daly G; Gilbert L; Orme L; Wand H; Viney R; Gillam L; Deans R; Jetti M; Chapman M; Ledger W; Sullivan E, 2015, 'Australasian Oncofertility Registry: Monitoring referral patterns and the uptake, quality and complications of fertility preservation strategies in Australia and New Zealand.', presented at Fertility Society of Australia Conference 2015, Canberra Australia, 13 September 2015 - 15 September 2015
2015
McLoone JK; Wakefield CE; Cohn RJ, 2014, 'Empowering Childhood Cancer Survivors: What Information Do Long Term Follow-Up Clinic Attendees and Non-Attendees Need?', https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000344003700530&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2014
Drew D; Wakefield CE; Ellis S; Doolan EJ; McLoone J; Cohn RJ, 2013, ''Give as much help as you can but tread carefully': Grandparenting across the generations when a grandchild is diagnosed with cancer.', presented at 45th Congress of the International Society of Paediatric Oncology (SIOP), Hong Kong, -
2013
McLoone J; Wakefield CE; Cohn RJ, 2013, 'Sleep needs of parents caring for children with cancer.', presented at Australian and New Zealand Children's Haematology and Oncology Group (ANZCHOG), Annual Scientific Meeting, Melbourne, Australia
2013
McLoone J; Wakefield CE; Cohn RJ, 2013, 'Comparing the models of care utilised by Australia and New Zealand childhood cancer long term follow-up clinics.', presented at Australia and New Zealand Children's Haematology and Oncology Group (ANZCHOG), Annual Scientific Meeting, Melbourne, Australia
2013
McLoone J; Wakefield CE; Evans N; Cohn RJ, 2013, 'When the 'all clear' is not so clear: Families' coping with fear of childhood cancer recurrence.', presented at Inaugural Survivorship Conference, Flinders Centre for Cancer Innovation, Adelaide, Australia
2013
Wakefield CE; Drew D; Doolan EJ; McLoone J; Cohn RJ; Ellis S, 2012, 'Grandparents of children with cancer need better support: A controlled prevalence study of distress in grandparents of children with, and without, cancer.', presented at 14th Annual World Congress of Psycho-Oncology, Brisbane, Australia, -
2012
McLoone J; Wakefield CE; Cohn RJ, 2012, 'Development of a best practice model of care for suvivours of paediatric cancer.', presented at Australian & New Zealand Children's Oncology group annual scientific meeting, Surfers Paradise, QLD, Australia, 23 August 2012
2012
Wakefield CE; Evans N; McLoone J; Cohn RJ, 2012, 'The psychological impact of receiving a cancer diagnosis in childhood: Parental experiences and implications for ICU practice.', presented at Australian College of Critical Care Nurses Education Evening, Sydney Children's Hospital, 12 September 2012
2012
McLoone J; Wakefield CE; Yoong SL; Cohn RJ, 2011, 'Parental Sleep Experiences on the Paediatric Oncology Ward.', presented at 13th Annual World Congress of Psycho-Oncology, Antalya, Turkey
2011
Wakefield CE; McLoone J; Cohn RJ, 2011, 'School (re)entry after childhood cancer treatment.', presented at Inaugural Australasian H.E.L.P (Health, Educators, Learners and Practitioners) Conference, Coogee Beach, Sydney, Australia
2011
Wakefield CE; McLoone J; Fleming C; Butow PN; Daniel G; Cohn RJ, 2011, 'Perceptions of support received and needed by families of childhood cancer survivors recently off treatment.', presented at World Cancer Congress, Dalian, China, 24 May 2011 -
2011
Wakefield CE; McLoone J; Butow PN; Lenthen K; Cohn RJ, 2010, 'Perceptions of support received and needed by young people who have recently completed cancer treatment and their families.', presented at Sydney Cancer Conference, Sydney, Australia
2010
Wakefield CE; McLoone J; Sansom-Daly U; Fleming C; Lenthen K; Butow PN; Cohn RJ, 2010, 'Decision-making during and after cancer treatment: A qualitative study of adolescent and family experiences.', presented at Australian and New Zealand Children's Haematology and Oncology Group (ANZCHOG) Annual Scientific Meeting, Sydney, Australia, 03 September 2010 - 05 September 2010
2010
Lenthen K; Wakefield CE; McLoone J; Cohn RJ, 2010, 'The psychological impact of completing childhood cancer treatment on adolescent patients and their families.', presented at American Paediatric Oncology Social Workers Conference, Anaheim, California, USA, 28 April 2010
2010
Wakefield CE; McLoone J; Fleming C; Butow PN; Cohn RJ, 2010, ''Suddenly he's dropped from an 'A' student to a 'C'": A qualitative investigation of the educational experiences and concerns of young cancer survivors and their families.', presented at OZPOS/PoCoG Psycho-Oncology Professional Day: 'Optimising psychosocial care through clinical and research excellence', 37th Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting, Melbourne, Australia, -
2010
McLoone J; Wakefield CE; Goodenough BJ; Cairns DR; Lenthen K; Butow PN; Cohn RJ, 2009, 'Finishing cancer treatment: the positives and negatives for adolescents and their families.', presented at 36th Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting, Gold Coast, QLD, Australia
2009
Lenthen K; Wakefield CE; McLoone J; Goodenough BJ; Cohn RJ, 2009, 'Completing childhood cancer treatment and the psychological impact: a milestone or millstone with families?', presented at Australian New Zealand Children's Haematology and Oncology (ANZCHOG) Annual Scientific Meeting, Adelaide, Australia
2009
Wakefield CE; McLoone J; Goodenough BJ; Lenthen K; Cairns DR; Cohn RJ, 2009, 'The psychosocial impact of completing cancer treatment on children and their familes.', presented at Journal Club, Cenre for Children's Cancer and Blood Disorders, 09 March 2009
2009
Wakefield CE; McLoone J; Goodenough BJ; Lenthen K; Cairns DR; Cohn RJ, 2009, 'Finishing Cancer Treatment: The positives and negatives for adolescents and their families.', presented at Leukaemia Foundation of Australia annual training conference, Adelaide, Australia, 15 October 2009
2009
Wakefield CE; McLoone J; Goodenough BJ; Lenthen K; Cairns DR; Cohn RJ, 2009, 'The CCC&BD's Behavioural Sciences Unit: Current and future projects.', presented at Kid's Cancer Update, Sydney Children's Hospital, 30 August 2009
2009
Wakefield CE, 2006, 'Decision aid implementation issues: Two decision aids for genetic testing for cancer risk', presented at Meeting of Research in Oncology, Medical Psychology (ROMP) oral presentation series, Royal Prince Alfred Hospital, Sydney
2006
Wakefield CE, 2006, 'Communication aids versus take-home tools: Comparing the results of 2 randomised controlled trials', presented at Meeting of the SESIAHS Hereditary Cancer Clinics, Prince of Wales hospital, Sydney
2006
Wakefield CE, 2003, 'Development of two decision aids for individuals considering genetic testing of breast and ovarian cancer and HNPCC risk', presented at Clinical Epidemiology Program -Seminar Series, Ottawa Health Research Institute, Canada
2003
Conference Posters
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Macintosh R; Nevin S; Le Marne F; McGill B; Sachdev R; Wakefield C; Bye A; Palmer E, 2019, 'Co-development of education and support resources for families with severe early-onset genetic epilepsy', Welcome Genome Campus, UK, presented at World Congress of Genetic Counselling, Welcome Genome Campus, UK, 02 October 2019 - 04 October 2019
2019

AWARDS
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  • University Medal for Psychology.
  • Australian Psychological Society Prize.
  • Higher Degree Research Excellence Award, Macquarie University.
  • Cancer Research Network Innovation Award, NSW.
  • Macquarie University Research award for Excellence in Research – Social Sciences, Business & Humanities.
  • NSW Young Tall Poppy Science Award.
  • Dean’s Rising Star award.
  • International Psycho-Oncology Society (IPOS) Hiroomi Kawano New Investigator Award.
  • Premier’s Award for Outstanding Cancer Research Fellow of the Year.
  • Excellence in Postgraduate Research Supervision Award.
  • Diamond Jubilee International Visiting Fellowship at the University of Southampton, UK.

AREA OF EXPERTISE
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Professor Claire Wakefield is a medical psychologist who leads research to improve quality of life for patients with medical illness, especially children with cancer and other life-limiting conditions. Claire is a Professor at the School of Clinical Medicine at UNSW. She is also Executive Director of the Behavioural Sciences Unit at Sydney Children’s Hospital. 

Professor Wakefield holds multiple international leadership roles, including being Continental President (Oceania) for the International Society for Paediatric Oncology (SIOP). Specific responsibilities of the SIOP Continental President Oceania include advocating for children and adolescents with cancer across Oceania, promoting research to improve outcomes for childhood cancer patients across Oceania, facilitating and sharing education and training opportunities for SIOP Oceania members, increasing membership and engagement of SIOP Oceania members in SIOP activities and strengthening and expanding strategic partnerships of relevance to SIOP Oceania.  She works very closely with the World Health Organisation, supporting the work of the Global Childhood Cancer Initiative.

Website: www.behaviouralsciencesunit.org

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